{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,8]],"date-time":"2026-10-08T00:45:05Z","timestamp":1791420305461,"version":"4.3.3"},"reference-count":60,"publisher":"Wiley","issue":"1","license":[{"start":{"date-parts":[[2022,11,15]],"date-time":"2022-11-15T00:00:00Z","timestamp":1668470400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Research Intellect Disabil"],"published-print":{"date-parts":[[2023,1]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Background<\/jats:title><jats:p>Adults with intellectual disabilities are an at\u2010risk group of developing dementia. In the absence of a cure for dementia, emphasis on treatment is the promotion of Quality of life (QoL). The aim of this review is to identify and describe QoL tools for people with intellectual disabilities and dementia.<\/jats:p><\/jats:sec><jats:sec><jats:title>Method<\/jats:title><jats:p>A systematic review was carried out using 10 databases and papers from up to March year 2021.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Two instruments were identified and examined. The QoL in late\u2010stage dementia, which showed evidence of good levels of internal consistency, intra\u2010rater reliability, test\u2013retest reliability, and convergent validity. The Dementia Quality of Life \u2013 proxy was also used; however, its psychometric properties have yet to be studied within the intellectual disabilities population.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>It is recommended instruments should be developed and psychometrically tested specifically for adults with intellectual disabilities and dementia to help inform policy makers, measure outcomes of interventions and personal outcomes.<\/jats:p><\/jats:sec>","DOI":"10.1111\/jar.13050","type":"journal-article","created":{"date-parts":[[2022,11,16]],"date-time":"2022-11-16T05:19:12Z","timestamp":1668575952000},"page":"28-38","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":5,"title":["Quality of life measurement tools for people with dementia and intellectual disabilities: A systematic review"],"prefix":"10.1111","volume":"36","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-1075-5426","authenticated-orcid":false,"given":"Winnie","family":"Tsang","sequence":"first","affiliation":[{"name":"School of Social Policy, Sociology and Social Research, Tizard Centre University of Kent  Canterbury UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9302-3225","authenticated-orcid":false,"given":"David","family":"Oliver","sequence":"additional","affiliation":[{"name":"School of Social Policy, Sociology and Social Research, Tizard Centre University of Kent  Canterbury UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0946-5088","authenticated-orcid":false,"given":"Paraskevi","family":"Triantafyllopoulou","sequence":"additional","affiliation":[{"name":"School of Social Policy, Sociology and Social Research, Tizard Centre University of Kent  Canterbury UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2022,11,15]]},"reference":[{"key":"e_1_2_7_2_1","doi-asserted-by":"publisher","DOI":"10.5455\/msm.2018.30.221-224"},{"key":"e_1_2_7_3_1","doi-asserted-by":"publisher","DOI":"10.1080\/07263869100034231"},{"key":"e_1_2_7_4_1","unstructured":"Annali dell'Istituto superiore di sanita 56"},{"key":"e_1_2_7_5_1","doi-asserted-by":"publisher","DOI":"10.1093\/geront\/39.1.25"},{"key":"e_1_2_7_6_1","doi-asserted-by":"publisher","DOI":"10.1080\/1366825031000086902"},{"key":"e_1_2_7_7_1","unstructured":"Davidson G. 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