{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,3,9]],"date-time":"2026-03-09T03:04:49Z","timestamp":1773025489379,"version":"3.50.1"},"reference-count":51,"publisher":"Wiley","issue":"5","license":[{"start":{"date-parts":[[2025,9,13]],"date-time":"2025-09-13T00:00:00Z","timestamp":1757721600000},"content-version":"vor","delay-in-days":12,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"},{"start":{"date-parts":[[2025,9,1]],"date-time":"2025-09-01T00:00:00Z","timestamp":1756684800000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Research Intellect Disabil"],"published-print":{"date-parts":[[2025,9]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Children and young people with life\u2010limiting conditions in palliative care often have some degree of intellectual disability. Literature about death communication with this patient group is limited. This study aimed to explore professionals' perspectives on death communication with children and young people with intellectual disabilities in palliative care in Germany.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>Seven participants who worked in paediatric palliative care were interviewed. A qualitative study design was utilised with semi\u2010structured interviews and a thematic analysis.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      Two main themes were identified:\n                      <jats:italic>Tailoring communication styles to meet needs and abilities<\/jats:italic>\n                      and\n                      <jats:italic>Navigating the diversity of characteristics of the people involved.<\/jats:italic>\n                      Communication was adapted to each child's or young person's needs and highlighted as challenging.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>Children's and young people's condition and functioning, parents' beliefs, professionals' attitudes regarding intellectual disability, and their uncertainty about children's and young people's needs were factors influencing communication about death, dying, and grief.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/jar.70121","type":"journal-article","created":{"date-parts":[[2025,9,13]],"date-time":"2025-09-13T11:08:11Z","timestamp":1757761691000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["\u201cI Don't Have to Say That They Are Dying Now\u201d: Professionals' Perspectives on Death\u2010Related Communication With Children and Young People With Intellectual Disabilities in Paediatric Palliative Care in Germany"],"prefix":"10.1111","volume":"38","author":[{"ORCID":"https:\/\/orcid.org\/0009-0005-5311-3580","authenticated-orcid":false,"given":"Maria","family":"Bonin","sequence":"first","affiliation":[{"name":"School of Education and Communication J\u00f6nk\u00f6ping University  J\u00f6nk\u00f6ping Sweden"},{"name":"Institute for General Practice and Palliative Care Hannover Medical School  Hanover Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0826-4735","authenticated-orcid":false,"given":"Helena","family":"Taubner","sequence":"additional","affiliation":[{"name":"School of Education and Communication J\u00f6nk\u00f6ping University  J\u00f6nk\u00f6ping Sweden"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2025,9,13]]},"reference":[{"key":"e_1_2_11_2_1","doi-asserted-by":"publisher","DOI":"10.1177\/0269216320932774"},{"key":"e_1_2_11_3_1","doi-asserted-by":"publisher","DOI":"10.1007\/978-3-662-66043-0_15"},{"key":"e_1_2_11_4_1","doi-asserted-by":"publisher","DOI":"10.1176\/appi.books.9780890425787"},{"key":"e_1_2_11_5_1","volume-title":"APA Dictionary of Psychology","author":"American Psychological 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