{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,1]],"date-time":"2026-07-01T23:57:58Z","timestamp":1782950278644,"version":"3.54.5"},"reference-count":25,"publisher":"Wiley","issue":"1","license":[{"start":{"date-parts":[[2010,11,10]],"date-time":"2010-11-10T00:00:00Z","timestamp":1289347200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Tropical Med Int Health"],"published-print":{"date-parts":[[2011,1]]},"abstract":"<jats:title>Summary<\/jats:title><jats:p><jats:bold>Objectives\u2002<\/jats:bold> To assess the relationship between the degree of symptoms and defects caused by spina bifida and the quality of life (QoL) of children with spina bifida in Kenya.<\/jats:p><jats:p><jats:bold>Methods\u2002<\/jats:bold> Children with spina bifida at BethanyKids at Kijabe Hospital, at mobile clinics throughout Kenya and a control group of healthy children were interviewed regarding their QoL. The SEIQoL\u2010DW was used as an instrument to measure the QoL. This instrument can transfer well across cultures by using open questions clustered in six domains chosen based on the study group responses. Symptoms and impairment caused by spina bifida were obtained from the medical files.<\/jats:p><jats:p><jats:bold>Results\u2002<\/jats:bold> Sixty\u2010nine per cent of 102 patients with spina bifida had a myelomeningocele, 59% had hydrocephalus, and of 49 incontinent children older than 2.5\u2003years, 67% used clean intermittent catheterization. Quality of life of children was 65.1 on a scale from 0 to 100, compared to 78.0 in the healthy control group. Not one single determinant made a significant difference in the overall QoL. The most important domains were \u2018development\u2019 and \u2018self\u2010actualization\u2019. The lowest scores were found in the domain \u2018health and disease\u2019.<\/jats:p><jats:p><jats:bold>Conclusion\u2002<\/jats:bold> This study showed no significant influence of the degree of defects of spina bifida on the QoL, but identified domains that can be targeted for improvement in children with spina bifida.<\/jats:p>","DOI":"10.1111\/j.1365-3156.2010.02680.x","type":"journal-article","created":{"date-parts":[[2010,11,11]],"date-time":"2010-11-11T02:42:43Z","timestamp":1289443363000},"page":"30-36","source":"Crossref","is-referenced-by-count":11,"title":["Quality of life of children with spina bifida in Kenya is not related to the degree of the spinal defects"],"prefix":"10.1111","volume":"16","author":[{"given":"Esther","family":"Corneg\u00e9\u2010Blokland","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"H. E.","family":"Jansen","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"C. C. E.","family":"de Jong\u2010de Vos van Steenwijk","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Dan","family":"Poenaru","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2010,11,10]]},"reference":[{"key":"e_1_2_7_2_1","doi-asserted-by":"publisher","DOI":"10.1159\/000094062"},{"key":"e_1_2_7_3_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1469-8749.2007.00458.x"},{"key":"e_1_2_7_4_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1469-8749.2005.tb01212.x"},{"key":"e_1_2_7_5_1","doi-asserted-by":"publisher","DOI":"10.1159\/000056005"},{"key":"e_1_2_7_6_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00381-009-0865-z"},{"key":"e_1_2_7_7_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1469-8749.2002.tb00818.x"},{"key":"e_1_2_7_8_1","first-page":"287","article-title":"Ventriculitis in newborns with myelomeningocele","volume":"145","author":"Charney EB","year":"1991","journal-title":"American Journal of Diseases of Children (1960)"},{"key":"e_1_2_7_9_1","doi-asserted-by":"publisher","DOI":"10.1159\/000086559"},{"key":"e_1_2_7_10_1","doi-asserted-by":"publisher","DOI":"10.1023\/A:1023273117040"},{"key":"e_1_2_7_11_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0031-3955(03)00207-4"},{"key":"e_1_2_7_12_1","doi-asserted-by":"publisher","DOI":"10.1136\/adc.83.4.293"},{"key":"e_1_2_7_13_1","doi-asserted-by":"publisher","DOI":"10.1159\/000097518"},{"key":"e_1_2_7_14_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11136-006-0032-x"},{"key":"e_1_2_7_15_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00381-003-0792-3"},{"key":"e_1_2_7_16_1","doi-asserted-by":"publisher","DOI":"10.1186\/1477-7525-2-27"},{"key":"e_1_2_7_17_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1469-8749.2008.02054.x"},{"key":"e_1_2_7_18_1","unstructured":"O\u2019BoyleC BrowneJ HickeyA McGeeH&JoyceC(1993)Schedule for the evaluation of individual quality of life (SEIQoL): a direct weighting procedure for quality of life domains (SEIQoL\u2010DW).Administration Manual Dublin: Department of Psychology Royal College of Surgeons in Ireland."},{"key":"e_1_2_7_19_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1651-2227.2006.00153.x"},{"key":"e_1_2_7_20_1","doi-asserted-by":"publisher","DOI":"10.1053\/apmr.2002.34599"},{"key":"e_1_2_7_21_1","doi-asserted-by":"publisher","DOI":"10.1023\/A:1026486016212"},{"key":"e_1_2_7_22_1","doi-asserted-by":"publisher","DOI":"10.1258\/jrsm.2008.081002"},{"key":"e_1_2_7_23_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1651-2227.1993.tb12659.x"},{"key":"e_1_2_7_24_1","doi-asserted-by":"publisher","DOI":"10.1055\/s-2008-1072404"},{"key":"e_1_2_7_25_1","first-page":"413","article-title":"Hydrocephalus in myelomeningocele","volume":"5","author":"Stein SC","year":"1979","journal-title":"Child\u2019s Brain"},{"key":"e_1_2_7_26_1","first-page":"368","article-title":"Myelomeningocele: long\u2010term neurosurgical treatment and follow\u2010up in 202 patients","volume":"107","author":"Talamonti G","year":"2007","journal-title":"Journal of Neurosurgery"}],"container-title":["Tropical Medicine &amp; International Health"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1111%2Fj.1365-3156.2010.02680.x","content-type":"unspecified","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/j.1365-3156.2010.02680.x","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,10,14]],"date-time":"2023-10-14T06:25:36Z","timestamp":1697264736000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/j.1365-3156.2010.02680.x"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2010,11,10]]},"references-count":25,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2011,1]]}},"alternative-id":["10.1111\/j.1365-3156.2010.02680.x"],"URL":"https:\/\/doi.org\/10.1111\/j.1365-3156.2010.02680.x","archive":["Portico"],"relation":{},"ISSN":["1360-2276","1365-3156"],"issn-type":[{"value":"1360-2276","type":"print"},{"value":"1365-3156","type":"electronic"}],"subject":[],"published":{"date-parts":[[2010,11,10]]}}}