{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,20]],"date-time":"2026-10-20T03:27:47Z","timestamp":1792466867600,"version":"4.5.0"},"reference-count":56,"publisher":"Wiley","issue":"4","license":[{"start":{"date-parts":[[2023,4,26]],"date-time":"2023-04-26T00:00:00Z","timestamp":1682467200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Research Intellect Disabil"],"published-print":{"date-parts":[[2023,7]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Background<\/jats:title><jats:p>Previous studies have focused mostly on the negative experiences of parents of children with Down syndrome. We aimed to explore both the stressful experiences and coping strategies of parents from a non\u2010Western country.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Twenty\u2010six parents of children aged 8\u201348\u2009months with Down syndrome were included. Semi\u2010structured interviews were conducted, and the data were analysed using thematic analysis.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>The main themes of the stressful experiences were emotional burdens, caregiving burdens, struggle against stigma and discrimination, concerns about the future, challenges related to health, education, and financial issues. Parents used a variety of coping strategies to overcome the challenges by seeking support and help, searching for information, accepting and adapting, and adopting optimistic attitudes.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>Although being a parent of a child with Down syndrome has many challenges, most parents effectively used coping strategies and adapted their lives to their new parental roles in their child's early years.<\/jats:p><\/jats:sec>","DOI":"10.1111\/jar.13108","type":"journal-article","created":{"date-parts":[[2023,4,27]],"date-time":"2023-04-27T00:24:27Z","timestamp":1682555067000},"page":"881-894","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":17,"title":["Stressful experiences and coping strategies of parents of young children with Down syndrome: A qualitative study"],"prefix":"10.1111","volume":"36","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-3561-4542","authenticated-orcid":false,"given":"Pelin","family":"Celik","sequence":"first","affiliation":[{"name":"Department of Pediatrics Ankara Yildirim Beyazit University  Ankara Turkey"},{"name":"Division of Developmental and Behavioral Pediatrics, Department of Pediatrics Ankara Bilkent City Hospital  Ankara Turkey"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1028-5949","authenticated-orcid":false,"given":"Aysun","family":"Kara Uzun","sequence":"additional","affiliation":[{"name":"Division of Social Pediatrics, Department of Pediatrics Ankara Bilkent City Hospital, University of Health Sciences Turkey  Ankara Turkey"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2023,4,26]]},"reference":[{"key":"e_1_2_9_2_1","doi-asserted-by":"publisher","DOI":"10.1080\/20473869.2021.1910780"},{"key":"e_1_2_9_3_1","doi-asserted-by":"publisher","DOI":"10.1177\/1066480717731215"},{"key":"e_1_2_9_4_1","doi-asserted-by":"publisher","DOI":"10.4314\/ahs.v16i4.7"},{"key":"e_1_2_9_5_1","doi-asserted-by":"publisher","DOI":"10.1590\/1413-812320172211.31102016"},{"key":"e_1_2_9_6_1","doi-asserted-by":"publisher","DOI":"10.1002\/ajmg.a.61102"},{"key":"e_1_2_9_7_1","doi-asserted-by":"publisher","DOI":"10.1590\/s1980-220X2020001803708"},{"key":"e_1_2_9_8_1","doi-asserted-by":"publisher","DOI":"10.1191\/1478088706qp063oa"},{"key":"e_1_2_9_9_1","doi-asserted-by":"publisher","DOI":"10.1037\/13620-004"},{"key":"e_1_2_9_10_1","doi-asserted-by":"publisher","DOI":"10.1111\/jan.13235"},{"key":"e_1_2_9_11_1","doi-asserted-by":"publisher","DOI":"10.1111\/jmft.12249"},{"key":"e_1_2_9_12_1","first-page":"202","article-title":"Families of children with Down syndrome: What we know and what we need to know","volume":"13","author":"Cuskelly M.","year":"2009","journal-title":"Down's Syndrome, Research and Practice"},{"key":"e_1_2_9_13_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.mjafi.2020.07.010"},{"key":"e_1_2_9_14_1","doi-asserted-by":"publisher","DOI":"10.1177\/1744629516650129"},{"key":"e_1_2_9_15_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijnurstu.2011.09.012"},{"key":"e_1_2_9_16_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2788.2005.00699.x"},{"key":"e_1_2_9_17_1","volume-title":"A literature review into Parents' experiences of raising a child with a disability, and research exploring mothers' experiences of receiving a diagnosis of monosomy 1P36 deletion syndrome for their child","author":"Fishwick V. 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