{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,12,24]],"date-time":"2025-12-24T04:43:37Z","timestamp":1766551417679},"reference-count":38,"publisher":"Hindawi Limited","issue":"2","license":[{"start":{"date-parts":[[2016,2,1]],"date-time":"2016-02-01T00:00:00Z","timestamp":1454284800000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1"},{"start":{"date-parts":[[2016,2,1]],"date-time":"2016-02-01T00:00:00Z","timestamp":1454284800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Health Soc Care Community"],"published-print":{"date-parts":[[2017,3]]},"DOI":"10.1111\/hsc.12325","type":"journal-article","created":{"date-parts":[[2016,2,1]],"date-time":"2016-02-01T08:44:56Z","timestamp":1454316296000},"page":"447-457","source":"Crossref","is-referenced-by-count":6,"title":["Assessing the needs of caregivers of children with disabilities in Penang, Malaysia"],"prefix":"10.1155","volume":"25","author":[{"given":"Seok Hong","family":"Tan","sequence":"first","affiliation":[{"name":"Postgraduate Unit; Department of Social and Preventive Medicine; Faculty of Medicine; University Malaya; Kuala Lumpur Malaysia"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"98","published-online":{"date-parts":[[2016,2,1]]},"reference":[{"key":"10.1111\/hsc.12325-BIB0001|hsc12325-cit-0001","doi-asserted-by":"crossref","first-page":"130","DOI":"10.1080\/02739615.2011.564568","article-title":"Determinants of needs of families of children and youth with cerebral palsy","volume":"40","author":"Almasri","year":"2011","journal-title":"Children's Health Care"},{"key":"10.1111\/hsc.12325-BIB0002|hsc12325-cit-0002","doi-asserted-by":"crossref","first-page":"117","DOI":"10.1177\/002246698802200113","article-title":"Assessing needs of families with handicapped infants","volume":"22","author":"Bailey","year":"1988","journal-title":"The Journal of Special Education"},{"key":"10.1111\/hsc.12325-BIB0003|hsc12325-cit-0003","doi-asserted-by":"crossref","first-page":"45","DOI":"10.1111\/j.1365-2788.2011.01408.x","article-title":"An initial look at the quality of life of Malaysian families that include children with disabilities","volume":"56","author":"Clark","year":"2012","journal-title":"Journal of Intellectual Disability Research"},{"key":"10.1111\/hsc.12325-BIB0004|hsc12325-cit-0004","doi-asserted-by":"crossref","first-page":"570","DOI":"10.1111\/j.1365-2788.2006.00825.x","article-title":"Supporting parents of youths with intellectual disabilities and psychopathology","volume":"50","author":"Douma","year":"2006","journal-title":"Journal of Intellectual Disability Research"},{"key":"10.1111\/hsc.12325-BIB0005|hsc12325-cit-0005","doi-asserted-by":"crossref","first-page":"355","DOI":"10.1093\/jpepsy\/jsh039","article-title":"Primary care supports for children with chronic health conditions: identifying and predicting unmet family needs","volume":"29","author":"Farmer","year":"2004","journal-title":"Journal of Paediatric Psychology"},{"key":"10.1111\/hsc.12325-BIB0006|hsc12325-cit-0006","doi-asserted-by":"crossref","first-page":"381","DOI":"10.1111\/j.1365-2214.2012.01398.x","article-title":"Caring for children with physical disability in Kenya: potential links between caregiving and carers\u2019 physical health","volume":"39","author":"Geere","year":"2013","journal-title":"Child: Care, Health and Development"},{"key":"10.1111\/hsc.12325-BIB0007|hsc12325-cit-0007","first-page":"62","article-title":"Effect of social support services on the emotional well-being of caregivers of children with cerebral palsy","volume":"54","author":"Gordon","year":"2012","journal-title":"Developmental Medicine and Child Neurology"},{"key":"10.1111\/hsc.12325-BIB0008|hsc12325-cit-0008","doi-asserted-by":"crossref","first-page":"932","DOI":"10.1016\/j.paid.2007.10.034","article-title":"Cultural