{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,11,3]],"date-time":"2026-11-03T23:12:34Z","timestamp":1793747554263,"version":"4.6.1"},"reference-count":33,"publisher":"Wiley","issue":"3","license":[{"start":{"date-parts":[[2023,10,3]],"date-time":"2023-10-03T00:00:00Z","timestamp":1696291200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Journal of Advanced Nursing"],"published-print":{"date-parts":[[2024,3]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Aim<\/jats:title><jats:p>To explore patient experiences of intimacy and sexuality in those living with inflammatory bowel disease.<\/jats:p><\/jats:sec><jats:sec><jats:title>Design<\/jats:title><jats:p>An interpretative phenomenological study guided by van Manen's framework. Thematic analysis was conducted through interpretation and reflection on four existential domains: body, relationships, time and space.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Data were collected during 2019\u20132021 from 43 participants via face\u2010to\u2010face or telephone interviews, as well as anonymous collection of narratives submitted via Google Forms.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Four themes were identified: <jats:italic>Sexuality as lived incompleteness<\/jats:italic> was the overarching theme representing the essence of the experiences of intimacy and sexuality. This theme covered the four main themes: <jats:italic>Otherness of the body, Interrupted connectedness, Missing out on life fullness<\/jats:italic> and <jats:italic>Fragmented openness<\/jats:italic> and each corresponded to an existential domain. Intimacy and sexuality are negatively affected by inflammatory bowel disease, with impact on quality of life. Patients experienced grieving multiple losses, from body image and control, to choice of partners and future opportunities. The four domains were difficult to separate and a close inter\u2010relationship between each domain was acknowledged.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>A model was developed to draw new theoretical insights to understanding the relationship between sexual well\u2010being and psycho\u2010emotional distress similar to grief.<\/jats:p><\/jats:sec><jats:sec><jats:title>Impact<\/jats:title><jats:p>\n<jats:list list-type=\"bullet\">\n\n<jats:list-item><jats:p>First qualitative study to explore intimacy and sexuality experiences of those living with inflammatory bowel disease.<\/jats:p><\/jats:list-item>\n\n<jats:list-item><jats:p>Illness impact on sexuality has negative psycho\u2010emotional implications as a result of losing the old self and capacity to have the desired relationships\/sex life.<\/jats:p><\/jats:list-item>\n\n<jats:list-item><jats:p>A theoretical model was developed in an attempt to illustrate the close relationship of intimacy, sexuality and psycho\u2010emotional well\u2010being.<\/jats:p><\/jats:list-item>\n<\/jats:list>\n<\/jats:p><\/jats:sec><jats:sec><jats:title>Patient or Public Contribution<\/jats:title><jats:p>Patients were involved in the study design.<\/jats:p><\/jats:sec>","DOI":"10.1111\/jan.15879","type":"journal-article","created":{"date-parts":[[2023,10,4]],"date-time":"2023-10-04T08:44:14Z","timestamp":1696409054000},"page":"1030-1042","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":18,"title":["Grieving multiple losses: Experiences of intimacy and sexuality of people living with inflammatory bowel disease. A phenomenological study"],"prefix":"10.1111","volume":"80","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-5702-560X","authenticated-orcid":false,"given":"Simona","family":"Fourie","sequence":"first","affiliation":[{"name":"Radcliffe Department of Medicine University of Oxford  Oxford UK"},{"name":"Florence Nightingale Faculty of Nursing Midwifery and Palliative Care, King's College London  London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Christine","family":"Norton","sequence":"additional","affiliation":[{"name":"Florence Nightingale Faculty of Nursing Midwifery and Palliative Care, King's College London  London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5252-5325","authenticated-orcid":false,"given":"Debra","family":"Jackson","sequence":"additional","affiliation":[{"name":"Florence Nightingale Faculty of Nursing Midwifery and Palliative Care, King's College London  London UK"},{"name":"Faculty of Medicine and Health University of Sydney  Sydney Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Wladyslawa","family":"Czuber\u2010Dochan","sequence":"additional","affiliation":[{"name":"Florence Nightingale Faculty of Nursing Midwifery and Palliative Care, King's College London  