{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,10,29]],"date-time":"2025-10-29T03:45:38Z","timestamp":1761709538057,"version":"3.37.3"},"reference-count":42,"publisher":"Wiley","issue":"3","license":[{"start":{"date-parts":[[2019,1,15]],"date-time":"2019-01-15T00:00:00Z","timestamp":1547510400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/501100000272","name":"National Institute for Health Research","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100000272","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Journal of Advanced Nursing"],"published-print":{"date-parts":[[2019,3]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Aims<\/jats:title><jats:p>The aim of this study was to explore how often the participation of parents in their infants\u2019 care and professionals\u2019 support for parents was documented in the clinical records and to determine <jats:italic>how<\/jats:italic> such participation and support were documented.<\/jats:p><\/jats:sec><jats:sec><jats:title>Background<\/jats:title><jats:p>Comprehensive documentation can facilitate collaboration between parents and healthcare professionals, supporting family\u2010centred care, yet little is known about how this is reflected in practice.<\/jats:p><\/jats:sec><jats:sec><jats:title>Design<\/jats:title><jats:p>A prospective, mixed methods approach was used to analyse the clinical records of newborns.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>The study was carried out in a large tertiary Neonatal Unit in the United Kingdom, from 2013 \u2010 2014. We analysed the clinical records of 24 critically ill newborns using content analysis and thematic analysis, enabling us to determine the frequency of documented support and participation and <jats:italic>how<\/jats:italic> support and participation were documented.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>We identified four categories of support in the clinical records: \u201cemotional\u201d, \u201cspiritual\u201d, \u201csocial\u201d and \u201cpractical support\u201d. We also identified instances where parents were encouraged to participate in their infant's care. Frequency differences in the documentation of support between infants facing a redirection of care decision and infants receiving active treatment were found. Two organisational themes were identified: \u201ctask focused documentation\u201d and \u201cminimal documentation of parental role\u201d. These were grouped together under the global theme \u201cprofessional accountability\u201d. The perspectives and experiences of parents were minimally documented throughout.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>Documentation of support towards parents and parents\u2019 participation in their infants\u2019 care was limited in terms of frequency and content. Encouraging regular, detailed documentation of these aspects of care may facilitate family\u2010centred care.<\/jats:p><\/jats:sec>","DOI":"10.1111\/jan.13910","type":"journal-article","created":{"date-parts":[[2018,11,12]],"date-time":"2018-11-12T06:59:34Z","timestamp":1542005974000},"page":"628-639","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":3,"title":["Documentation in the neonatal unit: The support given to parents and their participation in their baby's care"],"prefix":"10.1111","volume":"75","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-4496-9011","authenticated-orcid":false,"given":"Chloe","family":"Shaw","sequence":"first","affiliation":[{"name":"UCL EGA Institute for Women's Health London UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Emmi","family":"Suonpera","sequence":"additional","affiliation":[{"name":"UCL EGA Institute for Women's Health London UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Katie","family":"Gallagher","sequence":"additional","affiliation":[{"name":"UCL EGA Institute for Women's Health London UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Narendra","family":"Aladangady","sequence":"additional","affiliation":[{"name":"Department of Neonatology Homerton University Hospital and Centre for Paediatrics, Barts and the London School of Medicine and Dentistry QMUL London UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Elizabeth","family":"Stokoe","sequence":"additional","affiliation":[{"name":"School of Social Sciences, Loughborough University Loughborough UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Neil","family":"Marlow","sequence":"additional","affiliation":[{"name":"UCL EGA Institute for Women's Health London UK"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2019,1,15]]},"reference":[{"key":"e_1_2_11_2_1","doi-asserted-by":"publisher","DOI":"10.1097\/00005721-200105000-00010"},{"key":"e_1_2_11_3_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.112.3.691"},{"key":"e_1_2_11_4_1","doi-asserted-by":"publisher","DOI":"10.1177\/146879410100100307"},{"key":"e_1_2_11_5_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1651-2227.2011.02160.x"},{"key":"e_1_2_11_6_1","doi-asserted-by":"publisher","DOI":"10.1191\/1478088706qp063oa"},{"volume-title":"Service standards for hospitals providing neonatal care","year":"2010","author":"British Association of Perinatal Medicine","key":"e_1_2_11_7_1"},{"key":"e_1_2_11_8_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2003-0654-F"},{"key":"e_1_2_11_9_1","doi-asserted-by":"publisher","DOI":"10.1136\/medethics-2011-100250"},{"key":"e_1_2_11_10_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pec.2009.01.014"},{"key":"e_1_2_11_11_1","doi-asserted-by":"publisher","DOI":"10.1177\/160940690600500107"},{"key":"e_1_2_11_12_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2648.2009.05213.x"},{"key":"e_1_2_11_13_1","unstructured":"General Medical Coucil. 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