differences in response styles: the role of dialectical thinking","volume":"44","author":"Hamamura","year":"2008","journal-title":"Personality and Individual Differences"},{"key":"10.1111\/hsc.12325-BIB0009|hsc12325-cit-0009","doi-asserted-by":"crossref","first-page":"506","DOI":"10.1191\/0269215500cr353oa","article-title":"Service needs of parents with motor or multiply disabled children in Dutch therapeutic toddler classes","volume":"14","author":"Hendriks","year":"2000","journal-title":"Clinical Rehabilitation"},{"key":"10.1111\/hsc.12325-BIB0010|hsc12325-cit-0010","doi-asserted-by":"crossref","first-page":"750","DOI":"10.1111\/j.1365-2214.2012.01409.x","article-title":"Development of an outcome measurement system for service planning for children and youth with special needs","volume":"39","author":"Kertoy","year":"2012","journal-title":"Child: Care, Health and Development"},{"key":"10.1111\/hsc.12325-BIB0011|hsc12325-cit-0011","doi-asserted-by":"crossref","first-page":"53","DOI":"10.1300\/J006v22n02_04","article-title":"A life needs model of pediatric service delivery: services to support community participation and quality of life for children and youth with disabilities","volume":"22","author":"King","year":"2002","journal-title":"Physical and Occupational Therapy in Pediatrics"},{"key":"10.1111\/hsc.12325-BIB0012|hsc12325-cit-0012","doi-asserted-by":"crossref","first-page":"664","DOI":"10.1016\/j.ridd.2010.01.005","article-title":"Development and validation of a questionnaire to measure the service needs of families with children with developmental disabilities","volume":"31","author":"Leung","year":"2010","journal-title":"Research in Developmental Disabilities"},{"key":"10.1111\/hsc.12325-BIB0013|hsc12325-cit-0013","doi-asserted-by":"crossref","first-page":"923","DOI":"10.1093\/oxfordjournals.aje.a116813","article-title":"Simulation study of confounder-selection strategies","volume":"138","author":"Maldonado","year":"1993","journal-title":"American Journal of Epidemiology"},{"key":"10.1111\/hsc.12325-BIB0014|hsc12325-cit-0014","doi-asserted-by":"crossref","first-page":"65","DOI":"10.1016\/j.ijnurstu.2006.08.007","article-title":"The impact on mothers of bringing up a child with intellectual disabilities: a cross-cultural study","volume":"45","author":"McConkey","year":"2006","journal-title":"International Journal of Nursing Studies"},{"key":"10.1111\/hsc.12325-BIB0015|hsc12325-cit-0015","doi-asserted-by":"crossref","first-page":"180","DOI":"10.1111\/j.1365-2214.2006.00644.x","article-title":"The health of caregivers for children with disabilities: caregiver perspectives","volume":"33","author":"Murphy","year":"2007","journal-title":"Child: Care, Health and Development"},{"key":"10.1111\/hsc.12325-BIB0016|hsc12325-cit-0016","doi-asserted-by":"crossref","first-page":"79","DOI":"10.1542\/peds.114.1.79","article-title":"Health services use and health care expenditures for children with disabilities","volume":"114","author":"Newacheck","year":"2004","journal-title":"Pediatrics"},{"key":"10.1111\/hsc.12325-BIB0017|hsc12325-cit-0017","doi-asserted-by":"crossref","first-page":"992","DOI":"10.1111\/j.1365-2788.2010.01324.x","article-title":"Predictors of parenting stress among Malaysian mothers of children with Down syndrome","volume":"54","author":"Norizan","year":"2010","journal-title":"Journal of Intellectual Disability Research"},{"key":"10.1111\/hsc.12325-BIB0018|hsc12325-cit-0018","doi-asserted-by":"crossref","first-page":"301","DOI":"10.1080\/02724936.1998.11747964","article-title":"Parenting stress among mothers of Malaysian children with cerebral palsy: predictors of child- and parent-related