{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,24]],"date-time":"2026-09-24T13:12:43Z","timestamp":1790255563559,"version":"4.1.0"},"reference-count":56,"publisher":"Wiley","issue":"10","license":[{"start":{"date-parts":[[2008,7,4]],"date-time":"2008-07-04T00:00:00Z","timestamp":1215129600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Journal of Clinical Nursing"],"published-print":{"date-parts":[[2009,5]]},"abstract":"<jats:p><jats:bold>Aims.\u2002<\/jats:bold> This paper presents the results of a systematic review examining the practical information needs of informal caregivers providing home\u2010based palliative and end\u2010of\u2010life care to people with advanced cancer.<\/jats:p><jats:p><jats:bold>Background.\u2002<\/jats:bold> Modern hospice care has led to increases in home\u2010based palliative care services, with informal caregivers assuming responsibility for the majority of care. In response, health policy emphasises the provision of palliative care services in which both the patient and carer receive adequate support throughout illness and death. While the emotional needs of carers have been extensively researched, their practical needs with respect to the provision of physical care are yet to receive systematic attention.<\/jats:p><jats:p><jats:bold>Design.\u2002<\/jats:bold> Systematic review.<\/jats:p><jats:p><jats:bold>Methods.\u2002<\/jats:bold> Eligible articles were identified via electronic searches of research and evidence\u2010based databases, hand\u2010searching of academic journals and searches of non\u2010academic grey literature websites. Quality of research was assessed via accepted guidelines for reviewing non\u2010randomised, observational and qualitative literature. Data were synthesised by comparing and contrasting the findings to identify prominent themes.<\/jats:p><jats:p><jats:bold>Results.\u2002<\/jats:bold> Research consistently highlights this lack of practical support, often related to inadequate information exchange. These deficits typically manifest in relatives adopting a \u2018trial and error\u2019 approach to palliative care. Informal carers request a greater quantity of practically\u2010focussed information, improvements in quality and increased methods of dissemination.<\/jats:p><jats:p><jats:bold>Conclusion.\u2002<\/jats:bold> Synthesis of the literature suggests that home\u2010based palliative care services have been insufficiently focussed on assisting informal caregivers acquire practical nursing skills.<\/jats:p><jats:p><jats:bold>Relevance to clinical practice.\u2002<\/jats:bold> Enhanced access to professional advice represents a potentially effective method of increasing carers\u2019 confidence in their ability to undertake practical aspects of home\u2010based care. Evidence suggests that nurses and other health providers may better assist home\u2010based carers by providing the information and skills\u2010training necessary to facilitate this. This may necessitate the involvement of carers in the design and testing of new educational interventions.<\/jats:p>","DOI":"10.1111\/j.1365-2702.2008.02405.x","type":"journal-article","created":{"date-parts":[[2008,7,6]],"date-time":"2008-07-06T00:51:42Z","timestamp":1215305502000},"page":"1379-1393","source":"Crossref","is-referenced-by-count":253,"title":["A systematic review of informal caregivers\u2019 needs in providing home\u2010based end\u2010of\u2010life care to people with cancer"],"prefix":"10.1111","volume":"18","author":[{"given":"Penny E","family":"Bee","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Pamela","family":"Barnes","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Karen 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