{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,10,29]],"date-time":"2025-10-29T13:14:24Z","timestamp":1761743664267},"reference-count":42,"publisher":"Wiley","issue":"2","license":[{"start":{"date-parts":[[2012,7,22]],"date-time":"2012-07-22T00:00:00Z","timestamp":1342915200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Scandinavian Caring Sciences"],"published-print":{"date-parts":[[2013,6]]},"abstract":"<jats:p>\n<jats:italic>Scand J Caring Sci; 2013; 27; 238\u2013245<\/jats:italic>\n<\/jats:p><jats:p>\n<jats:bold>Living with polio and postpolio syndrome in the United Kingdom<\/jats:bold>\n<\/jats:p><jats:p>The term Postpolio Syndrome (PPS) is used to describe new and late manifestations of poliomyelitis that occur later in life in polio survivors. Polio had been eradicated in the United Kingdom (UK) and most of Europe, although this is not the case in all countries. Research in this area has tended to focus upon the impact of polio and PPS on health status and functional health rather than its overall effect on people\u2019s lives. This study\u2019s two main aims were to explore the ways in which polio and PPS in the UK has affected the respondents\u2019 lives and to ascertain their views about how the quality of life could be improved. The two questions were as follows: (1) How has the health of people with polio and PPS affected their quality of life? (2) What would people with polio and PPS change to improve their quality of life? Deductive content analysis using existing qualitative data from a cross\u2010sectional survey of 336 returned questionnaires from persons with polio and PPS was carried out. The average age of the participants was 54\u2003years. Our research found that polio survivors valued social occupations and participation in family life. Our research has also shown that healthcare professionals still do not understand polio and PPS and this lack of understanding influences their clients\u2019 quality of life. Finances and accessibility of environments also influence participation in chosen occupations. Rehabilitation programmes for people with polio and PPS need to be targeted towards maintaining and improving accessible environments and participation in chosen occupations, and healthcare professionals need to ensure that persons with polio and PPS are referred to persons with specific expertise in this area.<\/jats:p>","DOI":"10.1111\/j.1471-6712.2012.01029.x","type":"journal-article","created":{"date-parts":[[2012,7,23]],"date-time":"2012-07-23T01:37:10Z","timestamp":1343007430000},"page":"238-245","update-policy":"http:\/\/dx.doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":7,"title":["Living with polio and postpolio syndrome in the United Kingdom"],"prefix":"10.1111","volume":"27","author":[{"given":"Anita","family":"Atwal","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Amy","family":"Giles","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Georgia","family":"Spiliotopoulou","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Nicola","family":"Plastow","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Lesley","family":"Wilson","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2012,7,22]]},"reference":[{"key":"e_1_2_9_2_2","first-page":"621","article-title":"Rehabilitation for post polio sequelae","volume":"33","author":"Khan K","year":"2004","journal-title":"Aust Fam Physician"},{"key":"e_1_2_9_3_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.healthpol.2004.06.001"},{"key":"e_1_2_9_4_2","doi-asserted-by":"publisher","DOI":"10.2147\/TCRM.S4440"},{"key":"e_1_2_9_5_2","doi-asserted-by":"publisher","DOI":"10.1080\/096382899297666"},{"key":"e_1_2_9_6_2","doi-asserted-by":"publisher","DOI":"10.1046\/j.1365-2648.2000.01412.x"},{"key":"e_1_2_9_7_2","doi-asserted-by":"publisher","DOI":"10.1136\/jnnp.73.6.695"},{"key":"e_1_2_9_8_2","doi-asserted-by":"publisher","DOI":"10.2340\/16501977-0237"},{"key":"e_1_2_9_9_2","doi-asserted-by":"publisher","DOI":"10.1038\/sj.sc.3100557"},{"key":"e_1_2_9_10_2","unstructured":"National Institute of Neurological Disorder and Stroke Post polio syndrome information page.2011 http:\/\/www.ninds.nih.gov\/disorders\/post_polio\/post_polio.htm(last accessed 28 May 2012)."