{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,14]],"date-time":"2026-04-14T06:42:17Z","timestamp":1776148937148,"version":"3.50.1"},"reference-count":23,"publisher":"Wiley","issue":"S6","license":[{"start":{"date-parts":[[2019,9,19]],"date-time":"2019-09-19T00:00:00Z","timestamp":1568851200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Acad Dermatol Venereol"],"published-print":{"date-parts":[[2019,10]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Background<\/jats:title><jats:p>The incidence of hidradenitis suppurativa (<jats:styled-content style=\"fixed-case\">HS<\/jats:styled-content>) is still not fully established with only a few studies reporting its estimates. Prevalence estimates range from 5:10\u00a0000 to 4:100. These extremely large variations could be explained by a combination of factors, including different selection procedures, different diagnostic criteria, and variations in the sex and age distribution of the examined samples.<\/jats:p><\/jats:sec><jats:sec><jats:title>Objectives<\/jats:title><jats:p>To analyze variations between two consecutive Italian Registries on <jats:styled-content style=\"fixed-case\">HS<\/jats:styled-content>.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Data obtained from the second Italian Registry on <jats:styled-content style=\"fixed-case\">HS<\/jats:styled-content>, named \u2018Italian Registry Hidradenitis Suppurativa (<jats:styled-content style=\"fixed-case\">IRHIS<\/jats:styled-content>) Project 2\u2019, are compared to the previous first Italian registry on <jats:styled-content style=\"fixed-case\">HS<\/jats:styled-content>.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Data on 944 patients are reported. The more relevant aspects that characterize <jats:styled-content style=\"fixed-case\">IRHIS<\/jats:styled-content> 2 project, in comparison with the previous first Italian Registry on <jats:styled-content style=\"fixed-case\">HS<\/jats:styled-content>, are as follows: (i) the total number of patients, about fourfold higher; (ii) a more uniform national geographic distribution of the patient population; (iii) a larger number of dermatology units involved; (iv) a larger number of items considered in the data collection; (v) 6\u00a0years of difference between the onset of the two registries (2009\u20132013 vs. 2015\u20132019). Comparing data of the two registries, there are no statistically significant differences in terms of age at the time of the visit, gender, <jats:styled-content style=\"fixed-case\">BMI<\/jats:styled-content>, smoking habits, age at onset and age at first diagnosis by physician. Interestingly, the mean Sartorius score in the <jats:styled-content style=\"fixed-case\">IRHIS<\/jats:styled-content> project 2 (58.8) was significantly lower compared to the first Italian Registry (78.4).<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>The importance of the registries, at both national and international levels, in collecting useful real\u2010life data is confirmed by these two Italian projects.<\/jats:p><\/jats:sec>","DOI":"10.1111\/jdv.15826","type":"journal-article","created":{"date-parts":[[2019,9,19]],"date-time":"2019-09-19T10:07:22Z","timestamp":1568887642000},"page":"4-6","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":15,"title":["Hidradenitis suppurativa epidemiology: from the first Italian registry in 2009 to the most recent epidemiology updates \u2013 Italian Registry Hidradenitis Suppurativa project 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Infectious Diseases University of Ferrara Italy"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"A.","family":"Di Landro","sequence":"additional","affiliation":[{"name":"Centro Studi GISED Bergamo Italy"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3160-2835","authenticated-orcid":false,"given":"L.","family":"Naldi","sequence":"additional","affiliation":[{"name":"Centro Studi GISED Bergamo Italy"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"name":"the IRHIS 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