{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,30]],"date-time":"2026-07-30T18:58:29Z","timestamp":1785437909457,"version":"3.56.0"},"reference-count":26,"publisher":"Wiley","license":[{"start":{"date-parts":[[2026,7,30]],"date-time":"2026-07-30T00:00:00Z","timestamp":1785369600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"},{"start":{"date-parts":[[2026,7,30]],"date-time":"2026-07-30T00:00:00Z","timestamp":1785369600000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"funder":[{"DOI":"10.13039\/501100001801","name":"University of Western Australia","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100001801","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Internal Medicine Journal"],"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Acute rheumatic fever (ARF) and rheumatic heart disease (RHD) are prevalent among First Nations peoples in Australia. In Western Australia (WA), notification of ARF and RHD to the WA RHD register is mandatory and supports follow\u2010up care. However, previous studies from rural WA have reported incomplete notification, suggesting gaps in surveillance and hospital\u2010registry linkage.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Aims<\/jats:title>\n                    <jats:p>To identify hospital admissions coded as ARF and\/or RHD to northern WA's Pilbara region hospitals and validate their notification status to the WA RHD register.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>A retrospective review of admission records from 1 January 2016 to 31 August 2023 was conducted across Pilbara region hospitals. Admission records coded to ARF and RHD in the study period were obtained and underwent clinical validation. The main outcome measure was the number of confirmed ARF and RHD cases notified to the WA RHD register. This was determined by cross\u2010checking their notification status with the WA RHD register. Cases not previously recorded on the register were subsequently notified.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Of the 171 records coded to ARF and RHD, 55 ARF and 32 RHD cases were confirmed. Three previously unnotified ARF\/RHD cases were identified and notified to the WA RHD register, enabling appropriate follow\u2010up care.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>A significantly higher proportion of ARF\/RHD cases hospitalised in the Pilbara region were notified to the WA RHD register, compared to published data from other regions in rural WA. Record review improved case ascertainment and notification, underscoring the importance of strengthening hospital\u2010to\u2010registry links for surveillance accuracy, patient follow\u2010up and continuity of care.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/imj.70565","type":"journal-article","created":{"date-parts":[[2026,7,30]],"date-time":"2026-07-30T18:08:18Z","timestamp":1785434898000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Are hospitalised acute rheumatic fever and rheumatic heart disease cases notified to the Western Australian Register in the Pilbara region? A retrospective review, 2016\u20132023"],"prefix":"10.1111","author":[{"ORCID":"https:\/\/orcid.org\/0009-0001-1902-434X","authenticated-orcid":false,"given":"Aung","family":"Du","sequence":"first","affiliation":[{"name":"Sir Charles Gairdner Hospital  Perth Western Australia Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3032-6031","authenticated-orcid":false,"given":"Ingrid","family":"Stacey","sequence":"additional","affiliation":[{"name":"Cardiovascular Epidemiology Research Centre, School of Population and Global Health University of Western Australia  Perth Western Australia Australia"},{"name":"Cardiology Population Health Laboratory Victor Chang Cardiac Research Institute  Perth Western Australia Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Judith M.","family":"Katzenellenbogen","sequence":"additional","affiliation":[{"name":"Cardiovascular Epidemiology Research Centre, School of Population and Global Health University of Western Australia  Perth Western Australia Australia"},{"name":"Telethon Kids Institute  Perth Western Australia Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Pauline","family":"Glasson","sequence":"additional","affiliation":[{"name":"Pilbara Public Health Unit WA Country Health Service  South Hedland Western Australia Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sharon","family":"Lockyer","sequence":"additional","affiliation":[{"name":"WA Country Health Service  Karratha