{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,9]],"date-time":"2026-09-09T02:07:29Z","timestamp":1788919649653,"version":"build-2803163510"},"reference-count":17,"publisher":"Wiley","license":[{"start":{"date-parts":[[2026,9,8]],"date-time":"2026-09-08T00:00:00Z","timestamp":1788825600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2026,9,8]],"date-time":"2026-09-08T00:00:00Z","timestamp":1788825600000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"funder":[{"DOI":"10.13039\/501100000265","name":"Medical Research Council","doi-asserted-by":"publisher","award":["MR\/W006774\/1"],"award-info":[{"award-number":["MR\/W006774\/1"]}],"id":[{"id":"10.13039\/501100000265","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["HIV Medicine"],"abstract":"Abstract<\/jats:title>\n \n Introduction<\/jats:title>\n Preconception health is a key determinant of birthing people and infant outcomes. However, for people living with HIV, preconception care has predominantly focused on preventing vertical transmission, often neglecting broader needs. We conducted an exploratory qualitative descriptive study with women living with HIV to inform the development of a preconception health resource.<\/jats:p>\n <\/jats:sec>\n \n Methods<\/jats:title>\n In collaboration with HIV peer support organization 4M Network, we conducted five focus group discussions (FGDs) via Zoom in June\u2013July 2024. Participants were eligible if they were living with HIV, aged \u226518\u2009years, UK residents, and had either recently been pregnant (within 5\u2009years) or were a 4M Mentor Mother or 4M Co\u2010Director. FGDs were recorded, transcribed and analysed thematically.<\/jats:p>\n <\/jats:sec>\n \n Results<\/jats:title>\n \n Sixteen cisgender women participated in five\n FGDs<\/jats:styled-content>\n ; aged 26\u201357, all Black\/Mixed ethnicity, most non\u2010\n UK<\/jats:styled-content>\n born, and diagnosed with\n HIV<\/jats:styled-content>\n for 1\u201333\u2009years. We identified five themes: healthy pregnancy meaning; pregnancy preparation; managing during pregnancy and postpartum; preconception discussions; and information sources. Participants across all groups (recently pregnant women, 4M Mentor Mothers and 4M Co\u2010Directors) identified a need for information on HIV management, physical and mental health, lifestyle, the pregnancy journey, and infant feeding. Most recently pregnant women had not discussed preconception health with their HIV clinicians, despite describing them as a main source of information and support. The findings emphasize the importance of holistic and tailored resources for women living with HIV.\n <\/jats:p>\n <\/jats:sec>\n \n Conclusion<\/jats:title>\n This study describes the diverse needs of women living with HIV as they prepare for pregnancy, highlighting how these needs extend beyond the prevention of vertical transmission of HIV. Our findings informed the development of a freely available preconception health resource for people living with HIV.<\/jats:p>\n <\/jats:sec>","DOI":"10.1111\/hiv.70304","type":"journal-article","created":{"date-parts":[[2026,9,9]],"date-time":"2026-09-09T02:00:18Z","timestamp":1788919218000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Preparing for pregnancy while living with HIV: An exploratory qualitative study of Women's preconception information needs and priorities"],"prefix":"10.1111","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-7204-7356","authenticated-orcid":false,"given":"Catherine","family":"Stewart","sequence":"first","affiliation":[{"name":"Institute for Women's Health University College London London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"A.","family":"Namiba","sequence":"additional","affiliation":[{"name":"4M Network of Mentor Mothers London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9333-3514","authenticated-orcid":false,"given":"R.","family":"Mbewe","sequence":"additional","affiliation":[{"name":"4M Network of Mentor Mothers London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"L.","family":"Kwardem","sequence":"additional","affiliation":[{"name":"4M Network of Mentor Mothers London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"E.","family":"Ndungu","sequence":"additional","affiliation":[{"name":"4M Network of Mentor Mothers London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9802-7727","authenticated-orcid":false,"given":"S.","family":"Tariq","sequence":"additional","affiliation":[{"name":"Institute for Global Health University College London London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2026,9,8]]},"reference":[{"key":"e_1_2_12_2_1","unstructured":"NHSEngland.ISOSS HIV report (for pregnancies between 1 April 2022\u201331 March 2023).2025https:\/\/www.gov.uk\/government\/publications\/isoss-hiv-report-for-pregnancies-between-1-april-2022-31-march-2023."},{"issue":"2","key":"e_1_2_12_3_1","doi-asserted-by":"crossref","first-page":"288","DOI":"10.1111\/ppe.12855","article-title":"Preconception exposures and adverse pregnancy, birth and postpartum outcomes: umbrella review of systematic reviews","volume":"36","author":"Daly M","year":"2022","journal-title":"Paediatr Perinat Epidemiol"},{"key":"e_1_2_12_4_1","doi-asserted-by":"crossref","first-page":"1830","DOI":"10.1016\/S0140-6736(18)30311-8","article-title":"Before the beginning: nutrition and lifestyle in the preconception period and its importance for future health","volume":"391","author":"Stephenson J","year":"2018","journal-title":"Lancet (London, England)"},{"key":"e_1_2_12_5_1","doi-asserted-by":"crossref","unstructured":"KhekadeH PotdukheA TaksandeAB WanjariMB YelneS.Preconception care: a strategic intervention for the prevention of neonatal and birth disorders.2023.","DOI":"10.7759\/cureus.41141"},{"issue":"6","key":"e_1_2_12_6_1","doi-asserted-by":"crossref","first-page":"S266","DOI":"10.1016\/j.ajog.2008.07.067","article-title":"The clinical content of preconception care: an overview and preparation of this supplement","volume":"199","author":"Jack BW","year":"2008","journal-title":"Am J Obstet Gynecol"},{"issue":"7","key":"e_1_2_12_7_1","doi-asserted-by":"crossref","first-page":"424","DOI":"10.31128\/AJGP-02-18-4485","article-title":"Preconception care","volume":"47","author":"Dorney E","year":"2018","journal-title":"Austr J Gen Pract"},{"key":"e_1_2_12_8_1","doi-asserted-by":"crossref","DOI":"10.1016\/j.eclinm.2022.101392","article-title":"Health conditions in adults with HIV compared with the general population: a population\u2010based cross\u2010sectional analysis","volume":"47","author":"Morales DR","year":"2022","journal-title":"EClinicalMedicine"},{"issue":"3","key":"e_1_2_12_9_1","doi-asserted-by":"crossref","first-page":"e145","DOI":"10.1016\/S2352-3018(23)00027-9","article-title":"Disproportionate disability in people with HIV","volume":"10","author":"Rajasuriar R","year":"2023","journal-title":"Lancet HIV"},{"key":"e_1_2_12_10_1","unstructured":"RaffeS SabinCA\u2010O GilleeceYA\u2010O.Comorbidities in women living with HIV: a systematic review.2022(1468\u20131293 (Electronic))."},{"key":"e_1_2_12_11_1","unstructured":"Trust SFTH.Women and HIV: Invisible No Longer.2018https:\/\/www.tht.org.uk\/about-us\/what-we-do\/our-campaigns\/past-campaigns\/women-and-hiv-invisible-no-longer."},{"issue":"3","key":"e_1_2_12_12_1","first-page":"S2","article-title":"British HIV Association guidelines for the management of HIV in pregnancy and postpartum 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