{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,23]],"date-time":"2026-06-23T08:47:18Z","timestamp":1782204438457,"version":"3.54.5"},"reference-count":35,"publisher":"Wiley","issue":"3","license":[{"start":{"date-parts":[[2026,6,12]],"date-time":"2026-06-12T00:00:00Z","timestamp":1781222400000},"content-version":"vor","delay-in-days":42,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"},{"start":{"date-parts":[[2026,5,1]],"date-time":"2026-05-01T00:00:00Z","timestamp":1777593600000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Research Intellect Disabil"],"published-print":{"date-parts":[[2026,5]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Prader\u2010Willi syndrome (PWS) is a complex disorder with severe behavioural symptoms that affects the entire family. Relatively little research has focused on the lived experiences of siblings growing up in this unique family environment.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Method<\/jats:title>\n                    <jats:p>Semi\u2010structured interviews were performed with 25 siblings of individuals with PWS from North America. Participants reflected on their experiences including interpersonal relationships, impacts on well\u2010being, coping, and relationship with food.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Using inductive thematic analysis, we identified several themes: (a) emotion and well\u2010being impacts, (b) impacts on their relationship with food, and (c) relational\/social issues. Positive aspects of their family experience and impacts on job path were identified. Key coping resources were highlighted.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>This study can inform more family\u2010oriented support efforts in PWS care models to include sibling support. The findings suggest sibling support should focus on addressing difficult emotional experiences, problematic eating behaviours, and seeking connection with other siblings with similar experiences.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/jar.70263","type":"journal-article","created":{"date-parts":[[2026,6,13]],"date-time":"2026-06-13T04:42:44Z","timestamp":1781325764000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Lived Experiences of Teens and Adults in North America Who Grew Up With a Sibling Diagnosed With Prader Willi Syndrome"],"prefix":"10.1111","volume":"39","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-4022-1196","authenticated-orcid":false,"given":"Lauren","family":"Schwartz","sequence":"first","affiliation":[{"name":"Foundation for Prader\u2010Willi Research  Covina California USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0003-0339-7269","authenticated-orcid":false,"given":"Abigail","family":"TurnWald","sequence":"additional","affiliation":[{"name":"Cincinnati Children's Hospital  Cincinnati Ohio USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Madelyn","family":"Roth","sequence":"additional","affiliation":[{"name":"University of Washington  Seattle Washington USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6783-8703","authenticated-orcid":false,"given":"Theresa V.","family":"Strong","sequence":"additional","affiliation":[{"name":"Foundation for Prader\u2010Willi Research  Covina California USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2026,6,12]]},"reference":[{"key":"e_1_2_12_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.socscimed.2010.11.032"},{"key":"e_1_2_12_3_1","unstructured":"ATLAS.ti Scientific Software Development GmbH.2023.\u201cATLAS.ti Web (Version 23) [Qualitative Data Analysis Software].\u201dhttps:\/\/atlasti.com."},{"key":"e_1_2_12_4_1","doi-asserted-by":"publisher","DOI":"10.3389\/fpsyt.2022.719598"},{"key":"e_1_2_12_5_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.childyouth.2023.106817"},{"key":"e_1_2_12_6_1","doi-asserted-by":"publisher","DOI":"10.3109\/13668250.2022.2132630"},{"key":"e_1_2_12_7_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pedn.2024.03.022"},{"key":"e_1_2_12_8_1","volume-title":"StatPearls","author":"Daley S. 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