{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,13]],"date-time":"2026-04-13T21:48:28Z","timestamp":1776116908988,"version":"3.50.1"},"reference-count":56,"publisher":"Wiley","issue":"3","license":[{"start":{"date-parts":[[2015,9,1]],"date-time":"2015-09-01T00:00:00Z","timestamp":1441065600000},"content-version":"tdm","delay-in-days":1554,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2011,7]]},"DOI":"10.1111\/j.1744-6155.2011.00289.x","type":"journal-article","created":{"date-parts":[[2011,6,1]],"date-time":"2011-06-01T03:00:47Z","timestamp":1306897247000},"page":"179-189","source":"Crossref","is-referenced-by-count":29,"title":["Parenting children with hypoplastic left heart syndrome: Finding a balance"],"prefix":"10.1111","volume":"16","author":[{"given":"Anra","family":"Lee","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Gwen R.","family":"Rempel","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2011,5,31]]},"reference":[{"issue":"6","key":"10.1111\/j.1744-6155.2011.00289.x-BIB1|cit1","doi-asserted-by":"crossref","first-page":"668","DOI":"10.1017\/S1047951110000971","article-title":"Functional outcomes after neonatal open heart surgery: Comparison of survivors of the Norwood staged procedure and the arterial switch operation","volume":"20","author":"Alton","year":"2010","journal-title":"Cardiology in the Young"},{"key":"10.1111\/j.1744-6155.2011.00289.x-BIB2|cit2","doi-asserted-by":"crossref","first-page":"1410","DOI":"10.1161\/CIRCULATIONAHA.107.741579","article-title":"Two-year survival and mental and psychomotor outcomes after the Norwood procedure: An analysis of the modified Blalock-Taussig shunt and right ventricle-to-pulmonary artery shunt surgical eras","volume":"118","author":"Atallah","year":"2008","journal-title":"Circulation"},{"issue":"9689","key":"10.1111\/j.1744-6155.2011.00289.x-BIB3|cit3","doi-asserted-by":"crossref","first-page":"551","DOI":"10.1016\/S0140-6736(09)60563-8","article-title":"Hypoplastic left heart syndrome","volume":"374","author":"Barron","year":"2009","journal-title":"Lancet"},{"issue":"5","key":"10.1111\/j.1744-6155.2011.00289.x-BIB4|cit4","doi-asserted-by":"crossref","first-page":"487","DOI":"10.1017\/S1047951107001023","article-title":"Motor development in children with congenital cardiac diseases compared to their healthy peers","volume":"17","author":"Bjarnason-Wehrens","year":"2007","journal-title":"Cardiology in the Young"},{"issue":"4","key":"10.1111\/j.1744-6155.2011.00289.x-BIB5|cit5","doi-asserted-by":"crossref","first-page":"308","DOI":"10.1007\/s002469900314","article-title":"Current status of staged reconstruction for hypoplastic left heart syndrome","volume":"19","author":"Bove","year":"1998","journal-title":"Pediatric Cardiology"},{"key":"10.1111\/j.1744-6155.2011.00289.x-BIB6|cit6","first-page":"509","volume-title":"Handbook of qualitative research","author":"Charmaz","year":"2000"},{"key":"10.1111\/j.1744-6155.2011.00289.x-BIB7|cit7","volume-title":"Constructing grounded theory: A practical guide through qualitative analysis","author":"Charmaz","year":"2006"},{"issue":"1","key":"10.1111\/j.1744-6155.2011.00289.x-BIB8|cit8","doi-asserted-by":"crossref","first-page":"39","DOI":"10.1300\/J087v42n01_02","article-title":"Blood, sweat, and tears: Biological ties and self-investment as sources of positive illusions about children and stepchildren","volume":"42","author":"Cohen","year":"2004","journal-title":"Journal of Divorce & Remarriage"},{"issue":"4","key":"10.1111\/j.1744-6155.2011.00289.x-BIB9|cit9","doi-asserted-by":"crossref","first-page":"569","DOI":"10.1136\/hrt.2004.057273","article-title":"Measurement of cognitive outcome and quality of life in congenital heart disease","volume":"92","author":"Daliento","year":"2006","journal-title":"Heart"},{"issue":"2","key":"10.1111\/j.1744-6155.2011.00289.x-BIB10|cit10","doi-asserted-by":"crossref","first-page":"83","DOI":"10.1023\/A:1027384306827","article-title":"Caretaker