{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,5]],"date-time":"2026-10-05T12:02:32Z","timestamp":1791201752656,"version":"4.2.0"},"reference-count":29,"publisher":"Wiley","issue":"5","license":[{"start":{"date-parts":[[2026,10,5]],"date-time":"2026-10-05T00:00:00Z","timestamp":1791158400000},"content-version":"vor","delay-in-days":4,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2026,10,1]],"date-time":"2026-10-01T00:00:00Z","timestamp":1790812800000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"funder":[{"DOI":"10.13039\/100004440","name":"Wellcome","doi-asserted-by":"publisher","award":["226944\/Z\/23\/Z"],"award-info":[{"award-number":["226944\/Z\/23\/Z"]}],"id":[{"id":"10.13039\/100004440","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Health Expectations"],"published-print":{"date-parts":[[2026,10]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Introduction<\/jats:title>\n                    <jats:p>Co\u2010production is becoming an established methodology in mental health research, yet there remains a lack of condition\u2010specific frameworks to guide its design and implementation. For bipolar disorder in particular, there is limited evidence on how to meaningfully engage lived experience experts in the context of possible mood instability and other impairments. This paper presents insights from a consultation with people with lived experience of bipolar disorder, aimed at developing recommendations for conducting co\u2010production with people with bipolar.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>A one\u2010off, 1\u2010h online consultation was conducted with four members of the AMBIENT\u2010BD Lived Experience Advisory Panel (LEAP). The consultation used a semi\u2010structured focus group format, guided by a topic guide, to explore strategies for recruiting and engaging co\u2010producers in bipolar disorder research. Data were analysed using reflexive thematic analysis.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      Four overarching themes were developed: (i)\n                      <jats:italic>Communicating with co\u2010producers\u2010<\/jats:italic>\n                      capturing how trusted channels and regular contact support recruitment and sustained engagement; (ii)\n                      <jats:italic>Providing accessible information<\/jats:italic>\n                      \u2010 addressing the need to balance sufficient detail with readable, low\u2010burden formats during periods of instability; (iii)\n                      <jats:italic>Building and sustaining trust<\/jats:italic>\n                      \u2010 highlighting trust in the research process and partnerships with third\u2010sector organisations as preconditions for meaningful involvement; and (iv)\n                      <jats:italic>Perceived impact as a motivator<\/jats:italic>\n                      \u2010 reflecting how community belonging and tangible incentives shape willingness to participate. A provisional set of practical recommendations was derived from these themes, including recruiting through trusted organisations, using non\u2010technical language and multiple formats, offering meaningful incentives, and using low\u2010burden communication methods during periods of unwellness.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>Grounded in lived experience perspectives, this paper conceptualises co\u2010production as a relational process in which trust, accessible communication and visible impact form the foundation for meaningful engagement with people with bipolar disorder. Positioned as a consultative contribution on the IAP2 Spectrum of Public Participation, the paper offers practical, mental health\u2010specific guidance for researchers seeking to develop advisory groups and other participatory approaches with the bipolar population.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Patient\/Public Contribution<\/jats:title>\n                    <jats:p>This study has been conducted in partnership with people with lived experience of bipolar disorder. They were involved in the conceptualisation, design and data collection of the study. They helped to inform the process of conducting a co\u2010production with people with bipolar disorder. Findings from the consultation were shared with them in a separate feedback session.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/hex.70887","type":"journal-article","created":{"date-parts":[[2026,10,5]],"date-time":"2026-10-05T11:34:47Z","timestamp":1791200087000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Developing Best Practices in Co\u2010Production With Lived Experience Experts in Bipolar Research: Insights From the AMBIENT\u2010BD Lived Experience Advisory Panel"],"prefix":"10.1111","volume":"29","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-9126-1884","authenticated-orcid":false,"given":"Raahat","family":"Manrai","sequence":"first","affiliation":[{"name":"Division of Psychiatry, Centre for Clinical Brain Sciences University of Edinburgh Edinburgh Scotland UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-5934-7311","authenticated-orcid":false,"given":"Amber","family":"Roguski","sequence":"additional","affiliation":[{"name":"Division of Psychiatry, Centre for Clinical Brain Sciences University of Edinburgh Edinburgh Scotland UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0005-7406-5186","authenticated-orcid":false,"given":"Amy","family":"Ferguson","sequence":"additional","affiliation":[{"name":"Division of Psychiatry, Centre for Clinical Brain Sciences University of Edinburgh Edinburgh Scotland UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8756-1326","authenticated-orcid":false,"given":"Iain","family":"Campbell","sequence":"additional","affiliation":[{"name":"Division of Psychiatry, Centre for Clinical Brain Sciences University