{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,10,4]],"date-time":"2025-10-04T22:28:12Z","timestamp":1759616892230,"version":"3.40.5"},"reference-count":5,"publisher":"Wiley","issue":"7","license":[{"start":{"date-parts":[[2020,3,27]],"date-time":"2020-03-27T00:00:00Z","timestamp":1585267200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Acad Dermatol Venereol"],"published-print":{"date-parts":[[2020,7]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Background<\/jats:title><jats:p>Vulval conditions have been shown to have a significant impact on patients\u2019 quality of life and can affect their relationships. The Lady Garden Club (<jats:styled-content style=\"fixed-case\">LGC<\/jats:styled-content>) is peer support group that was set up by patients with vulval conditions and is supported by the vulval clinic physicians at Chelsea &amp; Westminster Hospital.<\/jats:p><\/jats:sec><jats:sec><jats:title>Objectives<\/jats:title><jats:p>Our aim was to assess the efficacy of this peer support group and the physician contribution to it. We also aimed to assess potential unmet needs of partners, which in turn could affect our patients\u2019 experience and quality of life.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>An anonymized online Survey Monkey link was sent to <jats:styled-content style=\"fixed-case\">LGC<\/jats:styled-content> members. Questions included a Dermatology Life Quality Index (<jats:styled-content style=\"fixed-case\">DLQI<\/jats:styled-content>) section.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>The response rate was 60% (26). Over half (54%) were members &gt;2\u00a0years. Diagnoses included 85% (22) lichen sclerosus, lichen planus, 8% (two) eczema\/psoriasis, warts 8% (two), vulval cancer 4% (one) and vulvodynia 8% (two). All valued a vulval specialist leading the <jats:styled-content style=\"fixed-case\">LGC<\/jats:styled-content>. Women benefitted from: open member questioning (84%), learning from others (81%), self\u2010help tips (81%), more patient information (77%), latest research updates (69%), sharing concerns and fears (65%), sharing personal experiences (62%), peer support network (62%), and discussion about sex and relationships (35%). A third used the buddy system by phone, 19% soon after diagnosis. The average <jats:styled-content style=\"fixed-case\">DLQI<\/jats:styled-content> was 6.84 (range 0\u201325). Half reported depression and 59% anxiety. Two thirds (68%) felt women with other vulval conditions would benefit from the <jats:styled-content style=\"fixed-case\">LGC<\/jats:styled-content>. Over half (54%) felt there was an unmet need for helping partners understand their genital conditions.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>The survey concluded that the <jats:styled-content style=\"fixed-case\">LGC<\/jats:styled-content> provides several additional benefits to women with vulval conditions, within a safe forum led by a vulval specialist. It also demonstrated a potential unmet need to support women's partners that can now be addressed.<\/jats:p><\/jats:sec>","DOI":"10.1111\/jdv.16276","type":"journal-article","created":{"date-parts":[[2020,2,6]],"date-time":"2020-02-06T13:46:09Z","timestamp":1580996769000},"page":"1579-1582","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":3,"title":["The Lady Garden Club: supporting women with vulval conditions and their partners"],"prefix":"10.1111","volume":"34","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-8028-8830","authenticated-orcid":false,"given":"R.","family":"Akel","sequence":"first","affiliation":[{"name":"Chelsea &amp; Westminster Hospital NHS Foundation Trust London UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"C.E.","family":"Cohen","sequence":"additional","affiliation":[{"name":"Chelsea &amp; Westminster Hospital NHS Foundation Trust London UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"C.","family":"Fuller","sequence":"additional","affiliation":[{"name":"Chelsea &amp; Westminster Hospital NHS Foundation Trust London UK"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2020,3,27]]},"reference":[{"key":"e_1_2_7_2_1","doi-asserted-by":"publisher","DOI":"10.1097\/LGT.0b013e3182652450"},{"key":"e_1_2_7_3_1","doi-asserted-by":"publisher","DOI":"10.1111\/bjd.15125"},{"key":"e_1_2_7_4_1","unstructured":"British Association of Dermatologists.The British Vulval Health Survey 2015. URLhttp:\/\/www.bad.org.uk\/shared\/get-file.ashx?id=3452&itemtype=document(last accessed: 27 December 2015)."},{"key":"e_1_2_7_5_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1743-6109.2010.02077.x"},{"key":"e_1_2_7_6_1","doi-asserted-by":"publisher","DOI":"10.1188\/03.ONF.313-319"}],"container-title":["Journal of the European Academy of Dermatology and Venereology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1111%2Fjdv.16276","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/jdv.16276","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1111\/jdv.16276","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/jdv.16276","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,9,5]],"date-time":"2023-09-05T18:29:24Z","timestamp":1693938564000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/jdv.16276"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2020,3,27]]},"references-count":5,"journal-issue":{"issue":"7","published-print":{"date-parts":[[2020,7]]}},"alternative-id":["10.1111\/jdv.16276"],"URL":"https:\/\/doi.org\/10.1111\/jdv.16276","archive":["Portico"],"relation":{},"ISSN":["0926-9959","1468-3083"],"issn-type":[{"type":"print","value":"0926-9959"},{"type":"electronic","value":"1468-3083"}],"subject":[],"published":{"date-parts":[[2020,3,27]]},"assertion":[{"value":"2019-07-16","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2020-01-21","order":1,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2020-03-27","order":2,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}