{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,11,12]],"date-time":"2026-11-12T07:41:40Z","timestamp":1794469300134,"version":"4.9.1"},"reference-count":61,"publisher":"Wiley","issue":"12","license":[{"start":{"date-parts":[[2009,2,12]],"date-time":"2009-02-12T00:00:00Z","timestamp":1234396800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Journal of Clinical Nursing"],"published-print":{"date-parts":[[2009,6]]},"abstract":"<jats:p><jats:bold>Aims.\u2002<\/jats:bold> To describe patients\u2019 experiences of living with Dupuytren\u2019s disease.<\/jats:p><jats:p><jats:bold>Background.\u2002<\/jats:bold> Dupuytren\u2019s disease is a chronic, progressive deformity of the hand which limits active extension of the fingers due to advancing and irreversible flexion deformity. It is estimated that two million people are affected by the condition in the UK. Nurses may frequently encounter patients with this condition in a wide range of settings. However, the disease is neglected in the nursing literature and little is known about patients\u2019 experience of living with the condition.<\/jats:p><jats:p><jats:bold>Design.\u2002<\/jats:bold> A phenomenological approach, using Coliazzi\u2019s method, was employed.<\/jats:p><jats:p><jats:bold>Method.\u2002<\/jats:bold> Semi\u2010structured interviews were conducted with six men and one woman diagnosed with Dupuytren\u2019s disease.<\/jats:p><jats:p><jats:bold>Results.\u2002<\/jats:bold> Four interlinking themes emerged. Theme 1: Awareness of Dupuytren\u2019s disease describes participants\u2019 experiences of recognising and acknowledging the disease, which often did not occur until functional ability was restricted. Theme 2: Living with Dupuytren\u2019s disease describes how patients coped with the disease and adapted their activities to maintain independence. Theme 3: Deciding on treatment illuminates how patients decided on treatment and highlights a lack of information and support from health professionals. Theme 4: Receiving treatment articulates participants\u2019 experience of surgical treatment and post surgical rehabilitation.<\/jats:p><jats:p><jats:bold>Conclusions.\u2002<\/jats:bold> The findings revealed that people living with Dupuytren\u2019s disease receive little information about their condition and possible treatment from health professionals yet high quality and accurate information is required for patients to understand their condition and the treatment options available.<\/jats:p><jats:p><jats:bold>Relevance to clinical practice.\u2002<\/jats:bold> People with Dupuytren\u2019s disease do not always recognise their condition until it has significantly progressed. Following diagnosis they need accurate and up\u2010to\u2010date information about their condition and treatment options. Nurses have an important role to play in raising awareness of the disease, educating patients about its features and progression and enabling them to become active partners in decisions about treatment.<\/jats:p>","DOI":"10.1111\/j.1365-2702.2008.02692.x","type":"journal-article","created":{"date-parts":[[2009,5,11]],"date-time":"2009-05-11T15:28:54Z","timestamp":1242055734000},"page":"1793-1802","source":"Crossref","is-referenced-by-count":45,"title":["The lived experience of Dupuytren\u2019s disease of the hand"],"prefix":"10.1111","volume":"18","author":[{"given":"Anna L","family":"Pratt","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Geraldine","family":"Byrne","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2009,5,15]]},"reference":[{"key":"e_1_2_9_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/0363-5023(92)90413-J"},{"key":"e_1_2_9_3_1","doi-asserted-by":"publisher","DOI":"10.1177\/030802269105400111"},{"key":"e_1_2_9_4_1","first-page":"53","volume-title":"Rehabilitation of the Hand: Surgery and Therapy","author":"Aulicino PL","year":"1995"},{"key":"e_1_2_9_5_1","doi-asserted-by":"crossref","first-page":"73","DOI":"10.1177\/175899830100600301","article-title":"Dupuytren\u2019s disease: an overview of aetiology, pathology and treatment","volume":"6","author":"Azad SM","year":"2001","journal-title":"British Journal of Hand Therapy"},{"key":"e_1_2_9_6_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2648.1992.tb01859.x"},{"key":"e_1_2_9_7_1","doi-asserted-by":"crossref","first-page":"76","DOI":"10.1177\/175899830200700302","article-title":"The use of splinting as a non\u2010surgical treatment for Dupuytren\u2019s disease: a pilot study","volume":"7","author":"Ball C","year":"2002","journal-title":"British Journal of Hand Therapy"},{"key":"e_1_2_9_8_1","doi-asserted-by":"publisher","DOI":"10.1097\/00006199-199205000-00008"},{"key":"e_1_2_9_9_1","volume-title":"The Hand: Fundamentals of Therapy","author":"Boscheinen\u2010Morrin J","year":"2000"},{"key":"e_1_2_9_10_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jhsb.2003.08.002"},{"key":"e_1_2_9_11_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2702.1997.tb00304.x"},{"key":"e_1_2_9_12_1","doi-asserted-by":"publisher","DOI":"10.1046\/j.1365-2648.1998.00542.x"},{"key":"e_1_2_9_13_1","doi-asserted-by":"publisher","DOI":"10.5014\/ajot.58.2.128"},{"key":"e_1_2_9_14_1","first-page":"48","volume-title":"Existential Phenomenological Alternatives for Psychology","author":"Colaizzi PF","year":"1978"},{"key":"e_1_2_9_15_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.331.7526.1199"},{"key":"e_1_2_9_16_1","first-page":"53","volume-title":"Qualitative Inquiry and Research Design","author":"Creswell J","year":"1998"},{"key":"e_1_2_9_17_1","volume-title":"The NHS Plan","author":"Department of Health","year":"2002"},{"key":"e_1_2_9_18_1","volume-title":"The NHS Improvement Plan: Putting People at the Heart of Public Services","author":"Department of Health","year":"2004"},{"key":"e_1_2_9_19_1","volume-title":"Creating a Patient\u2010led NHS","author":"Department of Health","year":"2005"},{"key":"e_1_2_9_20_1","volume-title":"The National Service Framework for long\u2010term Conditions","author":"Department of Health","year":"2005"},{"key":"e_1_2_9_21_1","volume-title":"Creative Interviewing","author":"Douglas JD","year":"1985"},{"key":"e_1_2_9_22_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jhsa.2004.05.005"},{"key":"e_1_2_9_23_1","first-page":"593","article-title":"What\u2019s new in the treatment of Dupuytren\u2019s disease?","volume":"43","author":"Foucher G","year":"1998","journal-title":"Annales de Chirurgie Plastique Esth\u00e9tique"},{"key":"e_1_2_9_24_1","doi-asserted-by":"publisher","DOI":"10.1097\/00130911-200109000-00007"},{"key":"e_1_2_9_25_1","volume-title":"Philosophical Hermeneutics","author":"Gadamer HG","year":"1976"},{"key":"e_1_2_9_26_1","doi-asserted-by":"publisher","DOI":"10.1177\/175899830100600304"},{"key":"e_1_2_9_27_1","first-page":"291","article-title":"Epidemiology of Dupuytren\u2019s disease: clinical, serological and social assessment. 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