{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,3,25]],"date-time":"2026-03-25T07:50:11Z","timestamp":1774425011994,"version":"3.50.1"},"reference-count":12,"publisher":"Wiley","issue":"2","license":[{"start":{"date-parts":[[2006,5,31]],"date-time":"2006-05-31T00:00:00Z","timestamp":1149033600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Child"],"published-print":{"date-parts":[[2007,3]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p><jats:bold>Background\u2002<\/jats:bold> Treatment of childhood cancer occurs over a 2\u2010 to 3\u2010year period, with initial intense phases of chemotherapy followed by less severe treatment periods. From first diagnosis, families are encouraged by healthcare professionals (following government guidelines) to try to maintain a normal life. The aim of this paper is to contribute to our understanding of how \u2018normal\u2019 family life is <jats:italic>compromised<\/jats:italic> from the perspective of the families themselves during this period of extreme stress and concern for the health and well\u2010being of their child.<\/jats:p><jats:p><jats:bold>Methods\u2002<\/jats:bold> This study was longitudinal and involved a cross section of 32 mothers of children recently diagnosed with acute lymphoblastic leukaemia (ALL) currently participating in the Medical Research Council ALL\u201097 randomized control trial. Mothers were interviewed at three time points (3\u20134\u2003months post diagnosis, 15 and 27\u2003months) using a semi\u2010structured format with open\u2010ended questions. A qualitative methodology was employed to analyse interview data using Thematic analysis.<\/jats:p><jats:p><jats:bold>Results\u2002<\/jats:bold> Mothers reported understanding the importance of achieving normal life, but described how this was difficult to realize. At first interview, mothers were optimistic that they could achieve the \u2018normal life\u2019 as advised by healthcare workers. At 12 and 24\u2003months, although all mothers reported that life was not back to normal, there were differences in how they perceived this lack of normality. Whereas some families experienced frustration and disappointment, others had adjusted and managed to accept the new order.<\/jats:p><jats:p><jats:bold>Conclusions\u2002<\/jats:bold> Families felt encouraged on diagnosis to be told that despite the severity of the disease and treatment regime, a normal life was possible and should be pursued. Our findings indicate that over time, more concrete information is needed to guide parents through the treatment process in order to help them achieve this.<\/jats:p>","DOI":"10.1111\/j.1365-2214.2006.00638.x","type":"journal-article","created":{"date-parts":[[2006,5,31]],"date-time":"2006-05-31T10:30:12Z","timestamp":1149071412000},"page":"155-160","source":"Crossref","is-referenced-by-count":42,"title":["\u2018Building a new normality\u2019: mothers\u2019 experiences of caring for a child with acute lymphoblastic leukaemia"],"prefix":"10.1111","volume":"33","author":[{"given":"E. A.","family":"Earle","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"S. A.","family":"Clarke","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"C.","family":"Eiser","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"L.","family":"Sheppard","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2006,6,2]]},"reference":[{"key":"e_1_2_6_2_1","doi-asserted-by":"publisher","DOI":"10.1002\/mpo.2950200104"},{"key":"e_1_2_6_3_1","doi-asserted-by":"publisher","DOI":"10.1002\/pbc.20432"},{"key":"e_1_2_6_4_1","doi-asserted-by":"publisher","DOI":"10.1186\/1477-7525-3-29"},{"key":"e_1_2_6_5_1","doi-asserted-by":"publisher","DOI":"10.1080\/073993302760190083"},{"key":"e_1_2_6_6_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2648.1980.tb03188.x"},{"key":"e_1_2_6_7_1","doi-asserted-by":"publisher","DOI":"10.1046\/j.1365-2206.2001.00200.x"},{"key":"e_1_2_6_8_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2141.2005.05509.x"},{"key":"e_1_2_6_9_1","volume-title":"Nursing Research: Principles and Methods","author":"Polit D. 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R.","year":"2004"}],"container-title":["Child: Care, Health and Development"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1111%2Fj.1365-2214.2006.00638.x","content-type":"unspecified","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/j.1365-2214.2006.00638.x","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,10,13]],"date-time":"2023-10-13T20:14:21Z","timestamp":1697228061000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/j.1365-2214.2006.00638.x"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2006,6,2]]},"references-count":12,"journal-issue":{"issue":"2","published-print":{"date-parts":[[2007,3]]}},"alternative-id":["10.1111\/j.1365-2214.2006.00638.x"],"URL":"https:\/\/doi.org\/10.1111\/j.1365-2214.2006.00638.x","archive":["Portico"],"relation":{},"ISSN":["0305-1862","1365-2214"],"issn-type":[{"value":"0305-1862","type":"print"},{"value":"1365-2214","type":"electronic"}],"subject":[],"published":{"date-parts":[[2006,6,2]]}}}