{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,30]],"date-time":"2026-09-30T09:15:52Z","timestamp":1790759752620,"version":"4.1.0"},"reference-count":34,"publisher":"Wiley","issue":"1","license":[{"start":{"date-parts":[[2013,12,21]],"date-time":"2013-12-21T00:00:00Z","timestamp":1387584000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/501100016135","name":"Heritage Lottery Fund","doi-asserted-by":"crossref","id":[{"id":"10.13039\/501100016135","id-type":"DOI","asserted-by":"crossref"}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Research Intellect Disabil"],"published-print":{"date-parts":[[2014,1]]},"abstract":"<jats:sec><jats:title>Background<\/jats:title><jats:p>This paper tells the story of Central England People First's (<jats:styled-content style=\"fixed-case\">CEPF<\/jats:styled-content>) History Project.<\/jats:p><\/jats:sec><jats:sec><jats:title>Method<\/jats:title><jats:p>This was an inclusive research project, owned and controlled by members of <jats:styled-content style=\"fixed-case\">CEPF<\/jats:styled-content> which sought to chart its 21\u2010year history, 1990\u20132012.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>It illustrates both the strengths of such a project and some of the challenges.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>It concludes that using inclusive research methods enabled the story to be told, but that it was less successful in addressing questions about why the organization grew and prospered in the 1990s, only to struggle in its later years, and what this tells us about the conditions which enable self\u2010advocacy to flourish. The paper was collaboratively written by the <jats:styled-content style=\"fixed-case\">CEPF<\/jats:styled-content> History Project team and an academic ally. Different fonts differentiate the contributions, although it is acknowledged that lots of the ideas were shared.<\/jats:p><\/jats:sec><jats:sec><jats:title>Accessible Abstract<\/jats:title><jats:p>This paper explores issues in telling the history of self advocacy using inclusive research methods. It explains how and why <jats:styled-content style=\"fixed-case\">CEPF<\/jats:styled-content> recorded its history, what we found out, and some of the questions we have had to think about:<\/jats:p><jats:p>\n<jats:list>\n<jats:list-item><jats:p>whose voices we hear<\/jats:p><\/jats:list-item>\n<jats:list-item><jats:p>what to include, what to leave out<\/jats:p><\/jats:list-item>\n<jats:list-item><jats:p>what parts of the research people with learning difficulties can do<\/jats:p><\/jats:list-item>\n<jats:list-item><jats:p>what self advocacy means to different people<\/jats:p><\/jats:list-item>\n<jats:list-item><jats:p>how to make use of research other people have done.<\/jats:p><\/jats:list-item>\n<\/jats:list><\/jats:p><jats:p>It raises some new questions about directions for inclusive research.<\/jats:p><jats:p>The Paper was written by the <jats:styled-content style=\"fixed-case\">CEPF<\/jats:styled-content> History team \u2013 Craig Hart, Ian Davies, Angela Still and Catherine O'Byrne \u2010 working with Jan Walmsley.<\/jats:p><jats:p>We wanted to make it clear what were Jan Walmsley's ideas and what were our ideas. We have done this by writing our ideas in a different font. <jats:styled-content style=\"fixed-case\">BUT<\/jats:styled-content> lots of the ideas belong to all of us.<\/jats:p><\/jats:sec>","DOI":"10.1111\/jar.12086","type":"journal-article","created":{"date-parts":[[2013,12,21]],"date-time":"2013-12-21T07:20:47Z","timestamp":1387610447000},"page":"34-43","source":"Crossref","is-referenced-by-count":34,"title":["Telling the History of Self\u2010Advocacy: A Challenge for Inclusive Research"],"prefix":"10.1111","volume":"27","author":[{"given":"Jan","family":"Walmsley","sequence":"first","affiliation":[{"name":"Jan Walmsley Associates Ltd Aylesbury UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"name":"The Central England People First History Project Team","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2013,12,21]]},"reference":[{"key":"e_1_2_6_2_1","doi-asserted-by":"publisher","DOI":"10.1080\/09687599727182"},{"key":"e_1_2_6_3_1","first-page":"1","volume-title":"Crossing Boundaries; Continuity and Change in the History of Learning Disability","author":"Aspis S.","year":"2000"},{"key":"e_1_2_6_4_1","first-page":"67","volume-title":"Good Times, Bad Times: Women with Learning Difficulties Telling Their Stories","author":"Aspis S","year":"2000"},{"key":"e_1_2_6_5_1","first-page":"7","volume-title":"Learning Disability: A Life Cycle Approach","author":"Atkinson D.","year":"2010"},{"key":"e_1_2_6_6_1","first-page":"13","volume-title":"Exploring Experiences of Advocacy by People with Learning Disabilities","author":"Atkinson