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Objectives of this study were to investigate progression through LTCP, and associations between social support and: (1) LTCP and (2) burden among family caregivers.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>A cross\u2010sectional survey was distributed to caregivers of individuals with intellectual\/developmental disabilities in NY, OH, PA, and TX, exploring demographics, supports, burden, and LTCP behaviours. Bivariate and linear multiple regression analyses were used to investigate study objectives.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Caregivers (<jats:italic>n<\/jats:italic>\u2009=\u2009405) were predominantly parents, female, non\u2010Hispanic, and in the \u2018learning to plan\u2019 stage of LTCP. Caregiver\u2010identified social support was associated with further progression in LTCP (<jats:italic>p<\/jats:italic>\u2009=\u2009.020) and lower caregiver burden (<jats:italic>p<\/jats:italic>\u2009&lt;\u2009.001).<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>Social support was associated with further progression in LTCP, and associated with less burden, however fewer than 40% of caregivers reported having social support. Ongoing exploration of emotional\/social needs of caregivers is necessary to better support these families.<\/jats:p><\/jats:sec>","DOI":"10.1111\/jar.13141","type":"journal-article","created":{"date-parts":[[2023,8,2]],"date-time":"2023-08-02T12:45:00Z","timestamp":1690980300000},"page":"1229-1240","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":15,"title":["Caregiver support, burden, and <scp>long\u2010term<\/scp> planning among caregivers of individuals with intellectual and developmental disabilities: A <scp>cross\u2010sectional<\/scp> study"],"prefix":"10.1111","volume":"36","author":[{"given":"Telmo","family":"Santos","sequence":"first","affiliation":[{"name":"Division of General Pediatrics Cohen Children's Medical Center of Northwell Health  New Hyde Park New York USA"},{"name":"Department of Pediatrics Zucker School of Medicine at Hofstra\/Northwell  Hempstead New York USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Caren","family":"Steinway","sequence":"additional","affiliation":[{"name":"Division of General Pediatrics Cohen Children's Medical Center of Northwell Health  New Hyde Park New York USA"},{"name":"Department of Pediatrics Zucker School of Medicine at Hofstra\/Northwell  Hempstead New York USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ariana","family":"Mastrogiannis","sequence":"additional","affiliation":[{"name":"Department of Pediatrics Zucker School of Medicine at Hofstra\/Northwell  Hempstead New York USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jack","family":"Chen","sequence":"additional","affiliation":[{"name":"Division of General Pediatrics Cohen Children's Medical Center of Northwell Health  New Hyde Park New York USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jason","family":"Woodward","sequence":"additional","affiliation":[{"name":"Division of Developmental and Behavioral Pediatrics Cinncinati Children's Hospital and Medical Center  Cincinnati Ohio USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ilka","family":"Riddle","sequence":"additional","affiliation":[{"name":"Division of Developmental and Behavioral Pediatrics Cinncinati Children's Hospital and Medical Center  Cincinnati Ohio USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Brittany","family":"Spicer","sequence":"additional","affiliation":[{"name":"Division of Developmental and Behavioral Pediatrics Cinncinati Children's Hospital and Medical Center  Cincinnati Ohio USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"John","family":"Berens","sequence":"additional","affiliation":[{"name":"Department of Medicine Baylor College of Medicine  Houston Texas USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Thomas","family":"Davis","sequence":"additional","affiliation":[{"name":"Division of General Internal Medicine Geisinger Medical Center  Danville Pennsylvania USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Michelle","family":"Cornacchia","sequence":"additional","affiliation":[{"name":"Division of General Internal Medicine Geisinger Medical Center  Danville Pennsylvania USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Charmaine","family":"Wright","sequence":"additional","affiliation":[{"name":"Division of Internal Medicine Division of Pediatrics Christiana Care  Wilmington Delaware USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lee A.","family":"Lindquist","sequence":"additional","affiliation":[{"name":"Division of Geriatrics Northwestern University Feinberg School of Medicine  Chicago Illinois USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1796-6464","authenticated-orcid":false,"given":"Sophia","family":"Jan","sequence":"additional","affiliation":[{"name":"Division of General Pediatrics Cohen Children's Medical Center of Northwell Health  New Hyde Park New York USA"},{"name":"Department of Pediatrics Zucker School of Medicine at Hofstra\/Northwell  Hempstead New York USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2023,8,2]]},"reference":[{"key":"e_1_2_10_2_1","volume-title":"Caregiving in the United States 2020","author":"AARP and National Alliance for Caregiving","year":"2020"},{"key":"e_1_2_10_3_1","volume-title":"Why aren't family caregivers asking for help? 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