{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,22]],"date-time":"2026-07-22T01:41:58Z","timestamp":1784684518675,"version":"3.55.0"},"reference-count":51,"publisher":"Wiley","issue":"1","license":[{"start":{"date-parts":[[2025,1,9]],"date-time":"2025-01-09T00:00:00Z","timestamp":1736380800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"},{"start":{"date-parts":[[2025,1,9]],"date-time":"2025-01-09T00:00:00Z","timestamp":1736380800000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Int J Mental Health Nurs"],"published-print":{"date-parts":[[2025,2]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:p>Health research authorities around the world are increasingly committed to embedding public involvement in health and social care research. However, such involvement in internationally published prison and forensic mental health research remains rare. It is therefore particularly important to understand how people are experiencing collaborative research in this field, barriers they may encounter and how these might be overcome. The aim of this review is to explore how academic, practitioner and lived\u2010experience researchers have experienced collaborating on prison and forensic mental health research since a previous review of the topic in 2016. A rapid review of literature was completed by searching three databases (MEDLINE, EMBASE and PsycINFO) between 2016 and July 2023 in addition to Google and Google Scholar searches and hand searching the reference lists of all screened\u2010in documents. We used Reflexive Thematic Analysis to review the screened\u2010in papers. We had lived\u2010experience involvement in this study, which is outlined in our Supporting Information. The database search returned 733 unique articles. Internet searches revealed 10 potentially relevant documents. 20 documents were eligible for inclusion; 15 journal articles, three book chapters, a whole book and a PhD thesis. In the analysis, four overarching themes were developed: the positive psychological impact on lived\u2010experience researchers; it is interpersonally, emotionally and practically challenging; facilitators of the collaborative research process; and positive impact of involvement on the research. Our findings build on the previous review by providing evidence that collaborating on research can have a positive psychological impact on people with lived experience in this setting. It also documents further challenges that are unique to the forensic setting. There was minimal reporting of the experiences of forensic mental health patients involved in research; most included documents focused the experiences of current or former prisoners. Further studies in the topic area are still needed, which utilise a research method to analyse the experiences of conducting collaborative research.<\/jats:p>","DOI":"10.1111\/inm.13483","type":"journal-article","created":{"date-parts":[[2025,1,9]],"date-time":"2025-01-09T06:48:54Z","timestamp":1736405334000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":2,"title":["Rapid Review of Literature Reporting the Experience of Patient and Public Involvement in Prison and Forensic Mental Health Research"],"prefix":"10.1111","volume":"34","author":[{"ORCID":"https:\/\/orcid.org\/0009-0002-7659-9884","authenticated-orcid":false,"given":"Rosie","family":"Rutherford","sequence":"first","affiliation":[{"name":"Norfolk and Suffolk NHS Foundation Trust  Norwich UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Susannah","family":"Pashley","sequence":"additional","affiliation":[{"name":"Norfolk and Suffolk NHS Foundation Trust  Norwich UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nicola","family":"Bowes","sequence":"additional","affiliation":[{"name":"Cardiff Metropolitan University  Cardiff UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Daniel","family":"Heggs","sequence":"additional","affiliation":[{"name":"Cardiff Metropolitan University  Cardiff UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0006-9589-5450","authenticated-orcid":false,"given":"Rosie","family":"Cornwell","sequence":"additional","affiliation":[{"name":"Norfolk and Suffolk NHS Foundation Trust  Norwich UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2025,1,9]]},"reference":[{"key":"e_1_2_12_2_1","doi-asserted-by":"publisher","DOI":"10.1080\/18387357.2019.1604070"},{"key":"e_1_2_12_3_1","doi-asserted-by":"publisher","DOI":"10.1186\/s13643\u2010016\u20100337\u2010y"},{"key":"e_1_2_12_4_1","unstructured":"Alred D.2018.\u201cService User Perspectives of Preparation for Living in the Community Following Discharge From a Secure Mental Health Unit\u2014Location Below.\u201dhttps:\/\/cris.brighton.ac.uk\/ws\/portalfiles\/portal\/4772396\/DJ_Alred_PhD_Thesis_2018.pdf."},{"key":"e_1_2_12_5_1","doi-asserted-by":"publisher","DOI":"10.1111\/hex.12590"},{"key":"e_1_2_12_6_1","volume-title":"Engaging Service Users in the Evaluation and Development of Forensic Mental Health Care Services: A Peer Reviewed Report to the Funders","author":"Banongo E.","year":"2006"},{"key":"e_1_2_12_7_1","doi-asserted-by":"publisher","DOI":"10.1186\/s40900\u2010020\u201000211\u20108"},{"key":"e_1_2_12_8_1","doi-asserted-by":"publisher","DOI":"10.1007\/978-3-319-69909-7_3470-2"},{"key":"e_1_2_12_9_1","doi-asserted-by":"publisher","DOI":"10.4324\/9781315725093-13"},{"key":"e_1_2_12_10_1","doi-asserted-by":"publisher","DOI":"10.1177\/1539449216669132"},{"issue":"2","key":"e_1_2_12_11_1","first-page":"146","article-title":"Medicine Inside: Prisons, Participatory Research, and Practising With Hope Behind Bars","volume":"63","author":"Leeuw S.","year":"2017","journal-title":"Canadian Family Physician Medecin de Famille Canadien"},{"key":"e_1_2_12_12_1","doi-asserted-by":"publisher","DOI":"10.1080\/14999013.2022.2080305"},{"key":"e_1_2_12_13_1","doi-asserted-by":"publisher","DOI":"10.1111\/scs.12958"},{"key":"e_1_2_12_14_1","doi-asserted-by":"publisher","DOI":"10.1080\/17449200902884021"},{"key":"e_1_2_12_15_1","volume-title":"Beyond our Expectation: A Report of the Experiences of Involving Service\u2010Users in Forensic Mental Health Research","author":"Faulkner A.","year":"2007"},{"key":"e_1_2_12_16_1","doi-asserted-by":"publisher","DOI":"10.1332\/174426415X14412037949967"},{"key":"e_1_2_12_17_1","doi-asserted-by":"publisher","DOI":"10.1108\/MHRJ\u201011\u20102019\u20100040"},{"key":"e_1_2_12_18_1","doi-asserted-by":"publisher","DOI":"10.1080\/14789940701470283"},{"key":"e_1_2_12_19_1","doi-asserted-by":"publisher","DOI":"10.1186\/s13643\u2010015\u20100125\u20100"},{"key":"e_1_2_12_20_1","doi-asserted-by":"publisher","DOI":"10.1080\/14999013.2020.1863524"},{"key":"e_1_2_12_21_1","volume-title":"Creating Knowledge, A Monopoly? 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