{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,3,8]],"date-time":"2026-03-08T22:11:30Z","timestamp":1773007890268,"version":"3.50.1"},"reference-count":28,"publisher":"Wiley","issue":"3","license":[{"start":{"date-parts":[[2025,7,17]],"date-time":"2025-07-17T00:00:00Z","timestamp":1752710400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"},{"start":{"date-parts":[[2025,7,17]],"date-time":"2025-07-17T00:00:00Z","timestamp":1752710400000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"funder":[{"DOI":"10.13039\/100004870","name":"Research Foundation of The City University of New York","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100004870","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["International Nursing Review"],"published-print":{"date-parts":[[2025,9]]},"abstract":"ABSTRACT<\/jats:title>\n \n Aims<\/jats:title>\n To assess home disaster preparedness levels of individuals with sickle cell disease to determine education and resource needs and inform policy. To evaluate the association between healthcare provider discussion of preparedness and level of preparedness.<\/jats:p>\n <\/jats:sec>\n \n Background<\/jats:title>\n Research demonstrates that extreme weather events and public health emergencies result in increased hospital visits for people with sickle cell disease, yet little is known about home disaster preparedness knowledge and actions of these individuals.<\/jats:p>\n <\/jats:sec>\n \n Methods<\/jats:title>\n \n Cross\u2010sectional study of US adults diagnosed with sickle cell disease. The independent variable was the healthcare provider discussion of household disaster preparedness. The dependent variable was the Household Emergency Preparedness Instrument's\n General Preparedness<\/jats:italic>\n score. Participants self\u2010reported their preparedness actions and disaster supplies through an online survey. Descriptive statistics were analyzed, along with a Welch\n t<\/jats:italic>\n test, to examine the associations between the study variables. This study was reported according to the STROBE checklist.\n <\/jats:p>\n <\/jats:sec>\n \n Results<\/jats:title>\n \n The average\n General Preparedness<\/jats:italic>\n score of this sample (\n N<\/jats:italic>\n = 32) indicated that the majority of participants were not considered well prepared for disasters. Higher scores were found among participants who had discussions with their healthcare providers about how to prepare for disasters.\n <\/jats:p>\n <\/jats:sec>\n \n Discussion<\/jats:title>\n \n The sample's average\n General Preparedness<\/jats:italic>\n score was higher than other patient populations assessed with this instrument, possibly due to routine discussions about medical emergency preparedness that individuals with sickle cell disease receive from healthcare providers.\n <\/jats:p>\n <\/jats:sec>\n \n Conclusion<\/jats:title>\n Home disaster preparedness levels should be improved to decrease disaster\u2010related morbidity and mortality.<\/jats:p>\n <\/jats:sec>\n \n Implications for Nursing Practice and Policy<\/jats:title>\n Nurses should develop or advocate for home disaster preparedness lessons, community interventions, and public policies to meet the unique needs of community members with sickle cell disease before, during, and after disasters.<\/jats:p>\n <\/jats:sec>","DOI":"10.1111\/inr.70067","type":"journal-article","created":{"date-parts":[[2025,7,18]],"date-time":"2025-07-18T05:54:52Z","timestamp":1752818092000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Empowering Nurses to Enhance Disaster Preparedness for Individuals With Sickle Cell Disease: A Cross\u2010Sectional Study"],"prefix":"10.1111","volume":"72","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-7155-7875","authenticated-orcid":false,"given":"Tara","family":"Heagele","sequence":"first","affiliation":[{"name":"Hunter\u2010Bellevue School of Nursing Hunter College of the City University of New York New York New York USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Brittany","family":"McCrary","sequence":"additional","affiliation":[{"name":"Hunter\u2010Bellevue School of Nursing Hunter College of the City University of New York New York New York USA"},{"name":"Center for Sickle Cell Disease Mount Sinai Hospital Medical Center New York New York USA"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2025,7,17]]},"reference":[{"key":"e_1_2_10_2_1","volume-title":"Meet Ready