{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,27]],"date-time":"2026-08-27T14:15:28Z","timestamp":1787840128382,"version":"build-2784847793"},"reference-count":26,"publisher":"Wiley","issue":"2","license":[{"start":{"date-parts":[[2007,12,30]],"date-time":"2007-12-30T00:00:00Z","timestamp":1198972800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Clinical Genetics"],"published-print":{"date-parts":[[2008,2]]},"abstract":"<jats:p>The delivery of good health care services within clinical settings is predicated by an understanding of the needs of the stakeholders<jats:ext-link xmlns:xlink=\"http:\/\/www.w3.org\/1999\/xlink\" xlink:href=\"#fn1\">*<\/jats:ext-link>. Most of the information generated to date on the transfer of mutational analysis to clinical service has been within a Eurocentric model favouring individual autonomy. It is predictable that this model does not easily translate for other cultures.<\/jats:p><jats:p>Current genetic technology has elucidated the molecular basis of many diseases. In familial cancer and other late\u2010onset disorders, there is now the possibility of \u2018prediction\u2019 where a high risk conferred by family history can be confirmed or negated by genetic testing. In paediatric disorders, prediction is offered in the form of prenatal or pre\u2010implantation genetic diagnosis. We report on the processes undertaken in an attempt to provide a culturally sensitive service for the Maori people of Aotearoa, New Zealand.<\/jats:p>","DOI":"10.1111\/j.1399-0004.2007.00943.x","type":"journal-article","created":{"date-parts":[[2009,1,23]],"date-time":"2009-01-23T10:24:17Z","timestamp":1232706257000},"page":"132-138","source":"Crossref","is-referenced-by-count":30,"title":["Cultural enhancement of a clinical service to meet the needs of indigenous people; genetic service development in response to issues for New Zealand Maori"],"prefix":"10.1111","volume":"73","author":[{"given":"RV","family":"Port","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"J","family":"Arnold","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"D","family":"Kerr","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"N","family":"Gravish","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"I","family":"Winship","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2007,12,30]]},"reference":[{"key":"e_1_2_8_2_2","unstructured":"British Society of Human Genetics. Retrieved April 2001 fromhttp:\/\/www.bshg.org.uk\/."},{"key":"e_1_2_8_3_2","unstructured":"European Society of Human Genetics. Retrieved June 2007 fromhttp:\/\/www.eshg.org\/."},{"key":"e_1_2_8_4_2","unstructured":"American Society of Human Genetics.Statement of the American Society of Human Genetics on Genetic Testing for Breast and Ovarian Cancer Predisposition.Am J Genet1994:55:i\u2013iv."},{"key":"e_1_2_8_5_2","unstructured":"Human Genetics Society of Australasia. Retrieved April 2005 fromhttp:\/\/www.hgsa.com.au\/."},{"key":"e_1_2_8_6_2","first-page":"234","article-title":"Attitudes about genetic testing for breast cancer susceptibility: a survey of general practitioners, medical students and women in the northern region of New Zealand to genetic testing for breast cancer susceptibility","volume":"29","author":"Cameron L","year":"2002","journal-title":"N Z Fam Physician"},{"key":"e_1_2_8_7_2","doi-asserted-by":"publisher","DOI":"10.1136\/jme.25.2.204"},{"issue":"12","key":"e_1_2_8_8_2","first-page":"1862","article-title":"Ethical guidelines in genetics and genomics. 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Paper presented at the Te Matawhanui Conference","author":"Smith LT","year":"1995"},{"key":"e_1_2_8_18_2","volume-title":"Decolonizing methodologies: research and indigenous peoples","author":"Smith LT","year":"1999"},{"key":"e_1_2_8_19_2","unstructured":"New Zealand Census.http:\/\/www.stats.govt.nz\/census"},{"key":"e_1_2_8_20_2","volume-title":"Culture counts: changing power relations in education","author":"Bishop R","year":"1999"},{"key":"e_1_2_8_21_2","doi-asserted-by":"publisher","DOI":"10.1007\/s10897-005-9014-3"},{"key":"e_1_2_8_22_2","doi-asserted-by":"publisher","DOI":"10.1136\/jmg.31.10.785"},{"key":"e_1_2_8_23_2","doi-asserted-by":"publisher","DOI":"10.1111\/1467-8519.00210"},{"key":"e_1_2_8_24_2","doi-asserted-by":"publisher","DOI":"10.1136\/jmg.38.8.519"},{"key":"e_1_2_8_25_2","doi-asserted-by":"publisher","DOI":"10.1002\/ajmg.a.10926"},{"key":"e_1_2_8_26_2","doi-asserted-by":"publisher","DOI":"10.1023\/B:JOGC.0000013379.90587.ef"},{"key":"e_1_2_8_27_2","doi-asserted-by":"publisher","DOI":"10.1038\/ng1119"}],"container-title":["Clinical Genetics"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1111%2Fj.1399-0004.2007.00943.x","content-type":"unspecified","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/j.1399-0004.2007.00943.x","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,10,10]],"date-time":"2023-10-10T04:26:40Z","timestamp":1696912000000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/j.1399-0004.2007.00943.x"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2007,12,30]]},"references-count":26,"journal-issue":{"issue":"2","published-print":{"date-parts":[[2008,2]]}},"alternative-id":["10.1111\/j.1399-0004.2007.00943.x"],"URL":"https:\/\/doi.org\/10.1111\/j.1399-0004.2007.00943.x","archive":["Portico"],"relation":{},"ISSN":["0009-9163","1399-0004"],"issn-type":[{"value":"0009-9163","type":"print"},{"value":"1399-0004","type":"electronic"}],"subject":[],"published":{"date-parts":[[2007,12,30]]}}}