stress","volume":"18","author":"Ong","year":"1998","journal-title":"Annals of Tropical Paediatrics"},{"key":"10.1111\/hsc.12325-BIB0019|hsc12325-cit-0019","doi-asserted-by":"crossref","first-page":"358","DOI":"10.1046\/j.1440-1754.1999.00383.x","article-title":"Stress experienced by mothers of Malaysian children with mental retardation","volume":"35","author":"Ong","year":"1999","journal-title":"Journal of Paediatrics and Child Health"},{"key":"10.1111\/hsc.12325-BIB0020|hsc12325-cit-0020","doi-asserted-by":"crossref","first-page":"399","DOI":"10.1016\/j.socscimed.2011.10.035","article-title":"State-level income inequality and family burden of US families raising children with special health care needs","volume":"74","author":"Parish","year":"2012","journal-title":"Social Science & Medicine"},{"key":"10.1111\/hsc.12325-BIB0021|hsc12325-cit-0021","doi-asserted-by":"crossref","first-page":"38","DOI":"10.1111\/j.1468-3148.2009.00550.x","article-title":"Structural and functional aspects of social support for mothers of children with and without cognitive delays in Vietnam","volume":"23","author":"Park","year":"2009","journal-title":"Journal of Applied Research in Intellectual Disabilities"},{"key":"10.1111\/hsc.12325-BIB0022|hsc12325-cit-0022","doi-asserted-by":"crossref","first-page":"277","DOI":"10.1542\/peds.105.S2.277","article-title":"Shared vision: concordance among fathers, mothers, and pediatricians about unmet needs of children with chronic health conditions","volume":"105","author":"Perrin","year":"2000","journal-title":"Pediatrics"},{"key":"10.1111\/hsc.12325-BIB0023|hsc12325-cit-0023","doi-asserted-by":"crossref","first-page":"1534","DOI":"10.1016\/j.ridd.2014.03.047","article-title":"Psychometric validation of the Family Outcome Survey-Revised in Singapore","volume":"35","author":"Poon","year":"2014","journal-title":"Research in Developmental Disabilities"},{"key":"10.1111\/hsc.12325-BIB0024|hsc12325-cit-0024","volume-title":"Laws of Malaysia. Stat. Act 685","author":"PWD Act","year":"2008"},{"key":"10.1111\/hsc.12325-BIB0025|hsc12325-cit-0025","first-page":"63","article-title":"A preliminary study on the reliability of the Malay version of PedsQL Family Impact Module among caregivers of children with disabilities in Kelantan, Malaysia","volume":"18","author":"Rahman","year":"2011","journal-title":"The Malaysian Journal of Medical Sciences"},{"issue":"1","key":"10.1111\/hsc.12325-BIB0026|hsc12325-cit-0026","doi-asserted-by":"publisher","DOI":"10.1186\/1471-2431-4-1","article-title":"Caregiving process and caregiver burden: conceptual models to guide research and practice","volume":"4","author":"Raina","year":"2004","journal-title":"BMC Pediatrics"},{"key":"10.1111\/hsc.12325-BIB0027|hsc12325-cit-0027","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1111\/j.1365-2788.2011.01486.x","article-title":"The development of family quality of life concepts and measures","volume":"56","author":"Samuel","year":"2012","journal-title":"Journal of Intellectual Disability Research"},{"key":"10.1111\/hsc.12325-BIB0028|hsc12325-cit-0028","doi-asserted-by":"crossref","first-page":"68","DOI":"10.1016\/j.dhjo.2010.06.001","article-title":"A population-based assessment of the health, functional status, and consequent family impact among children with Down syndrome","volume":"4","author":"Schieve","year":"2011","journal-title":"Disability and Health Journal"},{"key":"10.1111\/hsc.12325-BIB0029|hsc12325-cit-0029","doi-asserted-by":"crossref","first-page":"374","DOI":"10.1016\/j.ambp.2007.04.007","article-title":"Cross-cultural development of a child health care questionnaire on satisfaction, utilization, and needs","volume":"7","author":"Schmidt","year":"2007","journal-title":"Ambulatory Pediatrics"},{"key":"10.1111\/hsc.12325-BIB0030|hsc12325-cit-0030","volume-title":"The