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These addressed the topics of self\u2010report in individuals with intellectual disability, including Down syndrome. Using the National Library of Medicine database, PubMed, detailed literature searches were performed. The quality of available evidence was then evaluated, the existing literature was summarised, and knowledge gaps and research needs were identified.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Fifty relevant original articles were identified which addressed at least one key question. Study details, including: research design, internal validity, external validity, and relevant results are presented. Review of studies of individuals with intellectual disability which used a variety of statistical approaches showed mixed agreement between self\u2010report and proxy\u2010report.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>Few studies identified to\u2010date have used self\u2010report from individuals with Down syndrome, but lessons from the existing intellectual disability literature can guide researchers to incorporate self\u2010report from individuals with Down syndrome in the future.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/jar.13013","type":"journal-article","created":{"date-parts":[[2022,6,9]],"date-time":"2022-06-09T01:28:45Z","timestamp":1654738125000},"page":"1088-1108","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":57,"title":["Proxy\u2010report in individuals with intellectual disability: A scoping review"],"prefix":"10.1111","volume":"35","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-4172-0288","authenticated-orcid":false,"given":"Stephanie L.","family":"Santoro","sequence":"first","affiliation":[{"name":"Division of Medical Genetics and Metabolism Massachusetts General Hospital  Boston Massachusetts USA"},{"name":"Department of Pediatrics Harvard Medical School  Boston Massachusetts USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Karen","family":"Donelan","sequence":"additional","affiliation":[{"name":"Institute on Healthcare Systems Brandeis University  Waltham Massachusetts United States"},{"name":"Survey Research and Implementation Unit, Division of Clinical Research Massachusetts General Hospital  Boston Massachusetts United States"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Melissa","family":"Constantine","sequence":"additional","affiliation":[{"name":"Division of Biostatistics, School of Public Health University of Minnesota  Minneapolis Minnesota United States"},{"name":"Evidera Inc  Bethesda Maryland USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2022,6,8]]},"reference":[{"key":"e_1_2_11_2_1","doi-asserted-by":"publisher","DOI":"10.1377\/hlthaff.2018.05060"},{"key":"e_1_2_11_3_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2788.2012.01651.x"},{"key":"e_1_2_11_4_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ridd.2013.09.009"},{"key":"e_1_2_11_5_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.neubiorev.2021.05.021"},{"key":"e_1_2_11_6_1","doi-asserted-by":"publisher","DOI":"10.3109\/09593980903423137"},{"key":"e_1_2_11_7_1","doi-asserted-by":"publisher","DOI":"10.1016\/0891-4222(93)90029-j"},{"key":"e_1_2_11_8_1","doi-asserted-by":"publisher","DOI":"10.1093\/pm\/pnw155"},{"key":"e_1_2_11_9_1","doi-asserted-by":"publisher","DOI":"10.1111\/jir.12595"},{"key":"e_1_2_11_10_1","doi-asserted-by":"publisher","DOI":"10.1046\/j.1365-2788.1998.00078.x"},{"key":"e_1_2_11_11_1","doi-asserted-by":"publisher","DOI":"10.1002\/ajmg.a.38512"},{"key":"e_1_2_11_12_1","doi-asserted-by":"publisher","DOI":"10.1111\/jir.12634"},{"key":"e_1_2_11_13_1","doi-asserted-by":"publisher","DOI":"10.1097\/01.mlr.0000258615.42478.55"},{"key":"e_1_2_11_14_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1741-1130.2012.00353.x"},{"key":"e_1_2_11_15_1","doi-asserted-by":"publisher","DOI":"10.1177\/001316446002000104"},{"key":"e_1_2_11_16_1","doi-asserted-by":"publisher","DOI":"10.1111\/1467-8721.ep10768783"},{"key":"e_1_2_11_17_1","doi-asserted-by":"publisher","DOI":"10.1186\/s13063-016-1370-9"},{"key":"e_1_2_11_18_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.2044-8317.1963.tb00206.x"},{"key":"e_1_2_11_19_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2788.2008.01053.x"},{"key":"e_1_2_11_20_1","doi-asserted-by":"publisher","DOI":"10.1002\/ajmg.a.37001"},{"key":"e_1_2_11_21_1","doi-asserted-by":"publisher","DOI":"10.1038\/gim.2016.127"},{"key":"e_1_2_11_22_1","doi-asserted-by":"publisher","DOI":"10.1002\/ajmg.a.61004"},{"key":"e_1_2_11_23_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ridd.2013.07.016"},{"key":"e_1_2_11_24_1","doi-asserted-by":"publisher","DOI":"10.1093\/pm\/pnw280"},{"key":"e_1_2_11_25_1","doi-asserted-by":"publisher","DOI":"10.1093\/pm\/pnw226"},{"key":"e_1_2_11_26_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10803-009-0806-4"},{"key":"e_1_2_11_27_1","doi-asserted-by":"publisher","DOI":"10.1097\/01.chi.0000233158.21925.95"},{"key":"e_1_2_11_28_1","unstructured":"Down syndrome Visual Supports Guide. 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