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Purposively sampled semi\u2010structured interviews (\n                      <jats:italic>n<\/jats:italic>\n                      \u2009=\u200930). Patient and public input throughout.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Findings<\/jats:title>\n                    <jats:p>Kidney disease was associated with defeminization, negatively affecting current (sexual) relationships and perceptions of future life goals. There was little evidence that shared decision making was taking place. Unplanned pregnancies were common, sometimes influenced by poor care and support and complicated systems. Reasons for (not) wanting children varied. Complicated pregnancies and miscarriages were common. Women often felt that it was more important to be a \u201cgood mother\u201d than to address their health needs, which were often unmet and unrecognized. Impacts of pregnancy on disease and options for alternates to pregnancy were not well understood.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>The needs and reproductive priorities of women are frequently overshadowed by their kidney disease. High\u2010quality shared decision\u2010making interventions need to be embedded as routine in a feminized care pathway that includes reproductive health. Research is needed in parallel to examine the effectiveness of interventions and address inequalities.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Impact<\/jats:title>\n                    <jats:p>We do not fully understand the expectations, needs, experiences and preferences of women with kidney disease for planning and starting a family or deciding not to have children.<\/jats:p>\n                    <jats:p>Women lack the knowledge, resources and opportunities to have high\u2010quality conversations with their healthcare professionals. Decisions are highly personal and related to a number of health, social and cultural factors; individualized approaches to care are essential.<\/jats:p>\n                    <jats:p>Healthcare services need to be redesigned to ensure that women are able to make informed choices about pregnancy and alternative routes to becoming a parent.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Patient or Public Contribution<\/jats:title>\n                    <jats:p>The original proposal for this research came from listening to the experiences of women in clinic who reported unmet needs and detailed experiences of their pregnancies (positive and negative). A patient group was involved in developing the funding application and helped to refine the objectives by sharing their experiences. Two women who are mothers living with kidney disease were co\u2010opted as core members of the research team. We hosted an interim findings event and invited patients and wider support services (adoption, fertility, surrogacy, education and maternal chronic kidney disease clinics) from across the UK to attend. We followed the UK national standards for patient and public involvement throughout.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/jan.15659","type":"journal-article","created":{"date-parts":[[2023,4,1]],"date-time":"2023-04-01T01:26:22Z","timestamp":1680312382000},"page":"3127-3146","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":9,"title":["Feminizing care pathways: Mixed\u2010methods study of reproductive options, decision making, pregnancy, post\u2010natal care and parenting amongst women with kidney disease"],"prefix":"10.1111","volume":"79","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-0185-6639","authenticated-orcid":false,"given":"Leah","family":"Mc\u00a0Laughlin","sequence":"first","affiliation":[{"name":"School of Medical and Health Sciences Bangor University Bangor UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Caron","family":"Jones","sequence":"additional","affiliation":[{"name":"Betsi Cadwaladr University Health Board Wales UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Barbara","family":"Neukirchinger","sequence":"additional","affiliation":[{"name":"School of Medical and Health Sciences Bangor University Bangor UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4238-5984","authenticated-orcid":false,"given":"Jane","family":"Noyes","sequence":"additional","affiliation":[{"name":"School of Medical and Health Sciences Bangor University Bangor UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Judith","family":"Stone","sequence":"additional","affiliation":[{"name":"Assistant Director Sector Development, Wales Council for Voluntary Action Patient Representative Cardiff UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Helen","family":"Williams","sequence":"additional","affiliation":[{"name":"Retired Nurse Patient representative Cardiff UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Denitza","family":"Williams","sequence":"additional","affiliation":[{"name":"School of Medicine Cardiff University Cardiff UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Rose","family":"Rapado","sequence":"additional","affiliation":[{"name":"Cardiff School of Sport and Health Sciences Cardiff Metropolitan University Cardiff UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Rhiannon","family":"Phillips","sequence":"additional","affiliation":[{"name":"Cardiff School of Sport and Health Sciences Cardiff Metropolitan University Cardiff UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Sian","family":"Griffin","sequence":"additional","affiliation":[{"name":"Cardiff and Vale University Health Board Cardiff UK"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2023,3,31]]},"reference":[{"key":"e_1_2_13_2_1","doi-asserted-by":"publisher","DOI":"10.1186\/S12891\u2010015\u20100657\u20104"},{"key":"e_1_2_13_3_1","unstructured":"Allen J. &Sesti F.(2018).British Medical Association Health inequalities and women\u2010addressing unmet needs.https:\/\/www.bma.org.uk\/media\/2116\/bma\u2010womens\u2010health\u2010inequalities\u2010report\u2010aug\u20102018.pdf"},{"key":"e_1_2_13_4_1","doi-asserted-by":"publisher","DOI":"10.2215\/CJN.04400419"},{"key":"e_1_2_13_5_1","doi-asserted-by":"publisher","DOI":"10.1159\/000489897"},{"key":"e_1_2_13_6_1","doi-asserted-by":"publisher","DOI":"10.1186\/1748\u20105908\u20107\u201037\/TABLES\/3"},{"key":"e_1_2_13_7_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0140\u20106736(19)30957\u20102"},{"issue":"3","key":"e_1_2_13_8_1","first-page":"21","article-title":"The control preferences scale","volume":"29","author":"Degner L.","year":"1997","journal-title":"The Canadian Journal of Nursing Research"},{"key":"e_1_2_13_9_1","unstructured":"Department of Health and Social Care. 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