D.","year":"2006"},{"key":"e_1_2_6_7_1","first-page":"59","volume-title":"Innovations in Advocacy and Empowerment Chorley","author":"Bersani H.","year":"1998"},{"key":"e_1_2_6_8_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1468-3156.2006.00410.x"},{"key":"e_1_2_6_9_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1468-3156.2006.00411.x"},{"key":"e_1_2_6_10_1","volume-title":"Den Store Losladelse \u2013 En Kuturhistorik Beretning on Udvilingshaemmedes Empowerment \u2013 Bevaegelser","author":"Bylov F.","year":"2008"},{"key":"e_1_2_6_11_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2788.2010.01326.x"},{"key":"e_1_2_6_12_1","volume-title":"Disability Politics: Understanding Our Past, Changing Our Future","author":"Campbell J.","year":"1996"},{"key":"e_1_2_6_13_1","volume-title":"21 Years of CEPF 1990\u20132011: A Journey and a Celebration","author":"CEPF","year":"2012"},{"key":"e_1_2_6_14_1","volume-title":"The Role of the Self Advocacy Support Worker in UK People First Groups","author":"Chapman R","year":"2005"},{"key":"e_1_2_6_15_1","volume-title":"An Ethnography of People First Anytown","author":"Clement T.","year":"2003"},{"key":"e_1_2_6_16_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1468-3156.2005.00360.x"},{"key":"e_1_2_6_17_1","volume-title":"Self Advocacy in the Lives of People with Learning Difficulties Buckingham","author":"Goodley D.","year":"2000"},{"key":"e_1_2_6_18_1","first-page":"68","volume-title":"Exploring Experiences of Advocacy by People with Learning Disabilities","author":"Ledger S.","year":"2006"},{"key":"e_1_2_6_19_1","volume-title":"Bye Bye Charlie: Stories from the Vanishing World of Kew Cottages","author":"Manning C.","year":"2008"},{"key":"e_1_2_6_20_1","volume-title":"Staying Strong But for How Long?","author":"National Forum","year":"2012"},{"key":"e_1_2_6_21_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1468-3156.2010.00638.x"},{"key":"e_1_2_6_22_1","volume-title":"Mental Handicap Patterns for Living","author":"Open University","year":"1986"},{"key":"e_1_2_6_23_1","volume-title":"A Fit Person to be Removed","author":"Potts M.","year":"1991"},{"key":"e_1_2_6_24_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1467-9566.2007.01015.x"},{"key":"e_1_2_6_25_1","volume-title":"Advocacy by and for adults with learning disabilities in England: findings from two surveys and three detailed case studies","author":"Roberts H.","year":"2012"},{"key":"e_1_2_6_26_1","doi-asserted-by":"publisher","DOI":"10.1093\/bjsw\/bcp119"},{"key":"e_1_2_6_27_1","volume-title":"Sticking Up for Yourself: Self Advocacy and People with Learning Difficulties","author":"Simons K.","year":"1992"},{"key":"e_1_2_6_28_1","first-page":"42","volume-title":"Exploring Experiences of Advocacy by People with Learning Disabilities","author":"Spencer K.","year":"2006"},{"key":"e_1_2_6_29_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1468-3156.2004.00282.x"},{"key":"e_1_2_6_30_1","first-page":"50","volume-title":"Deinstitutionalisation and People with Intellectual Disabilities: In and Out of Institutions","author":"Walmsley J.","year":"2005"},{"key":"e_1_2_6_31_1","first-page":"23","volume-title":"Understanding and Promoting Access for People with Learning Difficulties","author":"Walmsley J.","year":"2009"},{"key":"e_1_2_6_32_1","volume-title":"Inclusive Research with People with Learning Disabilities: Past, Present and Futures","author":"Walmsley J.","year":"2003"},{"key":"e_1_2_6_33_1","volume-title":"Innovations in Advocacy and Empowerment Chorley","author":"Ward L.","year":"1998"},{"key":"e_1_2_6_34_1","first-page":"172","volume-title":"Women with Intellectual Disabilities: Finding a Place in the World","author":"Ward N.","year":"2000"},{"key":"e_1_2_6_35_1","volume-title":"We can Speak for Ourselves","author":"Williams P.","year":"1982"}],"container-title":["Journal of Applied Research in Intellectual Disabilities"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1111%2Fjar.12086","content-type":"unspecified","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1111%2Fjar.12086","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/jar.12086","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,9,12]],"date-time":"2023-09-12T21:46:32Z","timestamp":1694555192000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/jar.12086"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2013,12,21]]},"references-count":34,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2014,1]]}},"alternative-id":["10.1111\/jar.12086"],"URL":"https:\/\/doi.org\/10.1111\/jar.12086","archive":["Portico"],"relation":{},"ISSN":["1360-2322","1468-3148"],"issn-type":[{"value":"1360-2322","type":"print"},{"value":"1468-3148","type":"electronic"}],"subject":[],"published":{"date-parts":[[2013,12,21]]}}}