{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,30]],"date-time":"2026-09-30T05:09:45Z","timestamp":1790744985579,"version":"4.1.0"},"reference-count":50,"publisher":"Wiley","issue":"2","license":[{"start":{"date-parts":[[2005,3,11]],"date-time":"2005-03-11T00:00:00Z","timestamp":1110499200000},"content-version":"vor","delay-in-days":10,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Nursing in Critical Care"],"published-print":{"date-parts":[[2005,3]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p>The aim of this study was to describe the lived experience of parents whose child had suffered from and survived severe meningococcal disease. A Heideggerian phenomenological approach was used within the study and data were collected from long focused interviews. In total, eight parents took part in the study; one was a woman recruited as a pilot interview and the other seven were recruited for the main study. The data were analysed using <jats:ext-link xmlns:xlink=\"http:\/\/www.w3.org\/1999\/xlink\" xlink:href=\"#b1\">Colaizzi's (1978<\/jats:ext-link>) method. Eleven themes emerged: (1) complications\/side effects; (2) emotional turmoil; (3) child's physical appearance; (4) family disruption; (5) fear of death; (6) loss of parenting role; (7) need for support and understanding; (8) need and value of communication, information and publicity; (9) parental intuition; (10) technological interventions and (11) the impact of care delivery. A review of the literature arising out of the data was undertaken, and a final synthesis statement as perceived by the parents was achieved. Living through this experience is perceived as a major emotional stressor, and although health professionals have some insight into the experience, they are largely na\u00efve to the enormity of the situation.<\/jats:p>","DOI":"10.1111\/j.1362-1017.2005.00080.x","type":"journal-article","created":{"date-parts":[[2005,3,11]],"date-time":"2005-03-11T16:27:26Z","timestamp":1110558446000},"page":"78-89","source":"Crossref","is-referenced-by-count":17,"title":["Parents\u2019 experiences of living through their child's suffering from and surviving severe meningococcal disease"],"prefix":"10.1111","volume":"10","author":[{"given":"Caroline","family":"Haines","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2005,3,11]]},"reference":[{"key":"e_1_2_10_2_1","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/17.3.359"},{"key":"e_1_2_10_3_1","doi-asserted-by":"crossref","first-page":"106","DOI":"10.4037\/ajcc2000.9.2.106","article-title":"State of the science of parental stress and family function in pediatric intensive care units","volume":"9","author":"Board R","year":"2000","journal-title":"American Journal of Critical Care"},{"key":"e_1_2_10_4_1","doi-asserted-by":"publisher","DOI":"10.1053\/jpdn.2003.38"},{"key":"e_1_2_10_5_1","volume-title":"Research Methods in Health.","author":"Bowling A.","year":"1997"},{"key":"e_1_2_10_6_1","doi-asserted-by":"publisher","DOI":"10.1046\/j.1365-2648.1997.00387_26_5.x"},{"key":"e_1_2_10_7_1","first-page":"187","article-title":"The parental stressor scale: paediatric intensive care unit","volume":"18","author":"Carter MC","year":"1989","journal-title":"Maternal-Child Nursing Journal"},{"key":"e_1_2_10_8_1","first-page":"180","article-title":"Parental environmental stress in paediatric intensive care units","volume":"4","author":"Carter MC","year":"1985","journal-title":"Applied Nursing Research"},{"key":"e_1_2_10_9_1","volume-title":"Advances in Child Health Nursing","author":"Casey A.","year":"1993"},{"key":"e_1_2_10_10_1","first-page":"48","volume-title":"Existential\u2010Phenomenological Alternatives for Psychology.","author":"Colaizzi P.","year":"1978"},{"key":"e_1_2_10_11_1","doi-asserted-by":"crossref","first-page":"517","DOI":"10.1016\/S0029-6465(22)02782-7","article-title":"Interventions related to family","volume":"27","author":"Craft MJ","year":"1992","journal-title":"The Nursing Clinics of North America"},{"key":"e_1_2_10_12_1","volume-title":"Critical Care Nursing of Infants and Children","author":"Curley MAQ","year":"1996"},{"key":"e_1_2_10_13_1","doi-asserted-by":"publisher","DOI":"10.1046\/j.1365-2648.2003.02855.x"},{"key":"e_1_2_10_14_1","first-page":"57","article-title":"Parental stress after the unexpected admission of a child to the intensive care unit","volume":"8","author":"Eberly TW","year":"1985","journal-title":"Critical Care Quarterly"},{"key":"e_1_2_10_15_1","first-page":"561","article-title":"The effect of a child's hospitalisation on the parental role","volume":"10","author":"Farrell M.","year":"1995","journal-title":"Professional Nurse"},{"key":"e_1_2_10_16_1","doi-asserted-by":"publisher","DOI":"10.1016\/0964-3397(92)90019-G"},{"key":"e_1_2_10_17_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0964-3397(99)80064-0"},{"key":"e_1_2_10_18_1","doi-asserted-by":"crossref","first-page":"559","DOI":"10.1016\/S0899-5885(18)30603-8","article-title":"Family functioning during a critical illness","volume":"4","author":"Graham\u2010McClowry S.","year":"1992","journal-title":"Critical Care Nursing Clinics of North America"},{"key":"e_1_2_10_19_1","volume-title":"Fourth Generation Evaluation.","author":"Guba EG","year":"1989"},{"key":"e_1_2_10_20_1","first-page":"87","article-title":"Use of a theoretical framework in paediatric intensive care to provide support for parent of children with severe meningococcal disease","volume":"5","author":"Haines C.","year":"2000","journal-title":"Nursing in Critical Care"},{"key":"e_1_2_10_21_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2648.1995.tb02533.x"},{"key":"e_1_2_10_22_1","volume-title":"Paediatric Intensive Care Nursing","author":"Haines C","year":"2000"},{"key":"e_1_2_10_23_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0964-3397(95)81252-0"},{"key":"e_1_2_10_24_1","volume-title":"The Basic Problems of Phenomenology.","author":"Heidegger M.","year":"1982"},{"key":"e_1_2_10_25_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0964-3397(96)80486-1"},{"key":"e_1_2_10_26_1","doi-asserted-by":"publisher","DOI":"10.1136\/jme.28.2.109"},{"key":"e_1_2_10_27_1","doi-asserted-by":"publisher","DOI":"10.1097\/00003465-199903000-00009"},{"key":"e_1_2_10_28_1","first-page":"276","article-title":"Parent stress associated with pediatric critical care nursing; 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