{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,3,19]],"date-time":"2026-03-19T03:43:38Z","timestamp":1773891818201,"version":"3.50.1"},"reference-count":20,"publisher":"Wiley","issue":"7","license":[{"start":{"date-parts":[[2021,3,3]],"date-time":"2021-03-03T00:00:00Z","timestamp":1614729600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Acad Dermatol Venereol"],"published-print":{"date-parts":[[2021,7]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Background<\/jats:title><jats:p>Hidradenitis suppurativa (HS) is a painful chronic, recurrent inflammatory skin disease with great impact on health\u2010related quality of life (HRQOL). Recently, Hidradenitis SuppuraTiva cORe outcomes set International Collaboration (HISTORIC) established HRQOL as a core domain set for HS clinical trials and developed the Hidradenitis Suppurativa Quality of Life (HiSQOL) as a validated outcome measurement instrument.<\/jats:p><\/jats:sec><jats:sec><jats:title>Objectives<\/jats:title><jats:p>To provide further convergent validity of HiSQOL by comparing it to Dermatology Life Quality Index (DLQI) and Pictorial Representation of Illness and Self Measure\u2010Revised 2 (PRISM\u2010R2).<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>In this cross\u2010sectional study, 103 participants completed HiSQOL, PRISM\u2010R2 and DLQI. PRISM\u2010R2 is an instrument designed to measure suffering and reports the two measures, Illness Perception Measure (IPM) and Self\u2010Illness Separation (SIS). Correlation analyses were performed including a sub\u2010analysis for a subgroup of patients with high scores in the HS\u2010specific domains of HiSQOL.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>A very strong correlation was found between HiSQOL and DLQI (\u03c1\u00a0=\u00a00.93, <jats:italic>P<\/jats:italic>\u00a0&lt;\u00a02.2\u00a0\u00d7\u00a010<jats:sup>\u221216<\/jats:sup>, (95% CI: 0.89;0.95)), and moderately strong correlations were found between HiSQOL and SIS (\u03c1\u00a0=\u00a0\u22120.73, <jats:italic>P<\/jats:italic>\u00a0&lt;\u00a02.2\u00a0\u00d7\u00a010<jats:sup>\u221216<\/jats:sup>, (95% CI: \u22120.81; \u22120.62)) and DLQI and SIS (\u03c1\u00a0=\u00a0\u22120.70, <jats:italic>P<\/jats:italic>\u00a0&lt;\u00a02.2\u00a0\u00d7\u00a010<jats:sup>\u221216<\/jats:sup>, (95% CI: \u22120.79; \u22120.59)). IPM was positively associated with HiSQOL and DLQI and negatively with SIS.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>HiSQOL is a valid measure of quality of life for HS patients, and we suggest that HiSQOL can be used as a measure of suffering as well.<\/jats:p><\/jats:sec>","DOI":"10.1111\/jdv.17148","type":"journal-article","created":{"date-parts":[[2021,2,6]],"date-time":"2021-02-06T07:56:43Z","timestamp":1612598203000},"page":"1577-1581","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":9,"title":["Convergent Validity of Suffering and Quality of Life as Measured by The Hidradenitis Suppurativa Quality of Life"],"prefix":"10.1111","volume":"35","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-2989-9198","authenticated-orcid":false,"given":"C.","family":"Kursawe Larsen","sequence":"first","affiliation":[{"name":"Department of Dermatology Zealand University Hospital Roskilde Denmark"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0159-670X","authenticated-orcid":false,"given":"R.","family":"Kj\u00e6rsgaard Andersen","sequence":"additional","affiliation":[{"name":"Department of Dermatology Zealand University Hospital Roskilde Denmark"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"J. S.","family":"Kirby","sequence":"additional","affiliation":[{"name":"Department of Dermatology Penn State Milton S Hershey Medical Center Hershey Pennsylvania USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9624-4530","authenticated-orcid":false,"given":"J.","family":"Tan","sequence":"additional","affiliation":[{"name":"University