{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,19]],"date-time":"2026-09-19T16:01:54Z","timestamp":1789833714908,"version":"4.0.1"},"reference-count":72,"publisher":"Wiley","issue":"12","license":[{"start":{"date-parts":[[2014,8,1]],"date-time":"2014-08-01T00:00:00Z","timestamp":1406851200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Journal of Advanced Nursing"],"published-print":{"date-parts":[[2014,12]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Aim<\/jats:title>\n                    <jats:p>To review systematically and integrate the findings of qualitative research to increase our understanding of patients' experiences of chronic pelvic pain.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Chronic pelvic pain is a prevalent pain condition with a high disease burden for men and women. Its multifactorial nature makes it challenging for clinicians and patients.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design<\/jats:title>\n                    <jats:p>Synthesis of qualitative research using meta\u2010ethnography.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Data Sources<\/jats:title>\n                    <jats:p>Five electronic bibliographic databases from inception until March 2014 supplemented by citation tracking. Of 488 papers retrieved, 32 met the review aim.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Review Methods<\/jats:title>\n                    <jats:p>Central to meta\u2010ethnography is identifying \u2018concepts\u2019 and developing a conceptual model through constant comparison. Concepts are the primary data of meta\u2010ethnography. Two team members read each paper to identify and collaboratively describe the concepts. We next compared concepts across studies and organized them into categories with shared meaning. Finally, we developed a conceptual model, or line of argument, to explain the conceptual categories.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Our findings incorporate the following categories into a conceptual model: relentless and overwhelming pain; threat to self; unpredictability, struggle to construct pain as normal or pathological; a culture of secrecy; validation by diagnosis; ambiguous experience of health care; elevation of experiential knowledge and embodiment of knowledge through a community.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>The innovation of our model is to demonstrate, for the first time, the central struggle to construct \u2018pathological\u2019 vs. \u2018normal\u2019 chronic pelvic pain, a struggle that is exacerbated by a culture of secrecy. More research is needed to explore men's experience and to compare this with women's experience.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/jan.12485","type":"journal-article","created":{"date-parts":[[2014,8,1]],"date-time":"2014-08-01T03:30:37Z","timestamp":1406863837000},"page":"2713-2727","source":"Crossref","is-referenced-by-count":80,"title":["A meta\u2010ethnography of patients' experiences of chronic pelvic pain: struggling to construct chronic pelvic pain as \u2018real\u2019"],"prefix":"10.1111","volume":"70","author":[{"given":"Francine","family":"Toye","sequence":"first","affiliation":[{"name":"Nuffield Orthopaedic Centre Oxford University Hospitals NHS Trust UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kate","family":"Seers","sequence":"additional","affiliation":[{"name":"RCN Research Institute Division of Health Sciences Warwick Medical School University of Warwick Coventry UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Karen","family":"Barker","sequence":"additional","affiliation":[{"name":"Nuffield Orthopaedic Centre Oxford University Hospitals NHS Trust UK"},{"name":"Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science University of Oxford Nuffield Orthopaedic Centre UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2014,8]]},"reference":[{"key":"e_1_2_12_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.fertnstert.2006.04.054"},{"key":"e_1_2_12_3_1","first-page":"747","article-title":"Endometriosis: the patient's perspective","volume":"3","author":"Ballweg M.L.","year":"1992","journal-title":"Infertility and Reproductive Medicine Clinics of North America"},{"key":"e_1_2_12_4_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.322.7294.1115"},{"key":"e_1_2_12_5_1","doi-asserted-by":"crossref","unstructured":"Barnett\u2010PageE.&ThomasJ.(2009)Methods for synthesis of qualitative research: a critical review.Economic and Social Research Council Research Methods National Centre for Research Methods Working Paper Series (01\/09).","DOI":"10.1186\/1471-2288-9-59"},{"key":"e_1_2_12_6_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0277-9536(00)00351-8"},{"key":"e_1_2_12_7_1","first-page":"273","volume-title":"Sociology of Health & Illness","author":"Bendelow G.","year":"1993"},{"key":"e_1_2_12_8_1","volume-title":"Pain and Gender","author":"Bendelow G.","year":"2000"},{"key":"e_1_2_12_9_1","doi-asserted-by":"publisher","DOI":"10.1258\/135581902320432732"},{"key":"e_1_2_12_10_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0277-9536(02)00064-3"},{"key":"e_1_2_12_11_1","doi-asserted-by":"publisher","DOI":"10.3310\/hta15430"},{"key":"e_1_2_12_12_1","volume-title":"Normal and the Pathological","author":"Canguilhem G.","year":"1989"},{"key":"e_1_2_12_13_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1533-8525.1994.tb00410.x"},{"key":"e_1_2_12_14_1","volume-title":"Constructing Grounded Theory","author":"Charmaz K.","year":"2006"},{"key":"e_1_2_12_15_1","doi-asserted-by":"publisher","DOI":"10.1177\/0891243205278639"},{"key":"e_1_2_12_16_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0277-9536(99)00390-1"},{"key":"e_1_2_12_17_1","doi-asserted-by":"publisher","DOI":"10.4324\/9780203853245"},{"key":"e_1_2_12_18_1","doi-asserted-by":"publisher","DOI":"10.1046\/j.1440-172X.2003.00396.x"},{"key":"e_1_2_12_19_1","doi-asserted-by":"publisher","DOI":"10.1016\/S1353-6117(02)00138-5"},{"key":"e_1_2_12_20_1","doi-asserted-by":"publisher","DOI":"10.1093\/humupd\/dmt027"},{"key":"e_1_2_12_21_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2648.2004.03055.x"},{"key":"e_1_2_12_22_1","first-page":"39","article-title":"\u2018You are one of the unlucky ones\u2019: delay in the diagnosis of endometriosis","volume":"1","author":"Denny E.","year":"2004","journal-title":"Diversity in Health and Social Care"},{"key":"e_1_2_12_23_1","doi-asserted-by":"publisher","DOI":"10.1177\/1049732309338725"},{"key":"e_1_2_12_24_1","doi-asserted-by":"publisher","DOI":"10.1080\/01443610600797301"},{"key":"e_1_2_12_25_1","doi-asserted-by":"publisher","DOI":"10.1783\/147118907781004831"},{"key":"e_1_2_12_26_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ejogrb.2007.10.006"},{"key":"e_1_2_12_27_1","doi-asserted-by":"publisher","DOI":"10.1177\/135581960501000110"},{"key":"e_1_2_12_28_1","doi-asserted-by":"publisher","DOI":"10.1177\/1468794107078517"},{"key":"e_1_2_12_29_1","doi-asserted-by":"publisher","DOI":"10.1258\/135581907779497486"},{"key":"e_1_2_12_30_1","doi-asserted-by":"publisher","DOI":"10.1046\/j.1365-2753.2003.00392.x"},{"key":"e_1_2_12_31_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2648.2010.05391.x"},{"key":"e_1_2_12_32_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.wsif.2006.03.005"},{"key":"e_1_2_12_33_1","unstructured":"EngelerD. 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