{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,19]],"date-time":"2026-05-19T07:09:45Z","timestamp":1779174585706,"version":"3.51.4"},"reference-count":85,"publisher":"Wiley","issue":"6","license":[{"start":{"date-parts":[[2017,7,12]],"date-time":"2017-07-12T00:00:00Z","timestamp":1499817600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Research Intellect Disabil"],"published-print":{"date-parts":[[2017,11]]},"abstract":"<jats:sec><jats:title>Background<\/jats:title><jats:p>Historically, people with intellectual disabilities have tended to be excluded from knowing about death, dying and bereavement. Staff in intellectual disability services can play a valuable role in improving understanding of these issues in those they support. This qualitative metasynthesis aimed to understand the experiences of staff supporting adults with intellectual disabilities with issues of death, dying and bereavement.<\/jats:p><\/jats:sec><jats:sec><jats:title>Method<\/jats:title><jats:p>Thirteen papers were identified following a systematic review of six databases.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Three themes were developed following a lines\u2010of\u2010argument synthesis: (i)\u00a0talking about death is hard: negotiating the uncertainty in death, dying and bereavement; (ii) the commitment to promoting a \u201cgood death\u201d; and (iii) the grief behind the professional mask. \u201cA cautious silence: The taboo of death\u201d was an overarching theme.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>A more open culture around issues of death, dying and bereavement in intellectual disability settings is essential and could be promoted through staff training and support.<\/jats:p><\/jats:sec>","DOI":"10.1111\/jar.12376","type":"journal-article","created":{"date-parts":[[2017,7,12]],"date-time":"2017-07-12T09:46:56Z","timestamp":1499852816000},"page":"1007-1021","source":"Crossref","is-referenced-by-count":37,"title":["The experiences of staff who support people with intellectual disability on issues about death, dying and bereavement: A metasynthesis"],"prefix":"10.1111","volume":"30","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-5730-1758","authenticated-orcid":false,"given":"Ailsa J.","family":"Lord","sequence":"first","affiliation":[{"name":"Later Life Community Mental Health Team Greater Manchester Mental Health NHS Foundation Trust  Manchester UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Stephen","family":"Field","sequence":"additional","affiliation":[{"name":"Adult Community Learning Disability Service Fylde &amp; Wyre, Lancashire Care NHS Foundation Trust  Wesham UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1333-2090","authenticated-orcid":false,"given":"Ian C.","family":"Smith","sequence":"additional","affiliation":[{"name":"Clinical Psychology Faculty of Health and Medicine Furness College Lancaster University  Lancaster UK"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2017,7,12]]},"reference":[{"key":"e_1_2_10_3_1","doi-asserted-by":"publisher","DOI":"10.2190\/P4TT-J3BF-KFDR-5JB1"},{"key":"e_1_2_10_4_1","doi-asserted-by":"publisher","DOI":"10.1515\/IJDHD.2008.7.4.365"},{"key":"e_1_2_10_5_1","doi-asserted-by":"publisher","DOI":"10.1093\/gerona\/57.7.M470"},{"key":"e_1_2_10_6_1","doi-asserted-by":"publisher","DOI":"10.1080\/10673220801929786"},{"key":"e_1_2_10_7_1","unstructured":"British Psychological Society(2015).Dementia and people with intellectual disabilities: Guidance on the assessment diagnosis interventions and support of people with intellectual disabilities who develop dementia. 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