of Western Ontario London Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7953-1047","authenticated-orcid":false,"given":"D. M. L.","family":"Saunte","sequence":"additional","affiliation":[{"name":"Department of Dermatology Zealand University Hospital Roskilde Denmark"},{"name":"Faculty of Health Science Institute of Clinical Medicine University of Copenhagen Denmark"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0712-2540","authenticated-orcid":false,"given":"G. B. E.","family":"Jemec","sequence":"additional","affiliation":[{"name":"Department of Dermatology Zealand University Hospital Roskilde Denmark"},{"name":"Faculty of Health Science Institute of Clinical Medicine University of Copenhagen Denmark"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2021,3,3]]},"reference":[{"key":"e_1_2_6_2_1","doi-asserted-by":"publisher","DOI":"10.1056\/NEJMcp1014163"},{"key":"e_1_2_6_3_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jaad.2009.09.021"},{"key":"e_1_2_6_4_1","unstructured":"COSMIN.https:\/\/www.COSMIN.nl\/."},{"key":"e_1_2_6_5_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jaad.2006.08.061"},{"key":"e_1_2_6_6_1","doi-asserted-by":"publisher","DOI":"10.1111\/bjd.18692"},{"key":"e_1_2_6_7_1","doi-asserted-by":"publisher","DOI":"10.1111\/bjd.16672"},{"key":"e_1_2_6_8_1","doi-asserted-by":"publisher","DOI":"10.1111\/bjd.16093"},{"key":"e_1_2_6_9_1","doi-asserted-by":"publisher","DOI":"10.3200\/BMED.34.2.65-78"},{"key":"e_1_2_6_10_1","doi-asserted-by":"publisher","DOI":"10.4103\/sja.SJA_203_17"},{"key":"e_1_2_6_11_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.tjem.2018.08.001"},{"key":"e_1_2_6_12_1","doi-asserted-by":"publisher","DOI":"10.3758\/s13428-016-0702-8"},{"key":"e_1_2_6_13_1","doi-asserted-by":"publisher","DOI":"10.1056\/NEJM198203183061104"},{"key":"e_1_2_6_14_1","doi-asserted-by":"publisher","DOI":"10.1007\/s40273-016-0389-9"},{"key":"e_1_2_6_15_1","doi-asserted-by":"publisher","DOI":"10.1111\/jdv.13232"},{"key":"e_1_2_6_16_1","first-page":"93","article-title":"The pictorial representation of illness and self measure (PRISM) instrument reveals a high burden of suffering in patients with chronic urticaria","volume":"21","author":"T\u00f6ndury B","year":"2011","journal-title":"J Investig Allergol Clin Immunol"},{"key":"e_1_2_6_17_1","doi-asserted-by":"publisher","DOI":"10.1111\/jdv.16637"},{"key":"e_1_2_6_18_1","doi-asserted-by":"publisher","DOI":"10.1001\/archdermatol.2009.121"},{"key":"e_1_2_6_19_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1087-0024.2004.09113.x"},{"key":"e_1_2_6_20_1","doi-asserted-by":"publisher","DOI":"10.1111\/bjd.15748"},{"key":"e_1_2_6_21_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jaad.2018.05.040"}],"container-title":["Journal of the European Academy of Dermatology and Venereology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/jdv.17148","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1111\/jdv.17148","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/jdv.17148","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,8,24]],"date-time":"2023-08-24T09:07:08Z","timestamp":1692868028000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/jdv.17148"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2021,3,3]]},"references-count":20,"journal-issue":{"issue":"7","published-print":{"date-parts":[[2021,7]]}},"alternative-id":["10.1111\/jdv.17148"],"URL":"https:\/\/doi.org\/10.1111\/jdv.17148","archive":["Portico"],"relation":{},"ISSN":["0926-9959","1468-3083"],"issn-type":[{"value":"0926-9959","type":"print"},{"value":"1468-3083","type":"electronic"}],"subject":[],"published":{"date-parts":[[2021,3,3]]},"assertion":[{"value":"2020-11-13","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2021-01-27","order":1,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2021-03-03","order":2,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}