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Research on the psychological aspects of parenting individuals with RTT is limited and unclear. We aimed to identify and map the existing literature on this subject.<\/jats:p><\/jats:sec><jats:sec><jats:title>Method<\/jats:title><jats:p>A scoping review was conducted with systematic searches in PubMed, PsycINFO and CINAHL.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Eighteen studies were included. Negative and positive psychological aspects were described with the majority focusing on the negative. Three factors seemed to especially affect the parents: severity of the diagnosis, time (increasing age of parents or individual with RTT; years of caretaking), work\u2010status of the mother.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>Seemingly, parents are highly affected; however, the literature is scarce and has several gaps. Future research should include older parents, fathers, parents of individuals living in group homes, and positive aspects.<\/jats:p><\/jats:sec>","DOI":"10.1111\/jar.13188","type":"journal-article","created":{"date-parts":[[2024,1,9]],"date-time":"2024-01-09T04:10:32Z","timestamp":1704773432000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":7,"title":["Psychological aspects of being a parent of an individual with Rett syndrome: A scoping review"],"prefix":"10.1111","volume":"37","author":[{"given":"Jane Lunding","family":"Larsen","sequence":"first","affiliation":[{"name":"Department of Pediatrics and Adolescent Medicine, Center for Rett Syndrome Copenhagen University Hospital, Rigshospitalet  Copenhagen Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Helena","family":"Hansson","sequence":"additional","affiliation":[{"name":"Department of Pediatrics and Adolescent Medicine Copenhagen University Hospital, Rigshospitalet  Copenhagen Denmark"},{"name":"Department of Clinical Medicine University of Copenhagen  Copenhagen Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anne\u2010Marie","family":"Bisgaard","sequence":"additional","affiliation":[{"name":"Department of Pediatrics and Adolescent Medicine, Center for Rett Syndrome Copenhagen University Hospital, Rigshospitalet  Copenhagen Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Michelle","family":"Stahlhut","sequence":"additional","affiliation":[{"name":"Center for Clinical Research and Prevention Bispebjerg and Frederiksberg Hospital  Copenhagen Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2024,1,8]]},"reference":[{"key":"e_1_2_10_2_1","doi-asserted-by":"publisher","DOI":"10.1186\/s13023-018-0924-1"},{"key":"e_1_2_10_3_1","doi-asserted-by":"publisher","DOI":"10.1038\/13810"},{"key":"e_1_2_10_4_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpeds.2007.02.011"},{"key":"e_1_2_10_5_1","doi-asserted-by":"publisher","DOI":"10.1080\/1364557032000119616"},{"key":"e_1_2_10_6_1","doi-asserted-by":"publisher","DOI":"10.1002\/mrdd.20172"},{"key":"e_1_2_10_7_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ctcp.2005.02.005"},{"key":"e_1_2_10_8_1","doi-asserted-by":"publisher","DOI":"10.1002\/14651858.CD002020.pub4"},{"key":"e_1_2_10_9_1","volume-title":"Manual for beck depression inventory\u2010II","author":"Beck A. 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