perception of child vulnerability predicts behavior problems in NICU graduates","volume":"34","author":"De Ocampo","year":"2003","journal-title":"Child Psychiatry & Human Development"},{"issue":"3","key":"10.1111\/j.1744-6155.2011.00289.x-BIB11|cit11","doi-asserted-by":"crossref","first-page":"209","DOI":"10.1111\/j.1547-5069.1999.tb00482.x","article-title":"Clarifying the concept of normalization","volume":"31","author":"Deatrick","year":"1999","journal-title":"Image-The Journal of Nursing Scholarship"},{"issue":"1","key":"10.1111\/j.1744-6155.2011.00289.x-BIB12|cit12","doi-asserted-by":"crossref","first-page":"15","DOI":"10.1111\/j.1365-2648.1988.tb01387.x","article-title":"The process of parenting a child with a disability: Normalization through accommodations","volume":"13","author":"Deatrick","year":"1988","journal-title":"Journal of Advanced Nursing"},{"issue":"4","key":"10.1111\/j.1744-6155.2011.00289.x-BIB13|cit13","doi-asserted-by":"crossref","first-page":"228","DOI":"10.1111\/j.1744-6171.2009.00203.x","article-title":"Parenting style and vulnerable child syndrome","volume":"22","author":"Duncan","year":"2009","journal-title":"Journal of Child and Adolescent Psychiatric Nursing"},{"issue":"5","key":"10.1111\/j.1744-6155.2011.00289.x-BIB14|cit14","doi-asserted-by":"crossref","first-page":"481","DOI":"10.1080\/073993302760190083","article-title":"As normal a life as possible: Mothers and their daughters with congenital heart disease","volume":"23","author":"Gantt","year":"2002","journal-title":"Health Care for Women International"},{"issue":"1","key":"10.1111\/j.1744-6155.2011.00289.x-BIB15|cit15","doi-asserted-by":"crossref","first-page":"61","DOI":"10.1017\/S1047951105002349","article-title":"Optimal timing of the second stage of palliation for hypoplastic left heart syndrome facilitated through home monitoring, and the results of early cavopulmonary anastomosis","volume":"16","author":"Ghanayem","year":"2006","journal-title":"Cardiology in the Young"},{"issue":"1","key":"10.1111\/j.1744-6155.2011.00289.x-BIB16|cit16","doi-asserted-by":"crossref","first-page":"40","DOI":"10.1037\/0893-3200.19.1.40","article-title":"Qualitative research and family psychology","volume":"19","author":"Gilgun","year":"2005","journal-title":"Journal of Family Psychology"},{"key":"10.1111\/j.1744-6155.2011.00289.x-BIB17|cit17","volume-title":"Basics of grounded theory analysis","author":"Glaser","year":"1992"},{"issue":"4","key":"10.1111\/j.1744-6155.2011.00289.x-BIB18|cit18","doi-asserted-by":"crossref","first-page":"279","DOI":"10.1177\/1367493504047318","article-title":"Perceived vulnerability: A comparison of parents and children","volume":"8","author":"Gleason","year":"2004","journal-title":"Journal of Child Health Care"},{"issue":"7","key":"10.1111\/j.1744-6155.2011.00289.x-BIB19|cit19","doi-asserted-by":"crossref","first-page":"58","DOI":"10.1542\/peds.34.1.58","article-title":"Reactions to the threatened loss of a child: A vulnerable child syndrome","volume":"34","author":"Green","year":"1964","journal-title":"Pediatrics"},{"key":"10.1111\/j.1744-6155.2011.00289.x-BIB20|cit20","doi-asserted-by":"crossref","DOI":"10.4135\/9781849209878","volume-title":"Reworking qualitative data","author":"Heaton","year":"2004"},{"key":"10.1111\/j.1744-6155.2011.00289.x-BIB21|cit21","doi-asserted-by":"crossref","DOI":"10.1002\/9781444314045","volume-title":"The natural and unnatural history of congenital heart disease","author":"Hoffman","year":"2009"},{"issue":"9","key":"10.1111\/j.1744-6155.2011.00289.x-BIB22|cit22","doi-asserted-by":"crossref","first-page":"1277","DOI":"10.1177\/1049732305276687","article-title":"Three approaches to qualitative content analysis","volume":"15","author":"Hsieh","year":"2005","journal-title":"Qualitative