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The aim of this study was to identify the specific instruments that measure the impact of a dermatological disease on the quality of life (QoL) of family members, by performing a systematic search of the literature. Fifteen papers were identified, describing the creation and validation of nine instruments. Four of them concerned atopic dermatitis (Dermatitis Family Index, <jats:styled-content style=\"fixed-case\">DFI<\/jats:styled-content>; Parents\u2019 Index QoL Atopic Dermatitis, PiQoL\u2010<jats:styled-content style=\"fixed-case\">AD<\/jats:styled-content>; QoL in primary caregivers of children with atopic dermatitis, <jats:styled-content style=\"fixed-case\">QPCAD<\/jats:styled-content>; Childhood Atopic Dermatitis Impact Scale, <jats:styled-content style=\"fixed-case\">CADIS<\/jats:styled-content>), two measured the impact of psoriasis in family members (Psoriasis Family Index, <jats:styled-content style=\"fixed-case\">PFI<\/jats:styled-content>; FamilyPso), one the impact of epidermolysis bullosa (Epidermolysis Bullosa Burden of Disease, <jats:styled-content style=\"fixed-case\">EB<\/jats:styled-content>\u2010BoD), one of ichthyosis (Family Burden Ichthyosis, <jats:styled-content style=\"fixed-case\">FBI<\/jats:styled-content>), and one was generic for dermatological conditions (Family Dermatology Life Quality Index, <jats:styled-content style=\"fixed-case\">FDLQI<\/jats:styled-content>). The European Academy of Dermatology and Venereology quality of life taskforce recommends that the impact of a skin disease on family and caregivers should be measured as part of any thorough evaluation of the burden of a disease. Guidelines are given to choose the most appropriate instruments.<\/jats:p>","DOI":"10.1111\/jdv.14288","type":"journal-article","created":{"date-parts":[[2017,4,20]],"date-time":"2017-04-20T13:39:00Z","timestamp":1492695540000},"page":"1429-1439","source":"Crossref","is-referenced-by-count":69,"title":["Measuring the impact of dermatological conditions on family and caregivers: a review of dermatology\u2010specific instruments"],"prefix":"10.1111","volume":"31","author":[{"given":"F.","family":"Sampogna","sequence":"first","affiliation":[{"name":"Clinical Epidemiology Unit Istituto Dermopatico dell'Immacolata (IDI)\u2010IRCCS FLMM Rome Italy"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"A.Y.","family":"Finlay","sequence":"additional","affiliation":[{"name":"Division of Infection and Immunity Department of Dermatology and Wound Healing Cardiff University Cardiff 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