{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,4]],"date-time":"2026-06-04T19:37:42Z","timestamp":1780601862857,"version":"3.54.1"},"reference-count":50,"publisher":"Wiley","issue":"6","license":[{"start":{"date-parts":[[2020,6,23]],"date-time":"2020-06-23T00:00:00Z","timestamp":1592870400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Research Intellect Disabil"],"published-print":{"date-parts":[[2020,11]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Background<\/jats:title><jats:p>Although lives of parents of girls with Rett syndrome (RTT) are centred on the process of care, in the current literature their perceived levels of stress have been rarely investigated.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>We analysed levels of stress in a sample of 79 fathers and mothers parenting girls with RTT, who were required to compile the Parenting Stress Index (PSI) questionnaire.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>We found clinical levels of stress in about 39% of fathers, as compared with 44% of the mothers. Severity of RTT, but not other factors such as the genetic domain, presence of epilepsy or scoliosis, predicted Total Stress scores in both fathers\u2019 subsample and mothers\u2019 subsample. A cumulative effect of caring, that is association of higher levels of stress with longer process of care, did also emerge from estimation of smoothing splines.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>Fathers\u2019 resources should be taken more into account, especially in the rehabilitation and socialization process of adults with RTT.<\/jats:p><\/jats:sec>","DOI":"10.1111\/jar.12755","type":"journal-article","created":{"date-parts":[[2020,6,23]],"date-time":"2020-06-23T12:52:14Z","timestamp":1592916734000},"page":"1348-1356","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":12,"title":["Parenting girls with Rett syndrome: An investigation on self\u2010perceived levels of stress"],"prefix":"10.1111","volume":"33","author":[{"given":"Elisa","family":"Pari","sequence":"first","affiliation":[{"name":"IRCCS Fondazione Don Carlo Gnocchi Milano Italy"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Francesca","family":"Cozzi","sequence":"additional","affiliation":[{"name":"IRCCS Fondazione Don Carlo Gnocchi Milano Italy"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marina Luisa","family":"Rodocanachi Roidi","sequence":"additional","affiliation":[{"name":"IRCCS Fondazione Don Carlo Gnocchi Milano Italy"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Francesca","family":"Grange","sequence":"additional","affiliation":[{"name":"IRCCS Fondazione Don Carlo Gnocchi Milano Italy"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kumiko","family":"Toshimori","sequence":"additional","affiliation":[{"name":"IRCCS Fondazione Don Carlo Gnocchi Milano Italy"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0584-8401","authenticated-orcid":false,"given":"Enrico","family":"Ripamonti","sequence":"additional","affiliation":[{"name":"IRCCS Fondazione Don Carlo Gnocchi Milano Italy"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2020,6,23]]},"reference":[{"key":"e_1_2_9_2_1","volume-title":"Parenting stress index \u2010 short form","author":"Abidin R.","year":"1990"},{"key":"e_1_2_9_3_1","doi-asserted-by":"publisher","DOI":"10.1186\/s13023-018-0924-1"},{"key":"e_1_2_9_4_1","doi-asserted-by":"publisher","DOI":"10.3109\/09638288.2013.813083"},{"key":"e_1_2_9_5_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1545-5300.1986.00365.x"},{"key":"e_1_2_9_6_1","first-page":"34","article-title":"A systematic\u2010transactional view of stress and coping in couples","volume":"54","author":"Bodenmann G.","year":"1995","journal-title":"Swiss Journal of Psychology"},{"key":"e_1_2_9_7_1","doi-asserted-by":"publisher","DOI":"10.1177\/0883073812470736"},{"key":"e_1_2_9_8_1","volume-title":"I disabili, i pi\u00f9 diseguali nella crescita delle diseguaglianze sociali. 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