{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,2,7]],"date-time":"2026-02-07T15:27:27Z","timestamp":1770478047528,"version":"3.49.0"},"reference-count":60,"publisher":"Wiley","issue":"5","license":[{"start":{"date-parts":[[2004,6,8]],"date-time":"2004-06-08T00:00:00Z","timestamp":1086652800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Journal of Clinical Nursing"],"published-print":{"date-parts":[[2004,7]]},"abstract":"<jats:p><jats:bold>Background.\u2002<\/jats:bold> Cerebrospinal fluid circulation disorders are complex and multifaceted conditions making reliable assessment of progress problematic.<\/jats:p><jats:p><jats:bold>Aims and objectives.\u2002<\/jats:bold> It is the aim of this paper to explore how efficient measures of quality of life and hope might be used to assess clinical progress for patients with disorders of cerebrospinal fluid circulation. It will be argued that a single\u2010item 10\u2010point quality of life scale and the Herth Hope Index are as effective at measuring progress as the more widely used, but considerably more complex, Short\u2010Form 36.<\/jats:p><jats:p><jats:bold>Design.\u2002<\/jats:bold> Patients attending a cerebrospinal fluid clinic were sent a questionnaire containing the three measures of progress. Questionnaires were returned in a stamp\u2010addressed envelope to allow initial analysis before the clinic appointment and to enable discussion of results during the clinic appointment. Patients were also assessed using the Mini\u2010Mental State Examination during the clinic appointment.<\/jats:p><jats:p><jats:bold>Methods.\u2002<\/jats:bold> The relationship between the three measures of progress was calculated using Spearman's rank order correlation. Correlations of 0.40\u20130.70 are considered modest and correlations of 0.70 are considered strong; 5% levels of significance are considered significant and 1% levels are highly significant. Internal consistency of the Short\u2010Form 36 was assessed using Cronbach's alpha coefficient. Reliability was considered acceptable for dimension comparisons when <jats:italic>\u03b1<\/jats:italic>\u2003&gt;\u20030.70.<\/jats:p><jats:p><jats:bold>Results.\u2002<\/jats:bold> All patients were diagnosed with benign intracranial hypertension (<jats:italic>n<\/jats:italic>\u2003=\u200374), congenital hydrocephalus (<jats:italic>n<\/jats:italic>\u2003=\u200335) or normal pressure hydrocephalus (<jats:italic>n<\/jats:italic>\u2003=\u2003171). There was a modest to strong correlation between the quality of life\u201010 and all eight dimensions of the Short\u2010Form 36 for benign intracranial hypertension and congenital hydrocephalus patients. A slightly weaker correlation was demonstrated in seven of the eight Short\u2010Form 36 dimensions for normal pressure hydrocephalus patients. Normal pressure hydrocephalus patients scored significantly lower on the Mini\u2010Mental State Examination, which may contribute to explaining the weaker correlation between the three measures and the weaker internal consistency between the dimensions with the Short\u2010Form 36.<\/jats:p><jats:p><jats:bold>Conclusions.\u2002<\/jats:bold> This paper demonstrates that efficient indicators of progress (quality of life\u201010 and Herth Hope Index) can be as effective at assessing clinical progress as more complex indicators (Short\u2010Form 36) in patients who do not demonstrate cognitive deficit.<\/jats:p><jats:p><jats:bold>Relevance to clinical practice.\u2002<\/jats:bold> For clinical application, the Short\u2010Form 36 is too long, difficult to complete, score and analyse for these patient groups. Quality of life\u201010 and Herth Hope Index could provide efficient and effective measures of clinical progress but this requires further psychometric examination.<\/jats:p>","DOI":"10.1111\/j.1365-2702.2004.00910.x","type":"journal-article","created":{"date-parts":[[2004,12,26]],"date-time":"2004-12-26T20:52:46Z","timestamp":1104094366000},"page":"589-600","source":"Crossref","is-referenced-by-count":18,"title":["CSF circulation disorders: measuring progress in patients through quality of life and hope"],"prefix":"10.1111","volume":"13","author":[{"given":"Leslie","family":"Gelling","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Joanna","family":"Iddon","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Andrew","family":"McVicar","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"John 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