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Yet their voices regarding their lived experiences of pandemic lockdowns have not been sought or heard.<\/jats:p><\/jats:sec><jats:sec><jats:title>Aim<\/jats:title><jats:p>This study aims to describe the lived experiences of people with Down syndrome during the pandemic lockdowns in Aotearoa New Zealand to add evidence in order to inform systemic advocacy.<\/jats:p><\/jats:sec><jats:sec><jats:title>Method<\/jats:title><jats:p>A mixed\u2010methods approach positioned within an inclusive research paradigm was used, in which a group of self\u2010advocates with Down syndrome co\u2010designed a structured interview schedule and conducted 40 face\u2010to\u2010face interviews. Key themes were identified by using content analysis.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Despite the difficulties associated with lockdowns and participants not receiving their usual supports and having to make significant adjustments, they remained positive, adapted well, and demonstrated a high level of resilience and adaptability.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>The findings add to the limited research on the lived experiences of people with Down syndrome during pandemic lockdowns. This research has given them a voice to contribute to policy, government initiatives, and service providers; particularly on issues around support during lockdown and staying connected with others.<\/jats:p><\/jats:sec>","DOI":"10.1111\/jar.13059","type":"journal-article","created":{"date-parts":[[2022,12,2]],"date-time":"2022-12-02T10:50:18Z","timestamp":1669978218000},"page":"300-309","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":2,"title":["Self\u2010advocates with Down syndrome research the lived experiences of <scp>COVID<\/scp>\u201019 lockdowns in Aotearoa New Zealand"],"prefix":"10.1111","volume":"36","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-6613-8430","authenticated-orcid":false,"given":"Franco","family":"Vaccarino","sequence":"first","affiliation":[{"name":"School of Communication, Journalism and Marketing, Massey University, Manawat\u016b campus  Palmerston North Aotearoa New Zealand"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Zandra","family":"Vaccarino","sequence":"additional","affiliation":[{"name":"New Zealand Down Syndrome Association  Auckland Aotearoa New Zealand"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Duncan","family":"Armstrong","sequence":"additional","affiliation":[{"name":"New Zealand Down Syndrome Association  Auckland Aotearoa New Zealand"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Edward","family":"Borkin","sequence":"additional","affiliation":[{"name":"New Zealand Down Syndrome Association  Auckland Aotearoa New Zealand"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Alexandra","family":"Hewitt","sequence":"additional","affiliation":[{"name":"New Zealand Down Syndrome Association  Auckland Aotearoa New Zealand"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Andrew","family":"Oswin","sequence":"additional","affiliation":[{"name":"New Zealand Down Syndrome Association  Auckland Aotearoa New Zealand"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Caroline","family":"Quick","sequence":"additional","affiliation":[{"name":"New Zealand Down Syndrome Association  Auckland Aotearoa New Zealand"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Erin","family":"Smith","sequence":"additional","affiliation":[{"name":"New Zealand Down Syndrome Association  Auckland Aotearoa New Zealand"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Averill","family":"Glew","sequence":"additional","affiliation":[{"name":"New Zealand Down Syndrome Association  Auckland Aotearoa New Zealand"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2022,12,2]]},"reference":[{"key":"e_1_2_9_2_1","doi-asserted-by":"publisher","DOI":"10.1177\/1744629506067618"},{"key":"e_1_2_9_3_1","doi-asserted-by":"publisher","DOI":"10.3109\/13668250.2018.1518898"},{"key":"e_1_2_9_4_1","doi-asserted-by":"publisher","DOI":"10.1111\/jir.12821"},{"key":"e_1_2_9_5_1","doi-asserted-by":"publisher","DOI":"10.1016\/S2468-2667(20)30076-1"},{"volume-title":"Inquiry into the support of disabled people and wh\u0101nau during Omicron","year":"2022","author":"Baker G.","key":"e_1_2_9_6_1"},{"key":"e_1_2_9_7_1","doi-asserted-by":"publisher","DOI":"10.1177\/104973299129121677"},{"key":"e_1_2_9_8_1","doi-asserted-by":"publisher","DOI":"10.1037\/0033-2909.117.3.497"},{"key":"e_1_2_9_9_1","doi-asserted-by":"publisher","DOI":"10.1177\/1049732316654870"},{"key":"e_1_2_9_10_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(20)30460-8"},{"key":"e_1_2_9_11_1","doi-asserted-by":"publisher","DOI":"10.1111\/bld.12192"},{"key":"e_1_2_9_12_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.dhjo.2021.101101"},{"key":"e_1_2_9_13_1","doi-asserted-by":"publisher","DOI":"10.7326\/M20-4986"},{"key":"e_1_2_9_14_1","doi-asserted-by":"publisher","DOI":"10.1017\/ipm.2020.45"},{"key":"e_1_2_9_15_1","doi-asserted-by":"publisher","DOI":"10.12968\/ijtr.2014.21.12.560"},{"key":"e_1_2_9_16_1","doi-asserted-by":"publisher","DOI":"10.1080\/07399330701615325"},{"key":"e_1_2_9_17_1","first-page":"36","article-title":"COVID\u201019 & adults with intellectual disability, autism, epilepsy, or brain injuries","volume":"50","author":"Drum C. 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