{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,12]],"date-time":"2026-10-12T03:46:28Z","timestamp":1791776788375,"version":"4.3.4"},"reference-count":71,"publisher":"Wiley","issue":"2","license":[{"start":{"date-parts":[[2026,4,17]],"date-time":"2026-04-17T00:00:00Z","timestamp":1776384000000},"content-version":"vor","delay-in-days":47,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2026,3,1]],"date-time":"2026-03-01T00:00:00Z","timestamp":1772323200000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Research Intellect Disabil"],"published-print":{"date-parts":[[2026,3]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Introduction<\/jats:title>\n                    <jats:p>This review aims to synthesise qualitative literature of experiences of caregiving for family members with intellectual disabilities displaying behaviours that challenge and\/or mental health difficulties, within the United Kingdom.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Method<\/jats:title>\n                    <jats:p>Following Preferred Reporting Items for Systematic reviews and Meta\u2010Analyses guidelines, five electronic databases (APA PsychInfo, Web of Science, PubMed, MedLine and CINAHL) were systematically searched. Analysis followed a meta\u2010ethnographic approach.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Fourteen studies were included. Three key themes and a line of argument were developed: (i) Carers Wear Many Hats; (ii) Square Services, Round Needs; (iii) A Journey of Many Lows and Some Highs.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Carers highlighted psychosocial strains of the multi\u2010faceted caregiving roles\u2014including advocacy, education and protection. One\u2010size\u2010fits\u2010all approaches meant support services were more burdensome than helpful, leaving carers feeling powerless and marginalised, with limited reports of good practice. The findings can inform care services about supporting these families and individuals with idiosyncratic and intersecting needs.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/jar.70226","type":"journal-article","created":{"date-parts":[[2026,4,17]],"date-time":"2026-04-17T12:42:33Z","timestamp":1776429753000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Exploring the Experiences of Caring for a Family Member With Intellectual Disabilities Displaying Behaviours That Challenge and\/or Mental Health Difficulties Within the United Kingdom: A Meta\u2010Ethnographic Review"],"prefix":"10.1111","volume":"39","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-4639-969X","authenticated-orcid":false,"given":"Lucy","family":"Yates","sequence":"first","affiliation":[{"name":"Department of Primary Care and Mental Health University of Liverpool  Liverpool UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Andrea","family":"Flood","sequence":"additional","affiliation":[{"name":"Department of Primary Care and Mental Health University of Liverpool  Liverpool UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Grace","family":"Talbot","sequence":"additional","affiliation":[{"name":"Department of Primary Care and Mental Health University of Liverpool  Liverpool UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9388-9168","authenticated-orcid":false,"given":"Alys Wyn","family":"Griffiths","sequence":"additional","affiliation":[{"name":"Division of Neuroscience, School of Medicine and Population Health University of Sheffield  Sheffield UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2026,4,17]]},"reference":[{"key":"e_1_2_10_2_1","doi-asserted-by":"publisher","DOI":"10.1080\/20473869.2019.1609306"},{"issue":"2","key":"e_1_2_10_3_1","first-page":"272","article-title":"Ensuring the Quality of the Findings of Qualitative Research: Looking at Trustworthiness Criteria","volume":"5","author":"Anney V. 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