{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,19]],"date-time":"2026-10-19T17:41:09Z","timestamp":1792431669765,"version":"4.5.0"},"reference-count":71,"publisher":"Wiley","issue":"5","license":[{"start":{"date-parts":[[2026,9,14]],"date-time":"2026-09-14T00:00:00Z","timestamp":1789344000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2026,9,14]],"date-time":"2026-09-14T00:00:00Z","timestamp":1789344000000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Health Expectations"],"published-print":{"date-parts":[[2026,10]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Introduction<\/jats:title>\n                    <jats:p>\u2018Frailty\u2019 as a concept is being increasingly integrated into healthcare, but the language around frailty is contentious and potentially stigmatising to patients. It is therefore important to understand how patients\u2019 lived experiences relate to the concept of frailty. We conducted 3 creative patient and public involvement (PPI) workshops to support the study, \u2018Exploring how the Electronic Frailty Index 2 (eFI2) can be best utilised in clinical practice.\u2019 Our aims for these workshops were to 1) improve our eFI2 project topic guide and data analysis 2) explore whether creative PPI can support engagement with contentious concepts like frailty, and 3) to understand how frailty can be communicated to patients.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>Creative PPI offers a means of addressing the shortcomings and challenges of PPI, including tokenism, accessibility, and inclusivity, by allowing patients and members of the public to contribute in different, individual, and non\u2010discursive ways. We used group blackout poetry writing and quilt\u2010making as creative PPI approaches to understand how patients relate to \u2018frailty.\u2019 We collaborated with PPI networks affiliated with the NIHR Applied Research Collaborations (ARCs) and a South Asian community organisation to recruit participants and used public collaborators to co\u2010design and \u2010deliver activities. We used qualitative thematic reflections to share findings from these activities.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Twenty\u2010two people attended three creative PPI workshops (two blackout poetry activities and one quilt\u2010making activity). These activities provided three types of findings: 1) the impacts of the creative PPI activities on the eFI2 research process, 2) three thematic reflections, \u2018difficulties with \u2018frailty\u2019 as a term and concept,\u2019 \u2018personalising \u2018frailty\u2019 in patient communications,\u2019 and \u2018time pressures and dysfunction in healthcare services;\u2019 and 3) the creative outputs (text of two poems and an image of the quilt).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>Research and healthcare professionals should work towards discussing frailty with patients in terms and concepts that reflect their experiences and understanding and consider their overall health. Future research and PPI should focus on diverse cultural perspectives on frailty.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/hex.70872","type":"journal-article","created":{"date-parts":[[2026,9,14]],"date-time":"2026-09-14T10:22:12Z","timestamp":1789381332000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Group Poetry and Quilt\u2010Making \u2013Creative Public Involvement Approaches to Contentious Concepts in Frailty Research"],"prefix":"10.1111","volume":"29","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-8302-9831","authenticated-orcid":false,"given":"William","family":"Lammons","sequence":"first","affiliation":[{"name":"Department of Primary Care and Population Health University College London (UCL), UCL London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lily","family":"Arnold","sequence":"additional","affiliation":[{"name":"Department of Primary Care and Population Health University College London (UCL), UCL London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sarah","family":"Mcmullen","sequence":"additional","affiliation":[{"name":"Department of Primary Care and Population Health University College London (UCL), UCL London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3170-7570","authenticated-orcid":false,"given":"Fiona","family":"Aspinal","sequence":"additional","affiliation":[{"name":"Keele University, School of Medicine Keele UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Samina","family":"Begum","sequence":"additional","affiliation":[{"name":"Academic Unit for Ageing &amp; Stroke Research University of Leeds, Bradford Teaching Hospitals NHS Foundation Trust Bradford UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Katherine","family":"Barrett","sequence":"additional","affiliation":[{"name":"Department of Primary Care and Population Health University College London (UCL), UCL London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2173-2430","authenticated-orcid":false,"given":"Kate","family":"Walters","sequence":"additional","affiliation":[{"name":"Department of Primary Care and Population Health University College London (UCL), UCL London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Andrew","family":"Clegg","sequence":"additional","affiliation":[{"name":"Academic Unit for Ageing &amp; Stroke Research University of Leeds, Bradford Teaching Hospitals NHS Foundation Trust Bradford UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Stuart","family":"Mackay\u2010Thomas","sequence":"additional","affiliation":[{"name":"Hampstead Group Practice London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sara","family":"Humphrey","sequence":"additional","affiliation":[{"name":"Westcliffe Health Innovations Ltd, Eccleshill Treatment Centre Bradford UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Danielle","family":"Nimmons","sequence":"additional","affiliation":[{"name":"Department of Primary Care and Population Health University College London (UCL), UCL London UK"},{"name":"University of Leeds Leeds UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2026,9,14]]},"reference":[{"key":"e_1_2_11_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(12)62167-9"},{"key":"e_1_2_11_3_1","doi-asserted-by":"publisher","DOI":"10.1136\/BMJ-2023-076862"},{"key":"e_1_2_11_4_1","unstructured":"\u201cFrailty: Language and Perceptions | British Geriatrics Society\u201d accessed September 1 2025 https:\/\/www.bgs.org.uk\/frailty-language-and-perceptions."},{"key":"e_1_2_11_5_1","doi-asserted-by":"publisher","DOI":"10.1093\/AGEING\/AFAD095"},{"key":"e_1_2_11_6_1","unstructured":"BritainThinks. \u201cFrailty: Language and Perceptions A report prepared by BritainThinks on behalf of Age UK and the British Geriatrics Society \u201d2015 Accessed: September 3 2025 https:\/\/www.ageuk.org.uk\/siteassets\/documents\/reports-and-publications\/reports-and-briefings\/health--wellbeing\/rb_june15_frailty_language_and_perceptions.pdf."},{"key":"e_1_2_11_7_1","doi-asserted-by":"publisher","DOI":"10.1002\/HAST.907"},{"key":"e_1_2_11_8_1","doi-asserted-by":"publisher","DOI":"10.1093\/AGEING\/AFAF077"},{"key":"e_1_2_11_9_1","doi-asserted-by":"publisher","DOI":"10.3399\/bjgp25X742473"},{"key":"e_1_2_11_10_1","doi-asserted-by":"publisher","DOI":"10.1017\/S0144686X1500046X"},{"key":"e_1_2_11_11_1","doi-asserted-by":"publisher","DOI":"10.1136\/BMJOPEN-2019-035339"},{"key":"e_1_2_11_12_1","unstructured":"Involve patients | NIHR. 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