Girl","author":"City of New York","year":"2025"},{"key":"e_1_2_10_3_1","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0249453"},{"key":"e_1_2_10_4_1","volume-title":"Access and Functional Needs","author":"Federal Emergency Management Agency"},{"key":"e_1_2_10_5_1","doi-asserted-by":"publisher","DOI":"10.1016\/S2352\u20103026(23)00118\u20107"},{"key":"e_1_2_10_6_1","doi-asserted-by":"publisher","DOI":"10.1017\/dmp.2022.35"},{"key":"e_1_2_10_7_1","doi-asserted-by":"publisher","DOI":"10.24298\/hedn.2022\u20100009"},{"key":"e_1_2_10_8_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11524-025-00974-z"},{"key":"e_1_2_10_9_1","doi-asserted-by":"publisher","DOI":"10.1017\/dmp.2020.292"},{"key":"e_1_2_10_10_1","volume-title":"Climate Change 2023 Synthesis Report: Summary for Policymakers","author":"Intergovernmental Panel on Climate Change","year":"2023"},{"key":"e_1_2_10_11_1","doi-asserted-by":"publisher","DOI":"10.1353\/hpu.2007.0036"},{"key":"e_1_2_10_12_1","doi-asserted-by":"publisher","DOI":"10.1017\/dmp.2016.162"},{"key":"e_1_2_10_13_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10903\u2010020\u201001102\u20106"},{"key":"e_1_2_10_14_1","doi-asserted-by":"publisher","DOI":"10.1098\/rsos.171047"},{"key":"e_1_2_10_15_1","doi-asserted-by":"publisher","DOI":"10.1177\/0272684X18781792"},{"key":"e_1_2_10_16_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ypmed.2023.107473"},{"key":"e_1_2_10_17_1","doi-asserted-by":"publisher","DOI":"10.1097\/MD.0000000000000280"},{"key":"e_1_2_10_18_1","volume-title":"Evidence\u2010Based Practice in Nursing and Healthcare: A Guide to Best Practice","author":"Melnyk B. M.","year":"2022"},{"key":"e_1_2_10_19_1","doi-asserted-by":"publisher","DOI":"10.1097\/MD.0000000000037127"},{"key":"e_1_2_10_20_1","unstructured":"ResearchMatch.2025.Register Now: Thank You for Volunteering and Helping Advance Health for All. Available at:https:\/\/www.researchmatch.org\/account\/verify\/ (accessed 8 March 2025)."},{"key":"e_1_2_10_21_1","doi-asserted-by":"publisher","DOI":"10.3324\/haematol.2018.211391"},{"key":"e_1_2_10_22_1","unstructured":"Sickle Cell Disease Association of American Inc.2021a.This Is Who We Are: More Importantly This Is What We Do. About Us. Available at:https:\/\/www.sicklecelldisease.org\/wp\u2010content\/uploads\/2024\/10\/H\u20105567\u2010Who\u2010We\u2010Are\u2010What\u2010We\u2010Do\u2010Updates.pdf(accessed 8 March 2025)."},{"key":"e_1_2_10_23_1","article-title":"Recommendations for Coronavirus (COVID\u201019) Preparedness","author":"Sickle Cell Disease Association of American, Inc","year":"2021","journal-title":"COVID\u201019: New Health Alert for People with Sickle Cell Disease and Their Caregivers"},{"key":"e_1_2_10_24_1","doi-asserted-by":"publisher","DOI":"10.1182\/bloodadvances.2020003741"},{"key":"e_1_2_10_25_1","doi-asserted-by":"publisher","DOI":"10.3324\/haematol.2014.120030"},{"key":"e_1_2_10_26_1","volume-title":"Plan Ahead for Disasters","author":"U.S. Department of Homeland Security","year":"2025"},{"key":"e_1_2_10_27_1","doi-asserted-by":"publisher","DOI":"10.1159\/000355660"},{"key":"e_1_2_10_28_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2024\u2010066842"},{"key":"e_1_2_10_29_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11524\u2010018\u20100237\u20107"}],"container-title":["International Nursing Review"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/inr.70067","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1111\/inr.70067","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/inr.70067","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,3,8]],"date-time":"2026-03-08T20:07:40Z","timestamp":1773000460000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/inr.70067"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,7,17]]},"references-count":28,"journal-issue":{"issue":"3","published-print":{"date-parts":[[2025,9]]}},"alternative-id":["10.1111\/inr.70067"],"URL":"https:\/\/doi.org\/10.1111\/inr.70067","archive":["Portico"],"relation":{},"ISSN":["0020-8132","1466-7657"],"issn-type":[{"value":"0020-8132","type":"print"},{"value":"1466-7657","type":"electronic"}],"subject":[],"published":{"date-parts":[[2025,7,17]]},"assertion":[{"value":"2025-03-08","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2025-06-28","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2025-07-17","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}],"article-number":"e70067"}}