of Edinburgh Edinburgh Scotland UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2267-1951","authenticated-orcid":false,"given":"Daniel J.","family":"Smith","sequence":"additional","affiliation":[{"name":"Division of Psychiatry, Centre for Clinical Brain Sciences University of Edinburgh Edinburgh Scotland UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9068-3188","authenticated-orcid":false,"given":"Aja L.","family":"Murray","sequence":"additional","affiliation":[{"name":"School of Psychology, Philosophy and Linguistic Science University of Edinburgh Edinburgh Scotland UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0975-5971","authenticated-orcid":false,"given":"Maria","family":"Gardani","sequence":"additional","affiliation":[{"name":"School of Health in Social Science University of Edinburgh Edinburgh Scotland UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2026,10,5]]},"reference":[{"issue":"2","key":"e_1_2_11_2_1","doi-asserted-by":"crossref","first-page":"230","DOI":"10.1080\/09581596.2020.1770694","article-title":"Relational, Ethically Sound Co\u2010Production in Mental Health Care Research: Epistemic Injustice and the Need for an Ethics of Care","volume":"32","author":"Groot B.","year":"2022","journal-title":"Critical Public Health"},{"issue":"2","key":"e_1_2_11_3_1","doi-asserted-by":"crossref","first-page":"159","DOI":"10.1080\/2159676X.2022.2052946","article-title":"Co\u2010Production: A Resource to Guide Co\u2010Producing Research in the Sport, Exercise, and Health Sciences","volume":"15","author":"Smith B.","year":"2023","journal-title":"Qualitative Research in Sport, Exercise and Health"},{"issue":"1","key":"e_1_2_11_4_1","doi-asserted-by":"crossref","first-page":"4","DOI":"10.1186\/s40345-016-0045-5","article-title":"Harnessing the Potential of Community\u2010Based Participatory Research Approaches in Bipolar Disorder","volume":"4","author":"Michalak E. 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E.","year":"2023","journal-title":"International Journal of Bipolar Disorders"},{"issue":"1","key":"e_1_2_11_9_1","doi-asserted-by":"crossref","first-page":"16","DOI":"10.1186\/1752-4458-6-16","article-title":"Improving Care and Wellness in Bipolar Disorder: Origins, Evolution and Future Directions of a Collaborative Knowledge Exchange Network","volume":"6","author":"Michalak E. E.","year":"2012","journal-title":"International Journal of Mental Health Systems"},{"issue":"5","key":"e_1_2_11_10_1","doi-asserted-by":"crossref","DOI":"10.1111\/hex.70014","article-title":"What Do We Know About Sharing Power in Co\u2010Production in Mental Health Research? A Systematic Review and Thematic Synthesis","volume":"27","author":"Hopkins I.","year":"2024","journal-title":"Health Expectations"},{"key":"e_1_2_11_11_1","unstructured":"INVOLVE \u201cBriefing Notes for Researchers: Public Involvement in NHS Public Health and Social Care Research \u201d2012."},{"key":"e_1_2_11_12_1","unstructured":"Participation IAfP \u201cIAP2 Spectrum of Public Participation\u201d 2018."},{"issue":"1","key":"e_1_2_11_13_1","doi-asserted-by":"crossref","DOI":"10.1186\/s12961-020-00558-0","article-title":"Lost in the Shadows: Reflections on the Dark Side of Co\u2010Production","volume":"18","author":"Williams O.","year":"2020","journal-title":"Health Research Policy and Systems"},{"issue":"9","key":"e_1_2_11_14_1","doi-asserted-by":"crossref","DOI":"10.1136\/bmjopen-2022-061465","article-title":"Understanding Patient Partnership in Health Systems: Lessons From the Canadian Patient Partner Survey","volume":"12","author":"Abelson J.","year":"2022","journal-title":"BMJ Open"},{"issue":"1","key":"e_1_2_11_15_1","doi-asserted-by":"crossref","DOI":"10.1186\/s12961-019-0432-3","article-title":"The Dark Side of Coproduction: Do the Costs Outweigh the Benefits for Health Research?","volume":"17","author":"Oliver K.","year":"2019","journal-title":"Health Research Policy and Systems"},{"key":"e_1_2_11_16_1","doi-asserted-by":"crossref","first-page":"254","DOI":"10.12688\/wellcomeopenres.23662.1","article-title":"Ambient and Passive Collection of Sleep and Circadian Data in Bipolar Disorder to Understand Symptom Trajectories and Clinical Outcomes (AMBIENT\u2010BD): Study Protocol","volume":"10","author":"Manrai R.","year":"2025","journal-title":"Wellcome Open Research"},{"key":"e_1_2_11_17_1","doi-asserted-by":"crossref","DOI":"10.2196\/46590","article-title":"The Involvement of Service Users and People With Lived Experience in Mental Health Care Innovation Through Design: Systematic Review","volume":"10","author":"Veldmeijer L.","year":"2023","journal-title":"JMIR Mental Health"},{"issue":"3","key":"e_1_2_11_18_1","doi-asserted-by":"crossref","DOI":"10.1002\/hsr2.19","article-title":"Co\u2010Production With \u2018Vulnerable\u2019 Groups: Balancing Protection and Participation","volume":"1","author":"Liabo K.","year":"2018","journal-title":"Health Science Reports"},{"issue":"2","key":"e_1_2_11_19_1","doi-asserted-by":"crossref","first-page":"159","DOI":"10.1080\/17496535.2023.2211756","article-title":"The Ethics of Engagement and Representation in Community\u2010Based Participatory Research","volume":"17","author":"O'Sullivan S.","year":"2023","journal-title":"Ethics and Social Welfare"},{"key":"e_1_2_11_20_1","volume-title":"Action Research in a Relational Perspective: Dialogue, Reflexivity, Power and Ethics","author":"Hersted L.","year":"2020"},{"key":"e_1_2_11_21_1","first-page":"19","volume-title":"Doing Reflexive Thematic Analysis","author":"Braun V.","year":"2022"},{"issue":"4","key":"e_1_2_11_22_1","doi-asserted-by":"crossref","first-page":"1381","DOI":"10.1111\/hex.13775","article-title":"Lived Experience Engagement in Mental Health Research: Recommendations for a Terminology Shift","volume":"26","author":"Hawke L. 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