{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,23]],"date-time":"2026-04-23T01:46:33Z","timestamp":1776908793952,"version":"3.51.2"},"reference-count":36,"publisher":"Wiley","issue":"1","license":[{"start":{"date-parts":[[2024,1,16]],"date-time":"2024-01-16T00:00:00Z","timestamp":1705363200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Child Adoles Psych Nursing"],"published-print":{"date-parts":[[2024,2]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Problems<\/jats:title><jats:p>Children with autism spectrum disorder (ASD) tend to have a notably poorer quality of life than the general population, especially during the COVID\u201019 pandemic. This study aimed to analyze the association between institutional support and family support on the health\u2010related quality of life (HRQoL) of children with ASD during the COVID\u201019 pandemic.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>A cross\u2010sectional study was conducted in October 2022 in a School for Special Needs in Malang City, East Java Province, Indonesia. The pediatric quality of life inventory (PedsQL) and Institutional and Family Support questionnaire were used to measure the HRQoL and support perceived by parents of children with ASD. We analyzed each component of the PedsQL and the Institutional and Family Support questionnaire. The independent <jats:italic>T<\/jats:italic>\u2010test was performed to analyze the association between HRQoL and perceived support by parents of children with ASD.<\/jats:p><\/jats:sec><jats:sec><jats:title>Findings<\/jats:title><jats:p>The results showed that most participants (72.7%) were women aged 40. As many as 69.39% of participants had more than one child, and 16.33% declared they had other children who experienced the same problem (special needs children). This study indicated that the average health\u2010related quality of life score in children with ASD was 57.41 (9.418). The finding of this study showed a significant mean difference in HRQoL scores in children with ASD who received high institutional and family support compared to those who had low (<jats:italic>p<\/jats:italic>\u2009=\u20090.028, 95% confidence interval [CI]\u2009=\u2009\u221211.071 to 0.664).<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>Institutional support positively impacts children with ASD's quality of life. Therefore, it is essential to improve the adequacy of support felt by families while caring for children with ASD.<\/jats:p><\/jats:sec>","DOI":"10.1111\/jcap.12450","type":"journal-article","created":{"date-parts":[[2024,1,16]],"date-time":"2024-01-16T13:39:06Z","timestamp":1705412346000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":1,"title":["Institutional and family support impact on health\u2010related quality of life of children with autism spectrum disorders during the COVID\u201019 pandemic"],"prefix":"10.1111","volume":"37","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-8944-2515","authenticated-orcid":false,"given":"Heni D.","family":"Windarwati","sequence":"first","affiliation":[{"name":"Department Mental Health Nursing, Faculty of Health Sciences Universitas Brawijaya Malang Indonesia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Retno","family":"Lestari","sequence":"additional","affiliation":[{"name":"Department Mental Health Nursing, Faculty of Health Sciences Universitas Brawijaya Malang Indonesia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Ridhoyanti","family":"Hidayah","sequence":"additional","affiliation":[{"name":"Department Mental Health Nursing, Faculty of Health Sciences Universitas Brawijaya Malang Indonesia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Haliza","family":"Hasan","sequence":"additional","affiliation":[{"name":"Department of Special Care Nursing, International Islamic University Malaysia Kulliyyah of Nursing Kuantan Malaysia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Niken A. L.","family":"Ati","sequence":"additional","affiliation":[{"name":"Department of Community, Family &amp; Geriatric Nursing, Faculty of Nursing University of Jember Jember Indonesia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Mira W.","family":"Kusumawati","sequence":"additional","affiliation":[{"name":"Faculty of Health Sciences University of Kusuma Husada Surakarta Indonesia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Irhamna N.","family":"Selena","sequence":"additional","affiliation":[{"name":"Faculty of Health Sciences Universitas Brawijaya Malang Indonesia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Bergita","family":"Dumar","sequence":"additional","affiliation":[{"name":"Faculty of Health Sciences Universitas Brawijaya Malang Indonesia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Gemi","family":"Rahayu","sequence":"additional","affiliation":[{"name":"Faculty of Health Sciences Universitas Brawijaya Malang Indonesia"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2024,1,16]]},"reference":[{"key":"e_1_2_12_2_1","doi-asserted-by":"publisher","DOI":"10.3389\/fpsyg.2022.835110"},{"key":"e_1_2_12_3_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10803-017-3251-9"},{"key":"e_1_2_12_4_1","unstructured":"BPS. 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