Western Australia Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Emma","family":"Corpus","sequence":"additional","affiliation":[{"name":"WA Country Health Service  Karratha Western Australia Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0031-0231","authenticated-orcid":false,"given":"Simon","family":"Slota\u2010Kan","sequence":"additional","affiliation":[{"name":"Pilbara Public Health Unit WA Country Health Service  South Hedland Western Australia Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2026,7,30]]},"reference":[{"key":"e_1_2_8_2_1","unstructured":"Government of Western Australia.WA rheumatic heart disease register.2025(cited 2025 Nov 8). Available from URL:https:\/\/www.health.wa.gov.au\/Articles\/U_Z\/WA-rheumatic-heart-disease-register"},{"key":"e_1_2_8_3_1","doi-asserted-by":"crossref","first-page":"493","DOI":"10.5694\/mja2.52477","article-title":"Notification of acute rheumatic fever and rheumatic heart disease in hospitalised people in the Midwest region of Western Australia, 2012\u20132022: retrospective administrative data analysis","volume":"221","author":"Stacey I","year":"2024","journal-title":"Med J Aust"},{"key":"e_1_2_8_4_1","doi-asserted-by":"crossref","DOI":"10.1016\/j.fnhli.2024.100040","article-title":"Ending rheumatic heart disease in aboriginal and Torres Strait Islander communities: a systematic review of prevention programs in Australia","volume":"3","author":"Cai Y","year":"2025","journal-title":"First Nations Health Wellbeing Lowitja J"},{"key":"e_1_2_8_5_1","doi-asserted-by":"crossref","DOI":"10.1161\/JAHA.120.016851","article-title":"Contemporary incidence and prevalence of rheumatic fever and rheumatic heart disease in Australia using linked data: the case for policy change","volume":"9","author":"Katzenellenbogen JM","year":"2020","journal-title":"J Am Heart Assoc"},{"key":"e_1_2_8_6_1","doi-asserted-by":"crossref","first-page":"220","DOI":"10.5694\/mja2.50851","article-title":"The 2020 Australian guideline for prevention, diagnosis and management of acute rheumatic fever and rheumatic heart disease","volume":"214","author":"Ralph AP","year":"2021","journal-title":"Med J Aust"},{"key":"e_1_2_8_7_1","unstructured":"Menzies School of Health Research (ARF\/RHD writing group).The 2025 Australian guideline for the prevention diagnosis and management of acute rheumatic fever and rheumatic heart disease (Edition 3.3).2025(cited 2026 Jan 15). Available from URL:https:\/\/rhdaustralia.org.au\/arf-rhd-guidelines\/"},{"key":"e_1_2_8_8_1","doi-asserted-by":"crossref","first-page":"2164","DOI":"10.1016\/S0140-6736(25)00185-0","article-title":"Acute rheumatic fever","volume":"405","author":"Hirani K","year":"2025","journal-title":"Lancet"},{"key":"e_1_2_8_9_1","doi-asserted-by":"crossref","first-page":"997","DOI":"10.2147\/CLEP.S224621","article-title":"The End Rheumatic Heart Disease in Australia Study of Epidemiology (ERASE) project: data sources, case ascertainment and cohort profile","volume":"11","author":"Katzenellenbogen JM","year":"2019","journal-title":"Clin Epidemiol"},{"key":"e_1_2_8_10_1","unstructured":"WA Primary Health Alliance.Pilbara needs assessment 2025\u20132027.2025(cited 2026 Jan 17). Available from URL:https:\/\/www.wapha.org.au\/service-providers\/health-planning\/needs-assessment\/"},{"key":"e_1_2_8_11_1","unstructured":"Government of Western Australia.WA country health service \u2013 health profiles and service plans.2022(cited 2026 Jan 17). Available from URL:https:\/\/www.wacountry.health.wa.gov.au\/About-us\/Publications\/Health-profiles-and-service-plans"},{"key":"e_1_2_8_12_1","unstructured":"Australian Government.Rural and remote health.2025(cited 2026 Jan 17). Available from URL:https:\/\/www.aihw.gov.au\/reports\/rural-remote-australians\/rural-and-remote-health"},{"key":"e_1_2_8_13_1","doi-asserted-by":"crossref","DOI":"10.1111\/ajr.70022","article-title":"Connections reduce rheumatic heart disease\u2010related mortality in Western Australia: a mixed methods study","volume":"33","author":"DeCourcy V","year":"2025","journal-title":"Aust J Rural Health"},{"key":"e_1_2_8_14_1","doi-asserted-by":"crossref","first-page":"38","DOI":"10.1111\/1753-6405.12240","article-title":"Acute rheumatic fever and rheumatic heart disease in the Kimberley: using hospitalisation data to find cases and describe trends","volume":"39","author":"Murdoch J","year":"2015","journal-title":"Aust N Z J Public Health"},{"key":"e_1_2_8_15_1","doi-asserted-by":"crossref","first-page":"5505","DOI":"10.3390\/ijerph17155505","article-title":"Case