{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2023,10,16]],"date-time":"2023-10-16T07:40:40Z","timestamp":1697442040406},"reference-count":17,"publisher":"Wiley","issue":"1","license":[{"start":{"date-parts":[[2011,6,9]],"date-time":"2011-06-09T00:00:00Z","timestamp":1307577600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Haemophilia"],"published-print":{"date-parts":[[2012,1]]},"abstract":"<jats:p><jats:bold>Summary.\u2002<\/jats:bold> Although new technologies and treatments have improved the quality of life of people with haemophilia, they still face many health and socio\u2010economic problems. We designed this study to identify some of these problems according to patients\u2019 attitudes towards efforts to solve them. This cross\u2010sectional study was conducted in Shiraz, southern Iran, during January and May 2010. The participants were 100 patients with haemophilia who were referred to Shiraz Hemophilia Center, a major referral centre in southern Iran. A questionnaire was used to obtain data on the attitudes of haemophilic patients about some of their health and socio\u2010economic problems. Mean age of the patients was 28.2\u2003\u00b1\u20039.0 (range of 16\u201367\u2003years). In univariate analysis, disease severity, joint involvement, HCV status, income level and educational level of the patients were found to have possible effect on patients\u2019 attitude towards their health and socio\u2010economic problems. However, in multivariate model we found that only income level, educational level and HCV status as independent factors influencing the patients\u2019 attitude towards childbearing, employment problems, occupational problems, social and friend relationship and continuing education. Haemophilic patients had many social and health problems, which could be alleviated with interdisciplinary interventions to improve their quality of life. Financial support of these patients should be taken into account to reduce their economic problems. Also, encouraging them and providing facilities to achieve a higher educational level could help them to have a better attitude towards their health and overcome the disease\u2010related problems.<\/jats:p>","DOI":"10.1111\/j.1365-2516.2011.02586.x","type":"journal-article","created":{"date-parts":[[2011,6,9]],"date-time":"2011-06-09T08:03:14Z","timestamp":1307606594000},"page":"122-128","source":"Crossref","is-referenced-by-count":7,"title":["Attitudes of haemophilic patients towards their health and socio\u2010economic problems in Iran"],"prefix":"10.1111","volume":"18","author":[{"given":"A.","family":"MEHRAMIRI","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"S.","family":"PARAND","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"S.","family":"HAGHPANAH","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"M.","family":"KARIMI","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2011,6,9]]},"reference":[{"key":"e_1_2_7_2_2","doi-asserted-by":"crossref","unstructured":"HednerU GinsburgD LusherJM HighKA.Congenital hemorrhagic disorders: new insights into the pathophysiology and treatment of hemophilia.Hematology Am Soc Hematol Educ Program2000;241\u201365.","DOI":"10.1182\/asheducation-2000.1.241"},{"key":"e_1_2_7_3_2","doi-asserted-by":"publisher","DOI":"10.1097\/01.NOR.0000315623.59385.2b"},{"key":"e_1_2_7_4_2","first-page":"846","article-title":"Hepatitis C and health\u2010related quality of life among patients with hemophilia","volume":"90","author":"Posthouwer D","year":"2005","journal-title":"Haematologica"},{"key":"e_1_2_7_5_2","first-page":"179","article-title":"Social condition of hemophiliacs","volume":"154","author":"Bjorner JB","year":"1992","journal-title":"Ugeskr Laeger"},{"key":"e_1_2_7_6_2","first-page":"273","article-title":"Reproduction in hemophilia","volume":"120","author":"Kasper CK","year":"1974","journal-title":"West J Med"},{"key":"e_1_2_7_7_2","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2516.2004.00927.x"},{"key":"e_1_2_7_8_2","unstructured":"General Governor Office of Province Office of Planning Assistant Statistic and Information\u2019s Office.Fars Province Iran: Fars Statistical Year Book 20072008."},{"key":"e_1_2_7_9_2","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2796.1990.tb00291.x"},{"key":"e_1_2_7_10_2","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.280.6224.1169"},{"key":"e_1_2_7_11_2","doi-asserted-by":"publisher","DOI":"10.1182\/blood-2007-07-102202"},{"key":"e_1_2_7_12_2","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2516.2007.01456.x"},{"key":"e_1_2_7_13_2","doi-asserted-by":"publisher","DOI":"10.1080\/088800100276505"},{"issue":"1","key":"e_1_2_7_14_2","first-page":"12","article-title":"Inherited coagulation disorders in southern Iran","volume":"1","author":"Karimi M","year":"2003","journal-title":"J Thromb Haemost"},{"key":"e_1_2_7_15_2","first-page":"211","article-title":"Hepatitis C infection in the general population of Iran: a systematic review","volume":"9","author":"Alavian SM","year":"2009","journal-title":"Hepatitis Monthly"},{"key":"e_1_2_7_16_2","doi-asserted-by":"publisher","DOI":"10.17305\/bjbms.2009.2777"},{"key":"e_1_2_7_17_2","first-page":"162","article-title":"Epidemiology of hepatitis C in Iran and world","volume":"10","author":"Alavian SM","year":"2009","journal-title":"SE Med J"},{"key":"e_1_2_7_18_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.addbeh.2006.03.040"}],"container-title":["Haemophilia"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1111%2Fj.1365-2516.2011.02586.x","content-type":"unspecified","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/j.1365-2516.2011.02586.x","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,10,15]],"date-time":"2023-10-15T11:22:39Z","timestamp":1697368959000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/j.1365-2516.2011.02586.x"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2011,6,9]]},"references-count":17,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2012,1]]}},"alternative-id":["10.1111\/j.1365-2516.2011.02586.x"],"URL":"https:\/\/doi.org\/10.1111\/j.1365-2516.2011.02586.x","archive":["Portico"],"relation":{},"ISSN":["1351-8216","1365-2516"],"issn-type":[{"value":"1351-8216","type":"print"},{"value":"1365-2516","type":"electronic"}],"subject":[],"published":{"date-parts":[[2011,6,9]]}}}