},{"key":"e_1_2_9_11_2","doi-asserted-by":"publisher","DOI":"10.1080\/096382800296674"},{"key":"e_1_2_9_12_2","doi-asserted-by":"publisher","DOI":"10.1080\/16501970600722395"},{"key":"e_1_2_9_13_2","doi-asserted-by":"publisher","DOI":"10.1080\/09593980600724196"},{"key":"e_1_2_9_14_2","doi-asserted-by":"crossref","first-page":"245","DOI":"10.3233\/NRE-2005-20402","article-title":"Effects of Lamotrigine on the symptoms and life qualities of patients with post polio syndrome: a randomized, controlled study","volume":"20","author":"On AY","year":"2005","journal-title":"NeuroRehabilitation"},{"key":"e_1_2_9_15_2","doi-asserted-by":"publisher","DOI":"10.1177\/0269215508098893"},{"key":"e_1_2_9_16_2","doi-asserted-by":"publisher","DOI":"10.1186\/1471-2377-10-8"},{"key":"e_1_2_9_17_2","doi-asserted-by":"publisher","DOI":"10.2340\/16501977-0515"},{"key":"e_1_2_9_18_2","doi-asserted-by":"publisher","DOI":"10.1080\/165019701300006461"},{"key":"e_1_2_9_19_2","first-page":"CD007818","article-title":"Treatment for postpolio syndrome","volume":"16","author":"Koopman FS","year":"2011","journal-title":"Cochrane Database Syst Rev"},{"key":"e_1_2_9_20_2","unstructured":"British Polio Fellowship.About post polio syndrome2011 http:\/\/www.britishpolio.org.uk\/(last accessed 25 October 2011)."},{"key":"e_1_2_9_21_2","doi-asserted-by":"publisher","DOI":"10.4276\/030802209X12601857794934"},{"key":"e_1_2_9_22_2","doi-asserted-by":"publisher","DOI":"10.1353\/bhm.1997.0089"},{"key":"e_1_2_9_23_2","doi-asserted-by":"publisher","DOI":"10.1080\/096382800406031"},{"key":"e_1_2_9_24_2","doi-asserted-by":"publisher","DOI":"10.1097\/00002800-198800210-00025"},{"key":"e_1_2_9_25_2","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2648.2007.04569.x"},{"key":"e_1_2_9_26_2","doi-asserted-by":"publisher","DOI":"10.1016\/S0260-6917(96)80115-8"},{"key":"e_1_2_9_27_2","doi-asserted-by":"publisher","DOI":"10.1108\/14691930410533704"},{"key":"e_1_2_9_28_2","volume-title":"Nursing Research. Principles and Methods","author":"Polit DF","year":"2004"},{"key":"e_1_2_9_29_2","volume-title":"Designing Qualitative Research","author":"Marshall C","year":"1995"},{"key":"e_1_2_9_30_2","first-page":"437","volume-title":"Nursing Research; Theory and Practice","author":"Catanzaro M","year":"1988"},{"key":"e_1_2_9_31_2","doi-asserted-by":"publisher","DOI":"10.1002\/nur.4770180411"},{"key":"e_1_2_9_32_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.apmr.2008.03.018"},{"key":"e_1_2_9_33_2","doi-asserted-by":"publisher","DOI":"10.1016\/S0003-9993(98)90087-9"},{"key":"e_1_2_9_34_2","doi-asserted-by":"publisher","DOI":"10.3109\/09638289709166835"},{"key":"e_1_2_9_35_2","doi-asserted-by":"publisher","DOI":"10.2340\/16501977-0559"},{"key":"e_1_2_9_36_2","doi-asserted-by":"publisher","DOI":"10.1080\/10400435.1999.10131998"},{"key":"e_1_2_9_37_2","doi-asserted-by":"publisher","DOI":"10.1179\/2045772311Y.0000000048"},{"key":"e_1_2_9_38_2","doi-asserted-by":"publisher","DOI":"10.1007\/s004150170160"},{"key":"e_1_2_9_39_2","doi-asserted-by":"publisher","DOI":"10.1111\/j.1468-0297.2006.01080.x"},{"key":"e_1_2_9_40_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.socscimed.2004.05.009"},{"key":"e_1_2_9_41_2","doi-asserted-by":"publisher","DOI":"10.1007\/s11136-009-9572-1"},{"key":"e_1_2_9_42_2","doi-asserted-by":"publisher","DOI":"10.1046\/j.1365-2648.2000.01332.x"},{"key":"e_1_2_9_43_2","doi-asserted-by":"publisher","DOI":"10.1080\/016128402753542776"}],"container-title":["Scandinavian Journal of Caring Sciences"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1111%2Fj.1471-6712.2012.01029.x","content-type":"unspecified","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/j.1471-6712.2012.01029.x","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,10,28]],"date-time":"2023-10-28T15:08:03Z","timestamp":1698505683000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/j.1471-6712.2012.01029.x"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2012,7,22]]},"references-count":42,"journal-issue":{"issue":"2","published-print":{"date-parts":[[2013,6]]}},"alternative-id":["10.1111\/j.1471-6712.2012.01029.x"],"URL":"https:\/\/doi.org\/10.1111\/j.1471-6712.2012.01029.x","archive":["Portico"],"relation":{},"ISSN":["0283-9318","1471-6712"],"issn-type":[{"value":"0283-9318","type":"print"},{"value":"1471-6712","type":"electronic"}],"subject":[],"published":{"date-parts":[[2012,7,22]]},"assertion":[{"value":"2012-07-22","order":2,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}