{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,1,22]],"date-time":"2026-01-22T13:05:01Z","timestamp":1769087101902,"version":"3.49.0"},"reference-count":24,"publisher":"Wiley","issue":"3-4","license":[{"start":{"date-parts":[[2012,12,13]],"date-time":"2012-12-13T00:00:00Z","timestamp":1355356800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Journal of Clinical Nursing"],"published-print":{"date-parts":[[2013,2]]},"abstract":"<jats:sec><jats:title>Aims and objectives<\/jats:title><jats:p>To describe the self\u2010reported life situation of users totally dependent on home mechanical ventilation (HMV) after tracheotomy and to identify factors associated with user satisfaction.<\/jats:p><\/jats:sec><jats:sec><jats:title>Background<\/jats:title><jats:p><jats:styled-content style=\"fixed-case\">HMV<\/jats:styled-content> users are a small but growing group in society and among the most vulnerable individuals with chronic disabilities. The participants in the present study belong to an even more susceptible minority of this group, as they require round the clock ventilation at home through a tracheostomy, implying the need for continuous care. Their testimonies are important for the generation of new knowledge.<\/jats:p><\/jats:sec><jats:sec><jats:title>Design<\/jats:title><jats:p>A qualitative design using interviews.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Individual interviews were conducted with six participants and analysed by qualitative content analysis.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>The main theme that emerged different individual needs require a range of approaches was based on three sub\u2010themes: (1) Tailored information (2) Sensitivity in decision\u2010making and (3) Building trust and confidence. Information was perceived as crucial and participants described different experiences of receiving optimal information to not receiving information at all. Successful collaboration was perceived when the user was given the opportunity to participate in decision\u2010making about her\/his treatment and care, where to live and how to organise daily life. Trust and confidence in the caregivers were important.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>The participants highlighted the need for strategies to improve satisfaction. Their experiences varied depending on age, where they lived, who they encountered in the healthcare system and the level of family support. Our findings suggest that patients who perceive themselves as well informed at an early stage are more satisfied with treatment, decisions about their tracheotomy and their life situation.<\/jats:p><\/jats:sec><jats:sec><jats:title>Relevance to clinical practice<\/jats:title><jats:p>There is a lack of knowledge among healthcare providers, thus tailored, high competence and guidelines are required.<\/jats:p><\/jats:sec>","DOI":"10.1111\/j.1365-2702.2012.04304.x","type":"journal-article","created":{"date-parts":[[2012,12,13]],"date-time":"2012-12-13T23:00:29Z","timestamp":1355439629000},"page":"331-338","source":"Crossref","is-referenced-by-count":18,"title":["Factors that influence user satisfaction: tracheotomised home mechanical ventilation users\u2019 experiences"],"prefix":"10.1111","volume":"22","author":[{"given":"Dagrunn N","family":"Dyrstad","sequence":"first","affiliation":[{"name":"Department of Health Studies Faculty of Social Sciences University of Stavanger Stavanger Norway"},{"name":"Department of Anaesthesiology and Intensive Care Stavanger University Hospital Stavanger Norway"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Britt S","family":"Hansen","sequence":"additional","affiliation":[{"name":"Department of Health Studies Faculty of Social Sciences University of Stavanger Stavanger Norway"},{"name":"Department of Anaesthesiology and Intensive Care Stavanger University Hospital Stavanger Norway"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Evy M","family":"Gundersen","sequence":"additional","affiliation":[{"name":"Department of Health Studies Faculty of Social Sciences University of Stavanger Stavanger Norway"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2012,12,13]]},"reference":[{"key":"e_1_2_10_2_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2648.2008.04907.x"},{"key":"e_1_2_10_3_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2834.2008.00910.x"},{"key":"e_1_2_10_4_1","doi-asserted-by":"publisher","DOI":"10.1155\/2004\/659147"},{"key":"e_1_2_10_5_1","doi-asserted-by":"publisher","DOI":"10.1177\/1479972309357497"},{"key":"e_1_2_10_6_1","doi-asserted-by":"publisher","DOI":"10.1186\/1472-6963-11-156"},{"key":"e_1_2_10_7_1","doi-asserted-by":"publisher","DOI":"10.1186\/1472-6963-11-115"},{"key":"e_1_2_10_8_1","first-page":"18","article-title":"Living at home on a ventilator","volume":"9","author":"Fitch MI","year":"1998","journal-title":"Official Journal of Canadian Association, Critical Care Nursing"},{"key":"e_1_2_10_9_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.nedt.2003.10.001"},{"key":"e_1_2_10_10_1","doi-asserted-by":"publisher","DOI":"10.1046\/j.1369-6513.2003.00217.x"},{"key":"e_1_2_10_11_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2850.2003.00717.x"},{"key":"e_1_2_10_12_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.socscimed.2005.08.015"},{"key":"e_1_2_10_13_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1471-6712.2006.00375.x"},{"key":"e_1_2_10_14_1","first-page":"49","volume-title":"Brukerens medvirkning","author":"Kjellevold A","year":"2005"},{"key":"e_1_2_10_15_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1471-6712.2009.00763.x"},{"key":"e_1_2_10_16_1","doi-asserted-by":"publisher","DOI":"10.1046\/j.1440-1800.2003.00160.x"},{"key":"e_1_2_10_17_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2648.2004.03261.x"},{"key":"e_1_2_10_18_1","volume-title":"Ro uten \u00e5rer \u2014 En bok om livet og d\u00f8den (A Book on Life and Death)","author":"Lindquist UC","year":"2004"},{"key":"e_1_2_10_19_1","doi-asserted-by":"publisher","DOI":"10.1183\/09031936.05.00066704"},{"key":"e_1_2_10_20_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2850.2008.01285.x"},{"key":"e_1_2_10_21_1","doi-asserted-by":"publisher","DOI":"10.1093\/geront\/41.4.474"},{"key":"e_1_2_10_22_1","doi-asserted-by":"publisher","DOI":"10.1097\/01.NAJ.0000372080.63145.13"},{"key":"e_1_2_10_23_1","unstructured":"The Patients\u2019 Rights Act(1999)Norwegian Board of Health Supervision Oslo."},{"key":"e_1_2_10_24_1","unstructured":"The World Medical Association (WMA)(2008)The Declaration of Helsinki. 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