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Some children have a co\u2010occurring condition alongside an intellectual disability which requires ongoing treatment, such as a cleft lip\/palate. To date, their experiences remain untapped.<\/jats:p><\/jats:sec><jats:sec><jats:title>Method<\/jats:title><jats:p>Semi\u2010structured interviews with 23 participants; five children with intellectual disabilities (aged 11\u201316), their parents (<jats:italic>n<\/jats:italic>\u00a0=\u00a09) and nine healthcare professionals working in cleft care. Thematic analysis determined patterns across the data.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Three key themes were found: struggles (stress and distress, and power imbalance), tensions (perceived levels of choice and control in decision making, lack of training around intellectual disability assumptions and jargon) and good practice (appropriate communication and information, and tailored treatment).<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>Good practice was evident, but was ad hoc. Individualized treatment and communication based upon children's needs are required as is further investigation into general anaesthetic induction for children with intellectual disabilities.<\/jats:p><\/jats:sec>","DOI":"10.1111\/jar.12672","type":"journal-article","created":{"date-parts":[[2019,10,3]],"date-time":"2019-10-03T06:50:28Z","timestamp":1570085428000},"page":"283-295","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":8,"title":["Specialist hospital treatment and care as reported by children with intellectual disabilities and a cleft lip and\/or palate, their parents and healthcare professionals"],"prefix":"10.1111","volume":"33","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-6370-752X","authenticated-orcid":false,"given":"Amanda","family":"Bates","sequence":"first","affiliation":[{"name":"Centre for Health Services Studies University of Kent Canterbury UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6840-6715","authenticated-orcid":false,"given":"Rachel","family":"Forrester\u2010Jones","sequence":"additional","affiliation":[{"name":"Department of Social &amp; Policy Sciences University of Bath Bath UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1358-2516","authenticated-orcid":false,"given":"Michelle","family":"McCarthy","sequence":"additional","affiliation":[{"name":"Tizard Centre University of Kent Canterbury UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2019,10,2]]},"reference":[{"key":"e_1_2_8_2_1","volume-title":"Guidelines for the management of children referred for dental extractions under general anaesthetic (UK)","author":"Adewale L.","year":"2011"},{"key":"e_1_2_8_3_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2014-0556"},{"key":"e_1_2_8_4_1","unstructured":"Association of Child Life Professionals(2018). 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