{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,18]],"date-time":"2026-10-18T04:26:16Z","timestamp":1792297576725,"version":"4.4.0"},"reference-count":37,"publisher":"Wiley","issue":"1","license":[{"start":{"date-parts":[[2004,12,20]],"date-time":"2004-12-20T00:00:00Z","timestamp":1103500800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Journal of Advanced Nursing"],"published-print":{"date-parts":[[2005,1]]},"abstract":"<jats:p><jats:bold>Aim.\u2002<\/jats:bold> This paper reports a study whose aim was to assess the quality of care in ostomy patients seen from a patient perspective.<\/jats:p><jats:p><jats:bold>Background.\u2002<\/jats:bold> A stoma operation causes profound changes in a patient's life because of resulting physical damage, disfigurement, loss of bodily function, and change in personal hygiene. Such changes are a cause of major concern for patients and raise important issue for the quality of care.<\/jats:p><jats:p><jats:bold>Methods.\u2002<\/jats:bold> The study group comprised patients who had undergone a colostomy for rectal cancer or an ileostomy for ulcerative colitis, all attending a stoma outpatient clinic. Quality of care was assessed using the identity\u2010oriented dimension of the validated questionnaire \u2018Quality of Care from the Patient's Perspective\u2019. Forty\u2010two ileostomy and 49 colostomy patients completed the questionnaire.<\/jats:p><jats:p><jats:bold>Result.\u2002<\/jats:bold> While the vast majority of patients in both groups thought that most topics in the questionnaire were important, most rated many aspects of their quality of care as unsatisfactory. One\u2010third of the colostomy patients and one\u2010half of the ileostomy patients were dissatisfied with the information they received about the results of medical examinations and laboratory tests, and an even higher proportion was dissatisfied with their opportunities to participate in the decision\u2010making process or to discuss sexual matters. Stoma\u2010related complications, which occurred in 71% of the ileostomy patients and in 43% of the colostomy patients, had no impact on these results.<\/jats:p><jats:p><jats:bold>Conclusion.\u2002<\/jats:bold> Information and counselling for patients having ostomies, both on the part of specialist nurses and colorectal surgeons, appeared to deficient, suggesting that standards for quality of care require continuous evaluation and revision.<\/jats:p>","DOI":"10.1111\/j.1365-2648.2004.03263.x","type":"journal-article","created":{"date-parts":[[2004,12,20]],"date-time":"2004-12-20T15:27:59Z","timestamp":1103556479000},"page":"51-58","source":"Crossref","is-referenced-by-count":76,"title":["Ostomy patients\u2019 perceptions of quality of care"],"prefix":"10.1111","volume":"49","author":[{"given":"Eva","family":"Persson","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Bengt","family":"Gustavsson","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anna\u2010Lena","family":"Hellstr\u00f6m","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"George","family":"Lappas","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Leif","family":"Hult\u00e9n","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2004,12,20]]},"reference":[{"key":"e_1_2_20_2_1","volume-title":"Nordic Standard for Preoperative Stoma Care, Nordn\u00e4s","author":"Alstad B.","year":"1997"},{"key":"e_1_2_20_3_1","doi-asserted-by":"publisher","DOI":"10.1007\/BF01857702"},{"key":"e_1_2_20_4_1","first-page":"185","article-title":"The lived experience of having an ileoanal reservoir: a phenomenologic study","volume":"26","author":"Bietz J.","year":"1999","journal-title":"Journal of Wound Ostomy Continence Nursing"},{"key":"e_1_2_20_5_1","volume-title":"Practical Stoma Wound and Continence Management","author":"Blackely P.","year":"1998"},{"key":"e_1_2_20_6_1","first-page":"250","article-title":"The psychosexual needs of a stoma patients","volume":"12","author":"Borwell B.","year":"1997","journal-title":"Professional Nurse"},{"key":"e_1_2_20_7_1","doi-asserted-by":"publisher","DOI":"10.12968\/bjon.2001.10.3.5380"},{"issue":"1","key":"e_1_2_20_8_1","first-page":"23","article-title":"An audit to examine patient views on CNS\u2010led stoma\u2010care services","volume":"17","author":"Coleman V.","year":"2001","journal-title":"Professional Nurse"},{"key":"e_1_2_20_9_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2648.1991.tb01495.x"},{"key":"e_1_2_20_10_1","doi-asserted-by":"publisher","DOI":"10.1093\/intqhc\/1.1.3"},{"key":"e_1_2_20_11_1","doi-asserted-by":"publisher","DOI":"10.1891\/1061-3749.3.1.59"},{"key":"e_1_2_20_12_1","first-page":"122","article-title":"A survey of patient perception of quality of care","volume":"18","author":"Erwin\u2010Toth P.","year":"1991","journal-title":"Journal of ET Nursing"},{"key":"e_1_2_20_13_1","doi-asserted-by":"publisher","DOI":"10.1097\/00152192-200101000-00007"},{"key":"e_1_2_20_14_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0749-2081(95)80042-5"},{"key":"e_1_2_20_15_1","first-page":"153","article-title":"An insight into patient satisfaction. 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