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Mortality studies often rely on Medical Certificates of Cause of Death (<jats:styled-content style=\"fixed-case\">MCCD<\/jats:styled-content>) for data.<\/jats:p><\/jats:sec><jats:sec><jats:title>Method<\/jats:title><jats:p>A systematic review was undertaken to identify the extent and nature of issues in recording causes of death for people with intellectual disability on<jats:styled-content style=\"fixed-case\">MCCD<\/jats:styled-content>.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Fifteen of the 25 articles included in the literature review raised concerns about the accuracy of<jats:styled-content style=\"fixed-case\">MCCD<\/jats:styled-content>in identifying the cause(s) of death of people with intellectual disability. The most frequent issues were the under\u2010reporting of intellectual disability on<jats:styled-content style=\"fixed-case\">MCCD<\/jats:styled-content>, and listing intellectual disability or an associated condition as an underlying cause of death.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>Concerns about the accuracy and reliability of<jats:styled-content style=\"fixed-case\">MCCD<\/jats:styled-content>for people with intellectual disability raise questions about mortality data based on<jats:styled-content style=\"fixed-case\">MCCD<\/jats:styled-content>. Clear guidance is required from<jats:styled-content style=\"fixed-case\">WHO<\/jats:styled-content>for those completing<jats:styled-content style=\"fixed-case\">MCCD<\/jats:styled-content>for people with intellectual disability.<\/jats:p><\/jats:sec>","DOI":"10.1111\/jar.12448","type":"journal-article","created":{"date-parts":[[2018,3,24]],"date-time":"2018-03-24T23:58:31Z","timestamp":1521935911000},"page":"659-668","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":22,"title":["Medical Certificates of Cause of Death for people with intellectual disabilities: A systematic literature review"],"prefix":"10.1111","volume":"31","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-9588-829X","authenticated-orcid":false,"given":"Fred","family":"Dunwoodie Stirton","sequence":"first","affiliation":[{"name":"The Learning Disabilities Mortality Review (LeDeR) Programme School for Policy Studies University of Bristol Bristol UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Pauline","family":"Heslop","sequence":"additional","affiliation":[{"name":"The Learning Disabilities Mortality Review (LeDeR) Programme School for Policy Studies University of Bristol Bristol UK"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2018,3,24]]},"reference":[{"key":"e_1_2_8_2_1","doi-asserted-by":"publisher","DOI":"10.1590\/0102-311X00099814"},{"key":"e_1_2_8_3_1","doi-asserted-by":"publisher","DOI":"10.1002\/brb3.431"},{"key":"e_1_2_8_4_1","first-page":"239","article-title":"Causes of death to age 30 in Down syndrome","volume":"43","author":"Baird P. 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