{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,13]],"date-time":"2026-06-13T15:45:19Z","timestamp":1781365519618,"version":"3.54.1"},"reference-count":48,"publisher":"Wiley","issue":"5","license":[{"start":{"date-parts":[[2025,9,23]],"date-time":"2025-09-23T00:00:00Z","timestamp":1758585600000},"content-version":"vor","delay-in-days":22,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2025,9,1]],"date-time":"2025-09-01T00:00:00Z","timestamp":1756684800000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Research Intellect Disabil"],"published-print":{"date-parts":[[2025,9]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>There is limited evidence exploring sibling's perspective in Prader\u2010Willi syndrome research.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Objectives<\/jats:title>\n                    <jats:p>To investigate the experiences and support needs of the siblings of individuals with Prader\u2010Willi syndrome.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>\n                      This two\u2010stage qualitative study involved siblings aged 11\u2009years onwards (\n                      <jats:italic>n<\/jats:italic>\n                      \u2009=\u200911) and parents (\n                      <jats:italic>n<\/jats:italic>\n                      \u2009=\u20098). Stage 1 utilised multiple age\u2010specific focus groups and paired interviews. Data were analysed through integrated discourse and thematic analysis. Stage 2 included consensus meetings utilising the Nominal Group Technique.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Five major themes emerged during Stage 1: family and relationships, food practices, shared understanding, adjustment and advocacy, and support needs. The findings revealed some commonalities in the siblings' discourse, although their experiences varied based on their age. Parents were aware of these differences but had a different focus.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions and Implications<\/jats:title>\n                    <jats:p>Sibling's experiences show a developmental trajectory and could explain variable parental perspectives. A lifespan and family\u2010focused view could help tailor support systems.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/jar.70122","type":"journal-article","created":{"date-parts":[[2025,9,23]],"date-time":"2025-09-23T10:39:05Z","timestamp":1758623945000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":2,"title":["Experiences and Support Needs of Siblings of Individuals With Prader\u2010Willi Syndrome\u2010 Findings From a Two\u2010Stage Qualitative Study"],"prefix":"10.1111","volume":"38","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-5799-4032","authenticated-orcid":false,"given":"Meghana Wadnerkar","family":"Kamble","sequence":"first","affiliation":[{"name":"School of Health Sciences Faculty of Medicine and Health, University of East Anglia, Norwich Research Park  Norwich UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jen","family":"Dawe","sequence":"additional","affiliation":[{"name":"School of Health Sciences Faculty of Medicine and Health, University of East Anglia, Norwich Research Park  Norwich UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7396-9205","authenticated-orcid":false,"given":"Karen","family":"Bunning","sequence":"additional","affiliation":[{"name":"School of Health Sciences Faculty of Medicine and Health, University of East Anglia, Norwich Research Park  Norwich UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2025,9,23]]},"reference":[{"key":"e_1_2_12_2_1","doi-asserted-by":"publisher","DOI":"10.1352\/0895\u20108017(2007)112[0330:PIOIDO]2.0.CO;2"},{"key":"e_1_2_12_3_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0010\u2010440X(66)80065\u20102"},{"key":"e_1_2_12_4_1","doi-asserted-by":"publisher","DOI":"10.1191\/1478088706qp063oa"},{"key":"e_1_2_12_5_1","unstructured":"Brown R.2022.Best practices for conducting virtual focus groupsSheridan College. 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