ascertainment on Australian registers for acute rheumatic fever and rheumatic heart disease","volume":"17","author":"Agenson T","year":"2020","journal-title":"Int J Environ Res Public Health"},{"key":"e_1_2_8_16_1","doi-asserted-by":"publisher","DOI":"10.1071\/AH24267"},{"key":"e_1_2_8_17_1","doi-asserted-by":"crossref","DOI":"10.1016\/j.anzjph.2023.100071","article-title":"The evidence that rheumatic heart disease control programs in Australia are making an impact","volume":"47","author":"Stacey I","year":"2023","journal-title":"Aust N Z J Public Health"},{"key":"e_1_2_8_18_1","doi-asserted-by":"crossref","first-page":"1025","DOI":"10.1136\/heartjnl-2022-322146","article-title":"Rheumatic heart disease mortality in indigenous and non\u2010indigenous Australians between 2013 and 2017","volume":"109","author":"Stacey I","year":"2023","journal-title":"Heart"},{"key":"e_1_2_8_19_1","unstructured":"NIAA.Framework for governance of indigenous data(cited 2026 May 7). Available from URL:https:\/\/www.niaa.gov.au\/resource-centre\/framework-governance-indigenous-data"},{"key":"e_1_2_8_20_1","unstructured":"Dedalus Australia and New Zealand.webPAS web patient administration system.2025(cited 2025 Dec 6). Available from URL:https:\/\/www.dedalus.com\/anz\/our-offer\/products\/web-patient-administration-system-webpas\/"},{"key":"e_1_2_8_21_1","unstructured":"Australian Government.Acute rheumatic fever and rheumatic heart disease in Australia.2025(cited 2025 Nov 8). Available from URL:https:\/\/www.aihw.gov.au\/reports\/indigenous-australians\/arf-rhd\/contents\/summary"},{"key":"e_1_2_8_22_1","doi-asserted-by":"crossref","DOI":"10.1161\/CIRCIMAGING.120.011790","article-title":"Single\u2010view echocardiography by nonexpert practitioners to detect rheumatic heart disease: a prospective study of diagnostic accuracy","volume":"14","author":"Francis JR","year":"2021","journal-title":"Circ Cardiovasc Imaging"},{"key":"e_1_2_8_23_1","doi-asserted-by":"crossref","first-page":"741","DOI":"10.1111\/jpc.16797","article-title":"Missed opportunities for preventing or diagnosing acute rheumatic fever: a retrospective cohort study of 20 young Australians diagnosed with rheumatic heart disease on screening echocardiography","volume":"61","author":"Rouhiainen O","year":"2025","journal-title":"J Paediatr Child Health"},{"key":"e_1_2_8_24_1","doi-asserted-by":"publisher","DOI":"10.1071\/AH23273\/233383"},{"key":"e_1_2_8_25_1","doi-asserted-by":"crossref","DOI":"10.3390\/ijerph17041347","article-title":"Voices behind the statistics: a systematic literature review of the lived experience of rheumatic heart disease","volume":"17","author":"Haynes E","year":"2020","journal-title":"Int J Environ Res Public Health"},{"key":"e_1_2_8_26_1","doi-asserted-by":"crossref","DOI":"10.1136\/bmjopen-2023-083467","article-title":"NEARER SCAN (LENO BESIK) evaluation of a task\u2010sharing echocardiographic active case finding programme for rheumatic heart disease in Australia and Timor\u2010Leste: protocol for a hybrid type II effectiveness\u2010implementation study","volume":"14","author":"Jones B","year":"2024","journal-title":"BMJ Open"},{"key":"e_1_2_8_27_1","doi-asserted-by":"crossref","first-page":"250","DOI":"10.1038\/s41569-023-00940-9","article-title":"2023 World Heart Federation guidelines for the echocardiographic diagnosis of rheumatic heart disease","volume":"21","author":"Rwebembera J","year":"2023","journal-title":"Nat Rev Cardiol"}],"container-title":["Internal Medicine Journal"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/imj.70565","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1111\/imj.70565","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/imj.70565","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,7,30]],"date-time":"2026-07-30T18:08:21Z","timestamp":1785434901000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/imj.70565"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,7,30]]},"references-count":26,"alternative-id":["10.1111\/imj.70565"],"URL":"https:\/\/doi.org\/10.1111\/imj.70565","archive":["Portico"],"relation":{},"ISSN":["1444-0903","1445-5994"],"issn-type":[{"value":"1444-0903","type":"print"},{"value":"1445-5994","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,7,30]]},"assertion":[{"value":"2026-03-30","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2026-06-19","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2026-07-30","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}],"article-number":"imj.70565"}}