{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,19]],"date-time":"2026-08-19T18:57:03Z","timestamp":1787165823181,"version":"build-2736575974"},"reference-count":51,"publisher":"Wiley","issue":"3","license":[{"start":{"date-parts":[[2025,6,11]],"date-time":"2025-06-11T00:00:00Z","timestamp":1749600000000},"content-version":"vor","delay-in-days":41,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Research Intellect Disabil"],"published-print":{"date-parts":[[2025,5]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>People with intellectual disabilities face inequities in access to end\u2010of\u2010life care and inequalities in its quality and delivery. This review aimed to synthesise qualitative evidence to understand their own perspectives about what contributes to optimal end\u2010of\u2010life care.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methodology<\/jats:title>\n                    <jats:p>Data from 93 participants in five qualitative studies were thematically synthesised to identify optimal care and inform recommendations.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Four overarching and interrelated analytical themes were generated. (1) Optimal care recognises heterogeneity and is person\u2010centred. It aligns with individuals' wishes and preferences which are established through \u2018active\u2019 communication. (2) This enables an individual's holistic support needs to be identified. (3) It fulfils ethical obligations around autonomy, equity and a person's \u2018right to know\u2019. (4) It involves the necessary people to ensure all needs are met.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>Optimal end\u2010of\u2010life care is person\u2010centred, holistic, uses \u2018active\u2019 communication, meets ethical obligations and involves the necessary people in care.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/jar.70067","type":"journal-article","created":{"date-parts":[[2025,6,11]],"date-time":"2025-06-11T23:14:47Z","timestamp":1749683687000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":4,"title":["The Views of People With Intellectual Disabilities About What Contributes Towards Optimal End\u2010of\u2010Life Care: A Qualitative Evidence Synthesis"],"prefix":"10.1111","volume":"38","author":[{"ORCID":"https:\/\/orcid.org\/0009-0002-6676-353X","authenticated-orcid":false,"given":"Corrina Alex","family":"Bebbington","sequence":"first","affiliation":[{"name":"Sheffield Centre for Health and Related Research, University of Sheffield  Sheffield UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Elizabeth","family":"Croot","sequence":"additional","affiliation":[{"name":"Sheffield Centre for Health and Related Research, University of Sheffield  Sheffield UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2025,6,11]]},"reference":[{"key":"e_1_2_10_2_1","unstructured":"African Palliative Care Association.2011.\u201cAPCA Standards for Providing Palliative Care Across Africa.\u201dhttps:\/\/www.africanpalliativecare.org\/sites\/default\/files\/2023\u201010\/APCA_StandardsStandards\u2010for\u2010Providing\u2010Quality\u2010Palliative\u2010Care\u2010Across\u2010Africa.pdf."},{"key":"e_1_2_10_3_1","unstructured":"American Association on Intellectual and Developmental Disabilties.2020.\u201cCaring at the End of Life.\u201dhttps:\/\/www.aaidd.org\/news\u2010policy\/policy\/position\u2010statements\/caring\u2010at\u2010the\u2010end\u2010of\u2010life."},{"key":"e_1_2_10_4_1","doi-asserted-by":"publisher","DOI":"10.1177\/1744987118764532"},{"key":"e_1_2_10_5_1","doi-asserted-by":"publisher","DOI":"10.1186\/1471\u20102288\u20109\u201059"},{"key":"e_1_2_10_6_1","doi-asserted-by":"publisher","DOI":"10.1177\/0269216316640421"},{"key":"e_1_2_10_7_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.nedt.2013.07.018"},{"key":"e_1_2_10_8_1","doi-asserted-by":"publisher","DOI":"10.1111\/jir.12023"},{"key":"e_1_2_10_9_1","doi-asserted-by":"publisher","DOI":"10.1108\/07378830610692127"},{"key":"e_1_2_10_10_1","unstructured":"Booth A. 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