Health Research"},{"issue":"3","key":"10.1111\/j.1744-6155.2011.00289.x-BIB24|cit23","doi-asserted-by":"crossref","first-page":"417","DOI":"10.1016\/S0022-5223(98)70008-X","article-title":"Intermediate survival in neonates with aortic atresia: A multi-institutional study","volume":"116","author":"Jacobs","year":"1998","journal-title":"Journal of Thoracic and Cardiovascular Surgery"},{"issue":"5","key":"10.1111\/j.1744-6155.2011.00289.x-BIB23|cit24","doi-asserted-by":"crossref","first-page":"1691","DOI":"10.1016\/j.athoracsur.2008.01.057","article-title":"Management of 239 patients with hypoplastic left heart syndrome and related malformations from 1993 to 2007","volume":"85","author":"Jacobs","year":"2008","journal-title":"Annals of Thoracic Surgery"},{"issue":"3","key":"10.1111\/j.1744-6155.2011.00289.x-BIB25|cit25","doi-asserted-by":"crossref","first-page":"127","DOI":"10.1097\/00005721-200005000-00005","article-title":"Mothers' perceptions of parenting children with disabilities","volume":"25","author":"Johnson","year":"2000","journal-title":"MCN. American Journal of Maternal Child Nursing"},{"issue":"3","key":"10.1111\/j.1744-6155.2011.00289.x-BIB27|cit26","doi-asserted-by":"crossref","first-page":"215","DOI":"10.1002\/nur.4770090306","article-title":"How families manage chronic conditions: An analysis of the concept of normalization","volume":"9","author":"Knafl","year":"1986","journal-title":"Research in Nursing & Health"},{"issue":"1","key":"10.1111\/j.1744-6155.2011.00289.x-BIB26|cit27","first-page":"49","article-title":"The challenge of normalization for families of children with chronic conditions","volume":"28","author":"Knafl","year":"2002","journal-title":"Pediatric Nursing"},{"issue":"2","key":"10.1111\/j.1744-6155.2011.00289.x-BIB28|cit28","doi-asserted-by":"crossref","first-page":"87","DOI":"10.1002\/nur.20367","article-title":"Parental perceptions of the outcome and meaning of normalization","volume":"33","author":"Knafl","year":"2010","journal-title":"Research in Nursing and Health"},{"issue":"6","key":"10.1111\/j.1744-6155.2011.00289.x-BIB29|cit29","doi-asserted-by":"crossref","first-page":"573","DOI":"10.1111\/j.1365-2648.1980.tb03188.x","article-title":"Successful \u201cnormalizing\u201d tactics of parents of chronically-ill children","volume":"5","author":"Krulik","year":"1980","journal-title":"Journal of Advanced Nursing"},{"issue":"7","key":"10.1111\/j.1744-6155.2011.00289.x-BIB30|cit30","doi-asserted-by":"crossref","first-page":"865","DOI":"10.1016\/S0277-9536(98)00113-0","article-title":"Reframing the meaning of disability to families: The embrace of paradox","volume":"47","author":"Larson","year":"1998","journal-title":"Social Science & Medicine"},{"key":"10.1111\/j.1744-6155.2011.00289.x-BIB31|cit31","first-page":"26","article-title":"Helping \u201cvulnerable\u201d children-and their parents-lead normal lives","volume":"23","author":"Lipstein","year":"2006","journal-title":"Contemporary Pediatrics"},{"issue":"1","key":"10.1111\/j.1744-6155.2011.00289.x-BIB32|cit32","doi-asserted-by":"crossref","first-page":"e90","DOI":"10.1542\/peds.2005-0575","article-title":"Relationship of surgical approach to neurodevelopmental outcomes in hypoplastic left heart syndrome","volume":"117","author":"Mahle","year":"2006","journal-title":"Pediatrics"},{"issue":"3","key":"10.1111\/j.1744-6155.2011.00289.x-BIB33|cit33","first-page":"380","article-title":"Maternal rating of child health at school age: Does the vulnerable child syndrome persist?","volume":"92","author":"McCormick","year":"1993","journal-title":"Pediatrics"},{"issue":"8","key":"10.1111\/j.1744-6155.2011.00289.x-BIB34|cit34","doi-asserted-by":"crossref","first-page":"659","DOI":"10.1080\/073993300300340501","article-title":"Mothers and their disabled children: Refining the concept of