London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2023,10,3]]},"reference":[{"key":"e_1_2_11_2_1","doi-asserted-by":"publisher","DOI":"10.1177\/0959354317747051"},{"key":"e_1_2_11_3_1","first-page":"826","volume-title":"Qualitative health research","author":"Crowther S.","year":"2017"},{"key":"e_1_2_11_4_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365\u20102648.2006.03898.x"},{"key":"e_1_2_11_5_1","doi-asserted-by":"publisher","DOI":"10.1080\/02682629908657467"},{"key":"e_1_2_11_6_1","volume-title":"An interpretive phenomenological study exploring the intimacy and sexuality experiences of people living with inflammatory bowel disease","author":"Fourie S.","year":"2022"},{"key":"e_1_2_11_7_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijnurstu.2018.07.017"},{"key":"e_1_2_11_8_1","doi-asserted-by":"publisher","DOI":"10.1093\/ecco\u2010jcc\/jjab043"},{"key":"e_1_2_11_9_1","volume-title":"The presentation of self in everyday life","author":"Goffman E.","year":"1959"},{"key":"e_1_2_11_10_1","doi-asserted-by":"publisher","DOI":"10.1093\/ecco\u2010jcc\/jjv213"},{"key":"e_1_2_11_11_1","doi-asserted-by":"publisher","DOI":"10.1002\/msc.1149"},{"key":"e_1_2_11_12_1","doi-asserted-by":"publisher","DOI":"10.1177\/1049732316665344"},{"key":"e_1_2_11_13_1","doi-asserted-by":"publisher","DOI":"10.9740\/mhc.2016.07.191"},{"key":"e_1_2_11_14_1","volume-title":"The illness narratives. Suffering, healing and the human condition","author":"Kleinman A.","year":"1988"},{"key":"e_1_2_11_15_1","doi-asserted-by":"publisher","DOI":"10.1053\/j.gastro.2004.01.063"},{"key":"e_1_2_11_16_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.crohns.2014.03.005"},{"key":"e_1_2_11_17_1","doi-asserted-by":"publisher","DOI":"10.1093\/ecco\u2010jcc\/jjv140"},{"key":"e_1_2_11_18_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00535\u2010012\u20100700\u20102"},{"key":"e_1_2_11_19_1","doi-asserted-by":"publisher","DOI":"10.1155\/2015\/435820"},{"key":"e_1_2_11_20_1","doi-asserted-by":"publisher","DOI":"10.1093\/ibd\/izx053"},{"key":"e_1_2_11_21_1","doi-asserted-by":"publisher","DOI":"10.1177\/0898010119882155"},{"key":"e_1_2_11_22_1","first-page":"592","article-title":"Sex\u2010specific issues in inflammatory bowel disease","volume":"11","author":"Rosenblatt E.","year":"2015","journal-title":"Gastroenterology & Hepatology"},{"key":"e_1_2_11_23_1","doi-asserted-by":"publisher","DOI":"10.7326\/0003-4819-135-10-200111200-00011"},{"key":"e_1_2_11_24_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.cgh.2013.05.017"},{"key":"e_1_2_11_25_1","doi-asserted-by":"publisher","DOI":"10.1093\/ibd\/izab152"},{"key":"e_1_2_11_26_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.cgh.2006.10.018"},{"key":"e_1_2_11_27_1","doi-asserted-by":"publisher","DOI":"10.1093\/intqhc\/mzm042"},{"key":"e_1_2_11_28_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00520\u2010013\u20102032\u2010z"},{"key":"e_1_2_11_29_1","doi-asserted-by":"publisher","DOI":"10.1111\/scs.12600"},{"key":"e_1_2_11_30_1","volume-title":"Researching lived experience. Human science for an action sensitive pedagogy","author":"Manen M.","year":"1990"},{"key":"e_1_2_11_31_1","volume-title":"Phenomenology of practice: Meaning\u2010giving methods in phenomenological research and writing","author":"Manen M.","year":"2014"},{"key":"e_1_2_11_32_1","volume-title":"Researching lived experience: Human science for an action sensitive pedagogy","author":"Manen M.","year":"2016"},{"key":"e_1_2_11_33_1","doi-asserted-by":"publisher","DOI":"10.1080\/00224491003658227"},{"key":"e_1_2_11_34_1","unstructured":"World Health Organization. (2006).Sexual health definitions.https:\/\/www.who.int\/heatlh\u2010topics\/sexuall\u2010health"}],"container-title":["Journal of Advanced Nursing"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/jan.15879","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2024,2,10]],"date-time":"2024-02-10T04:52:26Z","timestamp":1707540746000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/jan.15879"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2023,10,3]]},"references-count":33,"journal-issue":{"issue":"3","published-print":{"date-parts":[[2024,3]]}},"alternative-id":["10.1111\/jan.15879"],"URL":"https:\/\/doi.org\/10.1111\/jan.15879","archive":["Portico"],"relation":{},"ISSN":["0309-2402","1365-2648"],"issn-type":[{"value":"0309-2402","type":"print"},{"value":"1365-2648","type":"electronic"}],"subject":[],"published":{"date-parts":[[2023,10,3]]},"assertion":[{"value":"2022-10-09","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2023-09-04","order":1,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2023-10-03","order":2,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}