ABILITIES Index","author":"Simeonsson","year":"1991"},{"key":"10.1111\/hsc.12325-BIB0031|hsc12325-cit-0031","first-page":"32","article-title":"Assessing the unmet needs among caregivers of children with disabilities at the community-based rehabilitation centres in Selangor","volume":"11","author":"Suriati","year":"2011","journal-title":"Malaysian Journal of Public Health Medicine"},{"key":"10.1111\/hsc.12325-BIB0032|hsc12325-cit-0032","doi-asserted-by":"crossref","first-page":"41","DOI":"10.1111\/j.1468-3156.2009.00561.x","article-title":"The time and effort in taking care for children with profound intellectual and multiple disabilities: a study on care load and support","volume":"38","author":"Tadema","year":"2009","journal-title":"British Journal of Learning Disabilities"},{"key":"10.1111\/hsc.12325-BIB0033|hsc12325-cit-0033","doi-asserted-by":"crossref","first-page":"414","DOI":"10.1016\/j.dhjo.2014.11.003","article-title":"Development and psychometric properties of a scale assessing the needs of caregivers of children with disabilities","volume":"8","author":"Tan","year":"2015","journal-title":"Disability and Health Journal"},{"key":"10.1111\/hsc.12325-BIB0034|hsc12325-cit-0034","doi-asserted-by":"crossref","first-page":"3596","DOI":"10.1016\/j.ridd.2013.07.024","article-title":"Validity and reliability of the Japanese version of the family needs survey","volume":"34","author":"Ueda","year":"2013","journal-title":"Research in Developmental Disabilities"},{"key":"10.1111\/hsc.12325-BIB0035|hsc12325-cit-0035","volume-title":"Children with Disabilities in Malaysia: Mapping the Policies, Programmes, Interventions and Stakeholders","author":"Unicef Malaysia","year":"2014"},{"key":"10.1111\/hsc.12325-BIB0036|hsc12325-cit-0036","doi-asserted-by":"crossref","first-page":"201","DOI":"10.1007\/s10995-005-0041-3","article-title":"Unmet need and problems accessing specialty medical and related services among children with special health care needs","volume":"10","author":"Warfield","year":"2006","journal-title":"Maternal and Child Health Journal"},{"key":"10.1111\/hsc.12325-BIB0037|hsc12325-cit-0037","doi-asserted-by":"crossref","first-page":"100","DOI":"10.1007\/s10995-010-0711-7","article-title":"The concurrent and longitudinal effects of child disability types and health on family experiences","volume":"16","author":"Wei","year":"2012","journal-title":"Maternal and Child Health Journal"},{"key":"10.1111\/hsc.12325-BIB0038|hsc12325-cit-0038","doi-asserted-by":"crossref","first-page":"306","DOI":"10.1016\/j.ridd.2010.10.003","article-title":"Investigation of raising burden of children with autism, physical disability and mental disability in China","volume":"32","author":"Xiong","year":"2011","journal-title":"Research in Developmental Disabilities"}],"container-title":["Health & Social Care in the Community"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1111%2Fhsc.12325","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1111%2Fhsc.12325","content-type":"unspecified","content-version":"vor","intended-application":"text-mining"},{"URL":"http:\/\/onlinelibrary.wiley.com\/wol1\/doi\/10.1111\/hsc.12325\/fullpdf","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,8,16]],"date-time":"2023-08-16T17:58:39Z","timestamp":1692208719000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/hsc.12325"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2016,2,1]]},"references-count":38,"journal-issue":{"issue":"2","published-print":{"date-parts":[[2017,3]]}},"URL":"https:\/\/doi.org\/10.1111\/hsc.12325","archive":["Portico"],"relation":{},"ISSN":["0966-0410"],"issn-type":[{"value":"0966-0410","type":"print"}],"subject":[],"published":{"date-parts":[[2016,2,1]]}}}