normalization","volume":"21","author":"Morse","year":"2000","journal-title":"Health Care for Women International"},{"key":"10.1111\/j.1744-6155.2011.00289.x-BIB35|cit35","volume-title":"Qualitative evaluation and research methods","author":"Patton","year":"1990"},{"key":"10.1111\/j.1744-6155.2011.00289.x-BIB36|cit36","doi-asserted-by":"crossref","first-page":"345","DOI":"10.1542\/pir.25-10-345","article-title":"The vulnerable child syndrome","volume":"25","author":"Pearson","year":"2004","journal-title":"Pediatrics in Review"},{"issue":"3","key":"10.1111\/j.1744-6155.2011.00289.x-BIB37|cit37","first-page":"355","article-title":"Is my child normal yet? Correlates of vulnerability","volume":"83","author":"Perrin","year":"1989","journal-title":"Pediatrics"},{"key":"10.1111\/j.1744-6155.2011.00289.x-BIB38|cit38","unstructured":"QSR International Pty Ltd 2006 NVivo Qualitative Data Analysis Program (Version 7)"},{"issue":"3","key":"10.1111\/j.1744-6155.2011.00289.x-BIB39|cit39","doi-asserted-by":"crossref","first-page":"F192","DOI":"10.1136\/adc.2006.112482","article-title":"Antenatal perspective of hypoplastic left heart syndrome: 5 years on","volume":"93","author":"Rasiah","year":"2008","journal-title":"Archives of Disease in Childhood Fetal & Neonatal Edition"},{"issue":"6","key":"10.1111\/j.1744-6155.2011.00289.x-BIB40|cit40","doi-asserted-by":"crossref","first-page":"424","DOI":"10.1053\/jpdn.2002.127172","article-title":"Parenting and childhood chronicity: Making visible the invisible work","volume":"17","author":"Ray","year":"2002","journal-title":"Journal of Pediatric Nursing"},{"issue":"6","key":"10.1111\/j.1744-6155.2011.00289.x-BIB41|cit41","doi-asserted-by":"crossref","first-page":"807","DOI":"10.1177\/1049732305276754","article-title":"Normalization in families raising a child who is medically fragile\/technology dependent and developmentally delayed","volume":"15","author":"Rehm","year":"2005","journal-title":"Qualitative Health Research"},{"issue":"1","key":"10.1111\/j.1744-6155.2011.00289.x-BIB42|cit42","doi-asserted-by":"crossref","first-page":"69","DOI":"10.1097\/00012272-200009000-00010","article-title":"Long-term goals and normalization strategies of children and families affected by HIV\/AIDS","volume":"23","author":"Rehm","year":"2000","journal-title":"Advances in Nursing Science"},{"issue":"6","key":"10.1111\/j.1744-6155.2011.00289.x-BIB43|cit43","doi-asserted-by":"crossref","first-page":"824","DOI":"10.1177\/1049732307303164","article-title":"Safeguarding precarious survival: Parenting children who have life-threatening heart disease","volume":"17","author":"Rempel","year":"2007","journal-title":"Qualitative Health Research"},{"key":"10.1111\/j.1744-6155.2011.00289.x-BIB44|cit44","doi-asserted-by":"crossref","first-page":"135","DOI":"10.1017\/S1047951109003485","article-title":"Is \u201cTreat your child normally\u201d helpful advice for parents of survivors of treatment of hypoplastic left heart syndrome?","volume":"19","author":"Rempel","year":"2009","journal-title":"Cardiology in the Young"},{"key":"10.1111\/j.1744-6155.2011.00289.x-BIB45|cit45","unstructured":"Robertson , C. 2006 The registry and follow-up of complex pediatric therapies project: Organization and outcome measurements to 8 years"},{"issue":"1","key":"10.1111\/j.1744-6155.2011.00289.x-BIB46|cit46","doi-asserted-by":"crossref","first-page":"6","DOI":"10.1177\/104973239300300102","article-title":"Managing life with a chronic condition: The story of normalization","volume":"3","author":"Robinson","year":"1993","journal-title":"Qualitative Health Research"},{"key":"10.1111\/j.1744-6155.2011.00289.x-BIB47|cit47","unstructured":"Ross Keizer , J. 1993 Parent perceptions of quality of life of children with HLHS who have undergone the Norwood surgical