{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,19]],"date-time":"2026-06-19T04:15:50Z","timestamp":1781842550912,"version":"3.54.5"},"reference-count":44,"publisher":"Wiley","issue":"3","license":[{"start":{"date-parts":[[2013,9,1]],"date-time":"2013-09-01T00:00:00Z","timestamp":1377993600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"name":"Department of Education and Learning (DEL) in Northern Ireland"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Journal of Advanced Nursing"],"published-print":{"date-parts":[[2014,3]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Aim<\/jats:title><jats:p>To explore the perception of palliative care provision for people with non\u2010malignant respiratory disease from the perspective of bereaved caregivers.<\/jats:p><\/jats:sec><jats:sec><jats:title>Background<\/jats:title><jats:p>It is recognized that the majority of patients diagnosed with a malignant disease will have access to palliative care provision. However, it is less clear if the same standards of palliative care are available to those with non\u2010malignant respiratory disease in Northern Ireland and the Republic of Ireland.<\/jats:p><\/jats:sec><jats:sec><jats:title>Design<\/jats:title><jats:p>A qualitative study based on broad interpretivism.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>This research is a PhD study funded by the Department of Education and Learning in Northern Ireland (awarded February 2011). Data collection will consist of two stages; interviews with 20 bereaved caregivers of people who have died 3\u201318\u00a0months previously with a diagnosis of non\u2010malignant respiratory disease and four focus groups with healthcare professionals involved in the care of this client group. This study will be carried out at four healthcare sites across the Island of Ireland. The data will be analysed using thematic content analysis. Research Ethics committee approval was obtained (March 2012).<\/jats:p><\/jats:sec><jats:sec><jats:title>Discussion<\/jats:title><jats:p>This research will explore the experiences of patients with Chronic Obstructive Pulmonary Disease, Interstitial Lung Disease and Bronchiectasis and their caregivers from the perspective of the bereaved caregiver. The outcomes of this study will provide a critical first step in the development of more responsive palliative care for this client group and have important implications for future practice and policy in the palliative care provided to this client group.<\/jats:p><\/jats:sec>","DOI":"10.1111\/jan.12240","type":"journal-article","created":{"date-parts":[[2013,9,2]],"date-time":"2013-09-02T02:04:43Z","timestamp":1378087483000},"page":"687-697","source":"Crossref","is-referenced-by-count":4,"title":["The experiences of palliative care health service provision for people with non\u2010malignant respiratory disease and their caregivers: an all\u2010Ireland study"],"prefix":"10.1111","volume":"70","author":[{"given":"Clare","family":"Mc Veigh","sequence":"first","affiliation":[{"name":"The School of Nursing and Midwifery Queen's University Belfast UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Joanne","family":"Reid","sequence":"additional","affiliation":[{"name":"The School of Nursing and Midwifery Queen's University Belfast UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Peter","family":"Hudson","sequence":"additional","affiliation":[{"name":"The School of Nursing and Midwifery Queen's University Belfast UK"},{"name":"Centre for Palliative Care Melbourne Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Philip","family":"Larkin","sequence":"additional","affiliation":[{"name":"School of Nursing and Midwifery University College Dublin Ireland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sam","family":"Porter","sequence":"additional","affiliation":[{"name":"The School of Nursing and Midwifery Queen's University Belfast UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ann Marie","family":"Marley","sequence":"additional","affiliation":[{"name":"Belfast Health and Social Care Trust UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2013,9]]},"reference":[{"key":"e_1_2_10_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0885-3924(01)00330-X"},{"key":"e_1_2_10_3_1","unstructured":"American Thoracic Society(2012)What Is Chronic Obstructive Pulmonary Disease (COPD)?Retrieved fromhttp:\/\/www.thoracic.org\/clinical\/copd-guidelines\/for-patients\/what-is-chronic-obstructive-pulmonary-disease-copd.phpon 22 July 2012."},{"key":"e_1_2_10_4_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmjspcare-2012-000263"},{"key":"e_1_2_10_5_1","volume-title":"The Practice of Nursing Research: Conduct, Critique and Utilization","author":"Burns N.","year":"2005"},{"key":"e_1_2_10_6_1","doi-asserted-by":"publisher","DOI":"10.1177\/0269216310363650"},{"key":"e_1_2_10_7_1","volume-title":"Vital Statistics Fourth Quarter and Yearly Summary 2009","author":"Central Statistics Office","year":"2010"},{"key":"e_1_2_10_8_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1445-5994.2012.02791.x"},{"key":"e_1_2_10_9_1","doi-asserted-by":"crossref","first-page":"47","DOI":"10.4037\/ajcc2003.12.1.47","article-title":"Cardiorespiratory nurses' perceptions of palliative care in nonmalignant disease: data for the development of clinical practice","volume":"12","author":"Davidson P.","year":"2003","journal-title":"American Journal of Critical Care"},{"key":"e_1_2_10_10_1","volume-title":"(2008) Nursing Research: Generating and Assessing Evidence for Nursing Practice","author":"Denzin N.K.","year":"1989"},{"key":"e_1_2_10_11_1","volume-title":"A Healthier Future A Strategic Framework for Respiratory Conditions","author":"Department of Health, Social Services & Public Safety","year":"2006"},{"key":"e_1_2_10_12_1","volume-title":"Palliative and End of Life Care Strategy for Northern Ireland. 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