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Ten semistructured interviews with the main caregiver(s) were carried out and were analyzed using the qualitative methodology interpretative phenomenological analysis. The main themes arising from the analysis are reported here: first becoming aware something is wrong; physical symptoms; speech and communication difficulties; behavioral problems; a slow but relentless process. These are discussed in relation to extant literature. We hope the article will be helpful to clinicians working with families where a child is affected by JHD and also contribute to the general literature on understanding symptoms in childhood illness.<\/jats:p>","DOI":"10.1111\/j.1399-0004.2006.00624.x","type":"journal-article","created":{"date-parts":[[2006,5,3]],"date-time":"2006-05-03T06:05:57Z","timestamp":1146636357000},"page":"486-496","source":"Crossref","is-referenced-by-count":30,"title":["The personal experience of juvenile Huntington's disease: an interpretative phenomenological analysis of parents' accounts of the primary features of a rare genetic 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