{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,6]],"date-time":"2026-10-06T19:45:29Z","timestamp":1791315929146,"version":"4.3.1"},"reference-count":45,"publisher":"Wiley","issue":"4","license":[{"start":{"date-parts":[[2023,4,1]],"date-time":"2023-04-01T00:00:00Z","timestamp":1680307200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100000272","name":"National Institute for Health Research","doi-asserted-by":"publisher","award":["NIHR300501"],"award-info":[{"award-number":["NIHR300501"]}],"id":[{"id":"10.13039\/501100000272","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Research Intellect Disabil"],"published-print":{"date-parts":[[2023,7]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Using inclusive research methods with people with intellectual disabilities is increasingly common. A recent consensus statement identified key elements when conducting and reporting inclusive research with people with intellectual disabilities. This review identifies the range of health and social care research topics using inclusive research methodologies, systematically appraises the involvement of researchers with intellectual disabilities, and identifies facilitators and barriers to inclusive research. Researchers' experiences of engaging with inclusive research are synthesised.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Method<\/jats:title>\n                    <jats:p>Seventeen empirical studies focused upon inclusive health and social care research were identified. The associated inclusive research methodologies employed, and the stages in which researchers with intellectual disabilities were involved, along with the experiences of researchers with and without intellectual disabilities were synthesised.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Papers focused on a broad range of health and social care topics and largely employed qualitative or mixed\u2010methods designs. Researchers with intellectual disabilities were frequently involved with data collection, analysis and dissemination. Facilitators of inclusive research comprised sharing power, team working, having sufficient resources and making research methodologies accessible.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Researchers with intellectual disabilities are involved in a wide range of methodologies and research tasks. How the added value of inclusive research is measured and its impact on outcomes, require consideration.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/jar.13100","type":"journal-article","created":{"date-parts":[[2023,4,1]],"date-time":"2023-04-01T03:58:36Z","timestamp":1680321516000},"page":"681-701","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":56,"title":["A systematic review and narrative synthesis of inclusive health and social care research with people with intellectual disabilities: How are co\u2010researchers involved and what are their experiences?"],"prefix":"10.1111","volume":"36","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-6393-2388","authenticated-orcid":false,"given":"Olivia","family":"Hewitt","sequence":"first","affiliation":[{"name":"Centre for Educational Development, Appraisal and Research (CEDAR) University of Warwick  Coventry CV4 7AL UK"},{"name":"Learning Disability Services Berkshire Healthcare NHS Foundation Trust  3 Floor, Fitzwilliam House, Skimped Hill Lane Bracknell RG12 1BQ UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7745-1825","authenticated-orcid":false,"given":"Peter E.","family":"Langdon","sequence":"additional","affiliation":[{"name":"Centre for Educational Development, Appraisal and Research (CEDAR) University of Warwick  Coventry CV4 7AL UK"},{"name":"Coventry and Warwickshire Partnership NHS Trust, Rainbow Unit Brooklands Hospital  Marston Green Birmingham B37 5RY UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Katherine","family":"Tapp","sequence":"additional","affiliation":[{"name":"Centre for Educational Development, Appraisal and Research (CEDAR) University of Warwick  Coventry CV4 7AL UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Michael","family":"Larkin","sequence":"additional","affiliation":[{"name":"School of Psychology Aston University  Birmingham UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2023,4]]},"reference":[{"key":"e_1_2_9_2_1","doi-asserted-by":"publisher","DOI":"10.1177\/1049732309331869"},{"key":"e_1_2_9_3_1","unstructured":"Alliance for Health Policy and Systems Research. (2022).Systems for health: everyone has a