procedure"},{"issue":"5","key":"10.1111\/j.1744-6155.2011.00289.x-BIB48|cit48","doi-asserted-by":"crossref","first-page":"298","DOI":"10.1097\/00004703-198510000-00013","article-title":"The vulnerable child syndrome: Fact and theory","volume":"6","author":"Scheiner","year":"1985","journal-title":"Developmental and Behavioral Pediatrics"},{"issue":"1","key":"10.1111\/j.1744-6155.2011.00289.x-BIB49|cit49","doi-asserted-by":"crossref","first-page":"21","DOI":"10.1053\/jpdn.2003.4","article-title":"Constant vigilance: Mothers' work parenting young children with type 1 diabetes","volume":"18","author":"Sullivan-Bolyai","year":"2003","journal-title":"Journal of Pediatric Nursing: Nursing Care of Children and Families"},{"issue":"3","key":"10.1111\/j.1744-6155.2011.00289.x-BIB50|cit50","doi-asserted-by":"crossref","first-page":"476","DOI":"10.1542\/peds.2007-1282","article-title":"Neurodevelopmental outcomes after staged palliation for hypoplastic left heart syndrome","volume":"121","author":"Tabbutt","year":"2008","journal-title":"Pediatrics"},{"key":"10.1111\/j.1744-6155.2011.00289.x-BIB51|cit51","volume-title":"Avery's diseases of the newborn","author":"Taeusch","year":"1998"},{"issue":"4","key":"10.1111\/j.1744-6155.2011.00289.x-BIB52|cit52","doi-asserted-by":"crossref","first-page":"873","DOI":"10.1111\/j.1467-6494.1996.tb00947.x","article-title":"Positive illusions and coping with adversity","volume":"64","author":"Taylor","year":"1996","journal-title":"Journal of Personality"},{"issue":"2","key":"10.1111\/j.1744-6155.2011.00289.x-BIB53|cit53","doi-asserted-by":"crossref","first-page":"193","DOI":"10.1037\/0033-2909.103.2.193","article-title":"Illusion and well-being: A social psychological perspective on mental health","volume":"103","author":"Taylor","year":"1988","journal-title":"Psychological Bulletin"},{"issue":"2","key":"10.1111\/j.1744-6155.2011.00289.x-BIB54|cit54","doi-asserted-by":"crossref","first-page":"330","DOI":"10.1037\/h0080237","article-title":"Parental overprotection and its relation to perceived child vulnerability","volume":"67","author":"Thomasgard","year":"1997","journal-title":"American Journal of Orthopsychiatry"},{"issue":"6","key":"10.1111\/j.1744-6155.2011.00289.x-BIB55|cit55","doi-asserted-by":"crossref","first-page":"347","DOI":"10.1177\/000992289903800605","article-title":"Parent-child relationship disorders: What do the child vulnerability scale and the parent protection scale measure?","volume":"38","author":"Thomasgard","year":"1999","journal-title":"Clinical Pediatrics"},{"issue":"9","key":"10.1111\/j.1744-6155.2011.00289.x-BIB56|cit56","doi-asserted-by":"crossref","first-page":"849","DOI":"10.1001\/archpedi.162.9.849","article-title":"The paradigm shift toward surgical intervention for neonates with hypoplastic left heart syndrome","volume":"162","author":"Wernovsky","year":"2008","journal-title":"Archives of Pediatrics & Adolescent Medicine"}],"container-title":["Journal for Specialists in Pediatric Nursing"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1111%2Fj.1744-6155.2011.00289.x","content-type":"unspecified","content-version":"vor","intended-application":"text-mining"},{"URL":"http:\/\/onlinelibrary.wiley.com\/wol1\/doi\/10.1111\/j.1744-6155.2011.00289.x\/fullpdf","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2024,4,7]],"date-time":"2024-04-07T07:30:01Z","timestamp":1712475001000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/j.1744-6155.2011.00289.x"}},"subtitle":["Parenting Children With Hypoplastic Left Heart Syndrome: Finding a Balance"],"short-title":[],"issued":{"date-parts":[[2011,5,31]]},"references-count":56,"journal-issue":{"issue":"3","published-print":{"date-parts":[[2011,7]]}},"URL":"https:\/\/doi.org\/10.1111\/j.1744-6155.2011.00289.x","relation":{},"ISSN":["1539-0136"],"issn-type":[{"value":"1539-0136","type":"print"}],"subject":[],"published":{"date-parts":[[2011,5,31]]}}}