{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,19]],"date-time":"2026-10-19T17:40:39Z","timestamp":1792431639148,"version":"4.5.0"},"reference-count":58,"publisher":"Wiley","issue":"5","license":[{"start":{"date-parts":[[2026,8,31]],"date-time":"2026-08-31T00:00:00Z","timestamp":1788134400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2026,8,31]],"date-time":"2026-08-31T00:00:00Z","timestamp":1788134400000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Health Expectations"],"published-print":{"date-parts":[[2026,10]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Public engagement has the potential to make research more impactful, and it has increased in recent years in cancer research. Yet, there is limited understanding of how this process of bringing lived experience into research works, and of what leads to tokenistic and non\u2010tokenistic engagement.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Aims and Objectives<\/jats:title>\n                    <jats:p>To explore public engagement in cancer research in the United States from the perspective of both lived\u2010experience experts and researchers.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>A qualitative study consisting of interviews with 15 lived\u2010experience experts engaged in cancer research and 15 cancer researchers. Data were analysed using reflexive thematic analysis.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Findings are captured in four themes shared by both participant groups and mapped onto J\u00fcrgen Habermas's theory of communicative action, which helped explain the engagement process. First, public engagement was invaluable to research, but also personally and professionally. Second, underlying foundations and principles underpinned the non\u2010tokenistic engagement process. Third, engagement led to the creation of a partnership between cancer researchers and lived\u2010experience experts. Fourth, engagement was about creating and enriching culture within a research institution and in the community.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>The study provided a better understanding of public engagement in cancer research. Habermas's communicative action theory offered an analytical framework to elicit the importance of mutual understanding in developing common ground between lived\u2010experience experts and researchers. It highlighted that tensions between lived\u2010experience experts and researchers, choosing not to act on feedback, and limited institutional support can lead to tokenistic engagement.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Patient or Public Contribution<\/jats:title>\n                    <jats:p>Four Community Advisory Board members contributed to this study from design through dissemination. They co\u2010developed topic guides, co\u2010analysed data, co\u2010wrote this paper and are named as co\u2010authors.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/hex.70848","type":"journal-article","created":{"date-parts":[[2026,8,31]],"date-time":"2026-08-31T07:36:06Z","timestamp":1788161766000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Bridging Lived and Expert Experience: A Qualitative Study Exploring Lived\u2010Experience Experts' and Researchers' Experiences of Public Engagement in Cancer Research"],"prefix":"10.1111","volume":"29","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-2172-8298","authenticated-orcid":false,"given":"Piotr","family":"Teodorowski","sequence":"first","affiliation":[{"name":"University of Stirling Stirling UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-5474-3390","authenticated-orcid":false,"given":"Beth J.","family":"Maclin","sequence":"additional","affiliation":[{"name":"Division of Cancer Epidemiology and Genetics National Cancer Institute Bethesda MD USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Joi","family":"Miner","sequence":"additional","affiliation":[{"name":"Community Advisory Board Stirling UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0004-4615-6358","authenticated-orcid":false,"given":"Jonathan B.","family":"Green","sequence":"additional","affiliation":[{"name":"Community Advisory Board Stirling UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Daniel G.","family":"Garza","sequence":"additional","affiliation":[{"name":"Community Advisory Board Stirling UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marcus","family":"Arana","sequence":"additional","affiliation":[{"name":"Community Advisory Board Stirling UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3400-905X","authenticated-orcid":false,"given":"Edward","family":"Duncan","sequence":"additional","affiliation":[{"name":"University of Stirling Stirling UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-5100-623X","authenticated-orcid":false,"given":"Jonine","family":"Figueroa","sequence":"additional","affiliation":[{"name":"Division of Cancer Epidemiology and Genetics National Cancer Institute Bethesda MD USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6986-8842","authenticated-orcid":false,"given":"Sarah S.","family":"Jackson","sequence":"additional","affiliation":[{"name":"Division of Cancer Epidemiology and Genetics National Cancer Institute Bethesda MD USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7218-5775","authenticated-orcid":false,"given":"Liz","family":"Forbat","sequence":"additional","affiliation":[{"name":"University of Stirling Stirling UK"},{"name":"Marie Curie Edinburgh UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2026,8,31]]},"reference":[{"key":"e_1_2_11_2_1","unstructured":"Canadian Institutes of Health Research \u201cCanada's Strategy for Patient\u2010Oriented Research: Improving Health Outcomes Through Evidence\u2010informed Care \u201d accessed 13 April 2026 https:\/\/cihr-irsc.gc.ca\/e\/documents\/P-O_Research_Strategy-eng.pdf."},{"key":"e_1_2_11_3_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11136-017-1581-x"},{"key":"e_1_2_11_4_1","unstructured":"NIHR.National Standards for Public Involvement.2019."},{"key":"e_1_2_11_5_1","doi-asserted-by":"publisher","DOI":"10.1186\/s40900-023-00490-x"},{"key":"e_1_2_11_6_1","doi-asserted-by":"publisher","DOI":"10.1186\/1472-6963-14-89"},{"key":"e_1_2_11_7_1","doi-asserted-by":"publisher","DOI":"10.1111\/hex.12841"},{"key":"e_1_2_11_8_1","doi-asserted-by":"publisher","DOI":"10.1186\/s40900-017-0081-z"},{"key":"e_1_2_11_9_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1369-7625.2012.00795.x"},{"key":"e_1_2_11_10_1","doi-asserted-by":"publisher","DOI":"10.1093\/jmp\/jhad024"},{"key":"e_1_2_11_11_1","doi-asserted-by":"publisher","DOI":"10.2105\/AJPH.2024.307998"},{"key":"e_1_2_11_12_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jval.2020.01.019"},{"key":"e_1_2_11_13_1","doi-asserted-by":"publisher","DOI":"10.1332\/174426419X15552999451313"},{"key":"e_1_2_11_14_1","unstructured":"(PCORI) \u201cP\u2010CORI. 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