role.https:\/\/ahpsr.who.int\/publications\/i\/item\/systems-for-health-everyone-has-a-role"},{"key":"e_1_2_9_4_1","doi-asserted-by":"publisher","DOI":"10.1111\/bld.12083"},{"key":"e_1_2_9_5_1","doi-asserted-by":"publisher","DOI":"10.1111\/jar.12083"},{"key":"e_1_2_9_6_1","doi-asserted-by":"publisher","DOI":"10.1111\/bld.12020"},{"key":"e_1_2_9_7_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1468-3156.2012.00744.x"},{"key":"e_1_2_9_8_1","doi-asserted-by":"publisher","DOI":"10.3109\/13668250.2020.1795820"},{"key":"e_1_2_9_9_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.socscimed.2020.113299"},{"key":"e_1_2_9_10_1","doi-asserted-by":"publisher","DOI":"10.1111\/jar.12435"},{"key":"e_1_2_9_11_1","doi-asserted-by":"publisher","DOI":"10.1177\/1744629518773938"},{"key":"e_1_2_9_12_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2788.2012.01577.x"},{"key":"e_1_2_9_13_1","doi-asserted-by":"publisher","DOI":"10.1111\/jir.12091"},{"key":"e_1_2_9_14_1","doi-asserted-by":"publisher","DOI":"10.1111\/jir.12486"},{"key":"e_1_2_9_15_1","doi-asserted-by":"publisher","DOI":"10.1111\/jar.12934"},{"key":"e_1_2_9_16_1","volume-title":"People with learning disabilities as consumer researchers: A case study","author":"Gates R.","year":"2007"},{"key":"e_1_2_9_17_1","doi-asserted-by":"publisher","DOI":"10.1111\/jar.12012"},{"key":"e_1_2_9_18_1","doi-asserted-by":"publisher","DOI":"10.1177\/1744629518793466"},{"key":"e_1_2_9_19_1","volume-title":"Inclusive research with people with learning disabilities: Past, present and futures","author":"Johnson K.","year":"2003"},{"key":"e_1_2_9_20_1","doi-asserted-by":"publisher","DOI":"10.1080\/23297018.2019.1627571"},{"key":"e_1_2_9_21_1","doi-asserted-by":"publisher","DOI":"10.1111\/bld.12382"},{"key":"e_1_2_9_22_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1741-1130.2011.00319.x"},{"key":"e_1_2_9_23_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1468-3156.2012.00739.x"},{"key":"e_1_2_9_24_1","doi-asserted-by":"publisher","DOI":"10.1111\/bld.12283"},{"key":"e_1_2_9_25_1","unstructured":"NHS. (2019).The NHS long term plan.https:\/\/www.longtermplan.nhs.uk\/"},{"key":"e_1_2_9_26_1","volume-title":"Inclusive research: Where does it leave people with PMLD?","author":"Nind M.","year":"2013"},{"key":"e_1_2_9_27_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijsu.2021.105906"},{"issue":"1","key":"e_1_2_9_28_1","first-page":"7","article-title":"Supporting the real participation of people with intellectual disability: An inclusive research experience about independent living","volume":"5","author":"Pallisera Diaz M.","year":"2017","journal-title":"Revista Espanola De Discapacidad\u2010Redis"},{"key":"e_1_2_9_29_1","doi-asserted-by":"publisher","DOI":"10.1111\/jar.12331"},{"key":"e_1_2_9_30_1","doi-asserted-by":"publisher","DOI":"10.1186\/s13643-020-01542-z"},{"key":"e_1_2_9_31_1","doi-asserted-by":"publisher","DOI":"10.1111\/bld.12342"},{"key":"e_1_2_9_32_1","doi-asserted-by":"publisher","DOI":"10.1111\/bld.12251"},{"key":"e_1_2_9_33_1","doi-asserted-by":"publisher","DOI":"10.1111\/jar.12075"},{"key":"e_1_2_9_34_1","doi-asserted-by":"publisher","DOI":"10.1111\/jar.12378"},{"key":"e_1_2_9_35_1","doi-asserted-by":"publisher","DOI":"10.1186\/1471-2288-8-45"},{"key":"e_1_2_9_36_1","doi-asserted-by":"publisher","DOI":"10.1352\/1934-9556-49.4.285"},{"key":"e_1_2_9_37_1","doi-asserted-by":"publisher","DOI":"10.1177\/0269216311433476"},{"key":"e_1_2_9_38_1","doi-asserted-by":"publisher","DOI":"10.1111\/bld.12331"},{"key":"e_1_2_9_39_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1468-3148.2009.00518.x"},{"key":"e_1_2_9_40_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1468-3148.2011.00643.x"},{"key":"e_1_2_9_41_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.a2507"},{"key":"e_1_2_9_42_1","doi-asserted-by":"publisher","DOI":"10.1080\/09687590120035807"},{"key":"e_1_2_9_43_1","doi-asserted-by":"publisher","DOI":"10.1111\/jar.12431"},{"key":"e_1_2_9_44_1","doi-asserted-by":"publisher","DOI":"10.1111\/jar.12795"},{"key":"e_1_2_9_45_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12961-020-00558-0"},{"key":"e_1_2_9_46_1","first-page":"71","volume-title":"Normalisation, social integration and community services","author":"Wolfensberger W.","year":"1980"}],"container-title":["Journal of Applied Research in Intellectual Disabilities"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/jar.13100","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,8,20]],"date-time":"2023-08-20T08:17:17Z","timestamp":1692519437000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/jar.13100"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2023,4]]},"references-count":45,"journal-issue":{"issue":"4","published-print":{"date-parts":[[2023,7]]}},"alternative-id":["10.1111\/jar.13100"],"URL":"https:\/\/doi.org\/10.1111\/jar.13100","archive":["Portico"],"relation":{},"ISSN":["1360-2322","1468-3148"],"issn-type":[{"value":"1360-2322","type":"print"},{"value":"1468-3148","type":"electronic"}],"subject":[],"published":{"date-parts":[[2023,4]]},"assertion":[{"value":"2022-04-07","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2023-03-15","order":1,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2023-04-01","order":2,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}