{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,18]],"date-time":"2026-06-18T19:53:36Z","timestamp":1781812416454,"version":"3.54.5"},"reference-count":29,"publisher":"Wiley","issue":"4","license":[{"start":{"date-parts":[[2026,4,1]],"date-time":"2026-04-01T00:00:00Z","timestamp":1775001600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"},{"start":{"date-parts":[[2026,4,1]],"date-time":"2026-04-01T00:00:00Z","timestamp":1775001600000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Int J Paed Dentistry"],"published-print":{"date-parts":[[2026,7]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Epidermolysis bullosa (EB) is a rare disorder characterized by recurrent blisters on the skin and oral mucosa, occurring spontaneously or after minor trauma.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Aim<\/jats:title>\n                    <jats:p>Evaluate the oral health status of children with EB and parents' perceptions of its impact on their child's and family's quality of life.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design<\/jats:title>\n                    <jats:p>\n                      A cross\u2010sectional study with age\u2010matched groups was conducted with 42 children (14 with EB and 28 without EB), aged 2\u201310\u2009years, along with their parents\/guardians. Participants were recruited from a reference center and a school clinic. Data demographic and socioeconomic were collected. Oral health\u2010related quality of life (OHRQoL) was measured using the Parental\u2010Caregiver Perceptions Questionnaire (P\u2010CPQ\u2014short form) and Family Impact Scale (FIS). Oral examination included evaluation of gingival condition, malocclusions, dental caries, and oral lesions. Statistical analysis included Chi\u2010square, Mann\u2013Whitney,\n                      <jats:italic>t<\/jats:italic>\n                      \u2010test, and Kruskal\u2013Wallis tests (\n                      <jats:italic>\u03b1<\/jats:italic>\n                      \u2009=\u20095%).\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      Children with EB had significantly higher gingival and plaque indices (\n                      <jats:italic>p<\/jats:italic>\n                      \u2009=\u20090.001;\n                      <jats:italic>p<\/jats:italic>\n                      \u2009&lt;\u20090.001). Parents reported worse OHRQoL for children with EB, especially in \u201coral symptoms\u201d and \u201cfunctional limitations\u201d (\n                      <jats:italic>p<\/jats:italic>\n                      \u2009&lt;\u20090.001). FIS scores were similar between groups (\n                      <jats:italic>p<\/jats:italic>\n                      \u2009&gt;\u20090.05). Oral lesions were significantly associated with poorer OHRQoL (\n                      <jats:italic>p<\/jats:italic>\n                      \u2009=\u20090.001).\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Oral lesions were responsible for impacts experienced in children's daily lives, with significant negative effects occurring through symptoms.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/ipd.70087","type":"journal-article","created":{"date-parts":[[2026,4,1]],"date-time":"2026-04-01T08:19:28Z","timestamp":1775031568000},"page":"530-539","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Perception of Parents Regarding Oral Health\u2010Related Quality of Life of Children With Epidermolysis Bullosa: A Cross\u2010Sectional Study"],"prefix":"10.1111","volume":"36","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-7185-8763","authenticated-orcid":false,"given":"Lara Ribeiro Feitosa","family":"Duailibe","sequence":"first","affiliation":[{"name":"Uniceuma, Programa de P\u00f3s\u2010Gradua\u00e7\u00e3o Em Odontologia  S\u00e3o Lu\u00eds Maranh\u00e3o Brazil"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3187-5972","authenticated-orcid":false,"given":"Alanna Barros","family":"de Arruda","sequence":"additional","affiliation":[{"name":"Uniceuma, Programa de P\u00f3s\u2010Gradua\u00e7\u00e3o Em Odontologia  S\u00e3o Lu\u00eds Maranh\u00e3o Brazil"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4159-4162","authenticated-orcid":false,"given":"Patrick Pereira","family":"Garcia","sequence":"additional","affiliation":[{"name":"Uniceuma, Programa de P\u00f3s\u2010Gradua\u00e7\u00e3o Em Odontologia  S\u00e3o Lu\u00eds Maranh\u00e3o Brazil"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9632-8304","authenticated-orcid":false,"given":"Cyrene Piazera Silva","family":"Costa","sequence":"additional","affiliation":[{"name":"Uniceuma, Programa de P\u00f3s\u2010Gradua\u00e7\u00e3o Em Odontologia  S\u00e3o Lu\u00eds Maranh\u00e3o Brazil"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7116-1547","authenticated-orcid":false,"given":"Meire Coelho","family":"Ferreira","sequence":"additional","affiliation":[{"name":"Uniceuma, Programa de P\u00f3s\u2010Gradua\u00e7\u00e3o Em Odontologia  S\u00e3o Lu\u00eds Maranh\u00e3o Brazil"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2026,4,1]]},"reference":[{"key":"e_1_2_12_2_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365\u20102133.2009.09306.x"},{"key":"e_1_2_12_3_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.abd.2021.09.010"},{"key":"e_1_2_12_4_1","unstructured":"Brasil. 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