{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,2,14]],"date-time":"2026-02-14T02:57:32Z","timestamp":1771037852501,"version":"3.50.1"},"reference-count":42,"publisher":"Wiley","issue":"2","license":[{"start":{"date-parts":[[2017,11,27]],"date-time":"2017-11-27T00:00:00Z","timestamp":1511740800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/100008303","name":"Department for Employment and Learning, Northern Ireland","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100008303","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Journal of Advanced Nursing"],"published-print":{"date-parts":[[2018,2]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Aim<\/jats:title><jats:p>To explore specialist and generalist palliative care provision for people with non\u2010malignant respiratory disease, in rural and urban areas in the North and Republic of Ireland.<\/jats:p><\/jats:sec><jats:sec><jats:title>Background<\/jats:title><jats:p>Globally, palliative care is recommended as an appropriate healthcare option for people with advanced non\u2010malignant lung disease. Yet, there is limited evidence regarding the integration of palliative care for this client group.<\/jats:p><\/jats:sec><jats:sec><jats:title>Design<\/jats:title><jats:p>Qualitative study.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Convenience sample of 17 bereaved carers and 18 healthcare professionals recruited from two rural and two urban sites on the Island of Ireland. Data were collected throughout 2012 and 2013 through semi\u2010structured interviews with carers of patients with Chronic Obstructive Pulmonary Disease (N\u00a0=\u00a012), interstitial lung disease (N\u00a0=\u00a04) or bronchiectasis (N\u00a0=\u00a01) who had died 3\u201318\u00a0months previously; and four focus groups with healthcare professionals. Data were analysed using a thematic analysis framework.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Carers\u2019 interviews yielded three overarching themes: (1) lack of preparedness for death, due to ambiguity regarding disease trajectory; (2) lack of consistency in palliative care delivery, in relation with the receipt of generalist and specialist palliative care; and (3) role ambiguity, related to their caregiving role. Focus groups identified two overarching themes: (1) barriers to appropriate palliative care; and (2) the future direction of palliative care for patient with non\u2010malignant respiratory disease.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>The uncertain disease trajectory was not only experienced by carers but also healthcare professionals. Although referral to specialist palliative care services was perceived as increasing, the availability and coordination of generalist and specialist palliative care services were fragmented and varied dependent on geographical location.<\/jats:p><\/jats:sec>","DOI":"10.1111\/jan.13453","type":"journal-article","created":{"date-parts":[[2017,9,14]],"date-time":"2017-09-14T16:02:51Z","timestamp":1505404971000},"page":"383-394","source":"Crossref","is-referenced-by-count":23,"title":["The experience of palliative care service provision for people with non\u2010malignant respiratory disease and their family carers: An all\u2010Ireland qualitative study"],"prefix":"10.1111","volume":"74","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-9691-6766","authenticated-orcid":false,"given":"Clare","family":"Mc Veigh","sequence":"first","affiliation":[{"name":"School of Nursing and Midwifery Queen's University Belfast Belfast UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5820-862X","authenticated-orcid":false,"given":"Joanne","family":"Reid","sequence":"additional","affiliation":[{"name":"School of Nursing and Midwifery Queen's University Belfast Belfast UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Philip","family":"Larkin","sequence":"additional","affiliation":[{"name":"School of Nursing, Midwifery and Health Systems University College Dublin Dublin Ireland"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6950-9388","authenticated-orcid":false,"given":"Sam","family":"Porter","sequence":"additional","affiliation":[{"name":"Department of Social Sciences and Social Work Bournemouth University Poole UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Peter","family":"Hudson","sequence":"additional","affiliation":[{"name":"School of Nursing and Midwifery Queen's University Belfast Belfast UK"},{"name":"St Vincent's University Hospital and University of Melbourne Melbourne Vic. 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